Depends worked well for my husband,and they make night time ones that are thicker. Would also get a bed pad too....
Hello ladies, I've been MIA for a time, dealing with the loss of my friends daughter turned out to be a little more than I expected in many ways, but I am so happy I was mentally and financially up...
It is so hard to read what everyone endures during the cancer journey and how everyone's journey is so different. I never thought I would be able to say Jim's end was much easier than what I reading...
I need prayers for my very best high school friend, she was also my maid of honor almost 44 years ago. She received a call today that her 40 year old daughter had just passed. The call was from a man...
My husbands in home hospice care was everything we had hoped for. In a hospice facility was not an option for us, well at least one that we didn't want unless absolutely necessary. Having a hospital...
Pat and Susan, I am sorry that your journeys are now requiring hospice, but you couldn't have a better assistance. At least that was our expireience. Just controlling the pain and anxiety was such a...
Susan, I too have been back more. For me it's bitter sweet. I read others doing so well on their meds, and it makes me ask WHY didn't they work for Jim. Absolutely nothing, well he did get 11 chemo...
Pat, I am thinking of you and Mark often even if not posting here. Praying for all the strength and love you share with Mark to share with yourself. It is a minute by minute scenario towards the end,...
Susan, I am sorry that you are at this point in the journey of cancer. No need to apologize for sounding non supportive. You are at a very low point of the journey and responsible for only taking...
Sally and Pat..your hubby's sound just like Jim was when he made his decision that quality of life was becoming more important than the treatments. It's so very hard to hear those words, but maybe...
It's been awhile since I've read or posted here. Think I just needed some time away from PC. I sit here on Christmas Eve missing Jim and worry how each of my daughters are holding up to their first...
Reading everyone's post is like our journey with PC, an emotional roller coaster. Some doing better than others, some enduring the end stage, and remembering his difficult that was, other just...
Hi all! hope everyone's Thanksgiving was blessed. I am back in CT after spending 2 months,not long enough, in Las Vegas. Our entire family was together for our first big holiday without Jim. I kept...
Seem to be having several good days in a row lately, kind of nice. Went to primary doctor for general check up, like to keep a primary in LV and in CT since I travel between both. My blood work came...
Emotional reading everyone's journey, those still fighting and those of us grieving for our loss of our love one. This trip back to Vegas has been very depressing for me. Sure I go visit a friend, I...
Susan, Good to hear Bob is feeling well. It's nice to come here and hear good news, even if its only for a short time, even better when it's a long time. Jim felt his best off all treatments, and ate...
Thank you nhwife...I forgot about one of the friend in this same group wrecked his dirt bike 2 weeks ago and is paralyzed from the chest down, wife and 2 very young kids.. If nothing else, all this...
Today is a sad day for my family AGAIN..we've lost another very close friend, when will this all stop? Jim passing on July 5th started it, 2 days later my daughters next door neighbor dropped dead of...
When we find an oncologist like this one and the one my husband had, some how it just makes the journey easier. It made me happy to read his words and how this had to make you feel his hug for you....
Susan, I hope your memorial is all you want it to be and more. As hard as these events are on us left behind, they also make us proud of our loved one. I went and took cakes to my husbands oncologist...
I had a much better day today than yesterday. I think I am going to being able to pray tonight without so much anger. I have to say I don't feel like Jim is as close to me in Vegas as he was in CT....
Dreamer, enjoy every minute of each day with Mark and keep him close. I'm so trying to heal, I go places with my friends, my grandkids and my daughters. I shower, put onmy makeup, do my hair, dress...
Odd man out sure fits...sure I will have that feeling more times than I want. I feel bad for those that just really don't know what to say, and then sometimes I blurt out things I really shouldn't...
Dana, It sounds like your husband went to see his primary doctor by himself???? If that's the case, I would not let that happen again, but that's me. I also took a recorder and when we each had a...
Sorry I've been neglect in posting. Coming back to Vegas has been some what like our cancer journey, an emotional roller coaster. Just flying with out him was hard. Went to a wedding Friday night...
Nhwife, funny you mention the changes in color and the sounds..yesterday driving my SUV with ALL the windows down, including the sun roof and back window, driving my 15 yr old grandson to sports,...
Jim's celebration was spectacular, if I say so myself. You can check out some pictures on my FB page LuAn Presser. Everyone that's said they were coming did and we could have fed twice as many...
Jane, hope your on the mend and feeling okay. The memorial event at Pioneer Village sounds wonderful, keep us updated.. Jitters...
Nhwife, yes I am seeing that also, our journeys are so different. I seem to be moving forward right now but so nervous about returning to Vegas where I will see friends that we have known for over 40...
Taking a moment out of my busy time to say that yesterday,Jim's birthday,actually was a very good day for me. I rode his horse first things the morning and I know he was watching me. Bucket, named...
We did follow alk phos very close too. CTC was done almost every visit but Jim's cancer was very aggressive and PSA rose every time....
Will post more after Sunday, but reading post at night before going to sleep.. I am keeping very busy preparing for Jim celebration this Sunday afternoon. Looks like we will have 55-65 people for...
Ann, Has his oncologist run a circulating tumor cell count. My husbands doctor relyied on the CTC more than PSA. Only a few specilzed pharmacies run the test..Boswick is one and your dr can sent the...
For me right now keeping busy is the best medicine and I have tons to do over the next 3 weeks preparing for Jim's birthday celebration next weekend, then heading to Vegas for a wedding, hotel and...
142...completely understand your statement. The cancer journey is such an emotional rollercoaster and so many adjustments. Susan I am so sorry to hear of Eds passing. Even reading how close it seemed...
Another bitter sweet day unpacking boxes of things Jim and I moved from LV to CT. What were we thinking??? So many many family pictures for the walls and we lived in a 2500sq ft house and now mine is...
Nhwife, getting the pain meds right and getting him home will be the best for both of you, may they resolve his pain quickly so you both gain strength. Eating really isn't a requirement at this...
One of "those" days. Didn't really feel bad, headache, vision not real good, don't care if I move days. Now that I look back I think I have been having a day like this once every 2 weeks