Hello. I'm now almost 14 months post-op and an avid cyclist. Last year the people that operated on me had a PA tell me I could ride 6 weeks post-op. She meant I could basically ride around the block...
Hi guys, I'm on the bimix and it took a while (12 injections as I was going up slowly) for me to find my dose. The positive side to this is the bimix works for me. Problem I had was due to a half...
donft, I hope you and others are as fortunate as I feel at the moment. I can't tell you how much this has done for my attitude and state of mind. To put it in perspective, two weeks ago I had such a...
Hello Appleseed, I feel for you and can relate. I'm 14 weeks post-op and this past weekend I finally am "pad free". The first couple weeks after surgery were brutal. If you search for posts by me...
Yesterday was my 9 week post-op mark. 1 pad per day and it's virtually dry. The time I had the most issues was when exercising or doing some heavy yard work like digging, lots of bending, etc. Just...
Hello Serenity, my wife bought me some sweat pants / workout pants that were very comfortable. She got them a size to big and hemmed the leg. My brother went through this procedure a couple months...
Interesting thread. My son will be 25 this coming August and I asked my doctor. His feeling is that based on the fact that my brother and I were diagnosed at the same time (he at 50 and me at 52) and...
CharlieB, saw you said you were continent a few days ago. Did it just go from 1 pad to zero in a day? I'm going to see a local doctor to hopefully find out what's going on with me and if it's just...
The success stories gave me the courage to go through with this. It's the reality that has me angry. I'm in the US on the east coast so spring, summer, and fall miles. As you can imagine I'm really...
david, I agree with you. I'm 53 years old but in extremely great shape. I cycle competitively and put in 3500 miles per year. I workout several days per week, ski, play tennis, etc and had zero...
Hello CharlieB, I'm just about 8 weeks post op for an RP and I, like you, had no idea the extent of the post surgery trauma both mentally and physically. My situation has been compounded by not...
FYI, I started doing the conscious contraction yesterday when doing things that were inducing leak and I have to say it helped significantly. Back to 1 pad/day and it wasn't soaked at the end of the...
Thanks bluebird123, much appreciated. Happy to hear things are working out for you two also....
Sparky, as most have said, this is different for almost all of us. My dr gave me a test injection of a bimix the day the supra pubic cath came out. It was a low 5 unit dose that got a little "chubby"...
I learned I was doing to many kegels and that was hurting my recovery. I was never told how many reps or exactly the right way to do them prior to surgery. Post surgery I've been using 1 pad per day...
Ok, thanks guys. It sounds like I'm doing the right thing and its hopefully either due to the dose or me just not relaxing enough. Hopefully it's not because the doctor screwed up but I have to be...
Thanks guys. Bill K, how soon after surgery did you start injections and having success? This is really frustrating. I find it difficult to give myself the injection and wonder if the anxiety and...
Hello, I was prescribed a bimix injection after my robotic surgery. They gave me a concentrate of (PAP/PHEN) (15mg/0.5mg)/ML for the prescription. The hospital test injection I got was 5 units of...
DonaldJ, I had surgery with Menon and ended up with serious ED. I had a complete veil nerve sparing procedure but even that's a crap shoot. I'm told I have a "great chance at regaining full...
Personally, I'm less tolerant and if someone tells me how lucky I am to have had prostate cancer I take a deep breath, try to smile, and walk away before I punch their lights out. Lucky is not how...
I've noticed the same thing regarding the injections and sitting / standing vs lying down. Still not at "the magic dose" yet that gets me a usable result but I was getting closer till I went from the...
Thanks for all your replies. I appreciate it. Yesterday was the first morning I actually had the desire to have sex and, while the ED was a problem we both still ended up enjoying. I gave myself an...
Great thread everyone. Good to know if my regular road saddle becomes uncomfortable I will give this a try. I ride a Merlin Ti and a Colnago C50 carbon and both have Specialized saddles that fit me...
FYI, I rode my regular racing saddle today with no discomfort thankfully. Can't imagine that saddle on a century at fast pace but if it works for people that's great. Hoping I can get back to long...
Thanks guys, I appreciate the info and your candor. I never ask a question I don't want to hear the answer to regardless of whether I like the answer. The doctors told me ED was possible but that...
Hello, I'm seeing lots of posts about loss of libido, adjusting to different types of life, etc regarding to sex after prostate cancer surgery. I'm beyond anxious and significantly angry and need...
Another interesting thread. As some of you know, I'm just 6 weeks post surgery and had no ED problems prior to surgery. I too thought about sex all the time and it didn't take much more than an...
Reltnie, your timing on this topic couldn't be better. My surgery was Feb 14, 2013. I'm a long distance cyclist. Ironically, I've been raising funds for the Dana Farber Cancer Institute for the last...
The manager at the Hampton Inn took care of it for me. It was a really nice recliner with electronic controls. The reason we ended up at the Hampton was due to a screwup at The Henry Hotel. The Henry...
Ah, bif, I might have misunderstood you. Are you talking about a post-op stay in Michigan? Nancy Long helped us find the right place to stay as we came from the east coast. We initially stayed at The...
The W. Bloomfield hospital room was incredible. My wife ended up sleeping on the couch in the room and they were very accommodating. They actually offered her a private room where she could have...
donaldj, supra pubic was a piece of cake compared to my brothers story about his foley regarding comfort and infection. No problems whatsoever with the supra pubic. One bit of advice, get some...
Way to go iSpark!!! I just realized after my last post that today was the day. So happy for you....
iSpark, if you're going to Mani Menon then you're in great hands. No colon blow with him, just a low fat meal the night before. Yesterday was 5 weeks post surgery for me. Today I have a pad on but...
DonaldJ, do not shave yourself. If you're having Dr Menon and he does the supra pubic catheter like he did with me then they don't shave you where you think. It's a small tube in your abdomen below...
HCV, yes, very similar to you. I turned 53 last week, 4 weeks after surgery. I was on active surveillance initially when initial biopsy showed 1 of 12 cores positive and that only 5% so they were not...
Thanks much guys. Can't tell you how much I appreciate it. I was doing fine regarding having patience till yesterday after talking with a friend about his experience and then the mind decided to...
I hope you're right Chuck. I didn't realize this is what I was signing up for. They explained percentages of men that have ED post surgery but they don't tell you that means AFTER a long recovery....
Chuck, how long did it take for you to start to have any reaction without injections or pills? My doctor did prescribe a VED and I don't like it. I find it difficult to believe that people could use...
Thanks Chuck, appreciate the info. Very encouraging even though it's a long term commitment. I talked with someone that had theirs done 3 years ago and he's given up. He also had significant nerves...
Injections started at 3 weeks out but I stopped for a week because I had a minor setback and didn't want to chance it. I've paid out of pocket for the injections and haven't even checked with my...
They put me on a daily dose of 5mg cialis for blood flow starting a week after surgery. I did get headaches at first but no muscle aches. Also no results either from such a low dose. How frequent...
davidg, what kind of pills were you taking a month out and what dosage that showed you results? Also, what type of surgery?...
Bill K, thanks again. I'm not giving up yet. It's very early and I'm trying to keep my head in the game. Will be happy when the leaking is at zero. I'm doing really well controlling that so far....
Thanks for the honest response. I never ask a question I don't want to hear the answer to. I suppose the good news is that the doctor and rehab nurse both explained that your cycle is what to hope...
Hello, I'm looking for info from any of you that have gone through robotic surgery that started with ED post surgery and have "come back to life". NOTE: I had a complete veil nerve sparing procedure...
iSpark, are you going to the Vattikuti in Michigan for surgery? I thought I might have talked to you on another thread but not sure. I had robotic surgery at the Vattikuti on Feb 14, 2013. Tomorrow...
kadoetee, wow, sounds like you're doing great! The release papers I got from the Vattikuti did say no sex for 3 weeks after surgery. That wasn't a problem unfortunately thanks to the surgery as it...
Jim, of course he should ask questions. My statement was not meant to imply that the Dr would do this regardless of whether it was proven or not. He's a very good doctor and I just meant that if he...
Steve, Dr Menon was going to try to do that with me too. Unfortunately in my case the cancer was at the apex and he couldn't do it. I was fortunate enough that he was able to spare all nerves and...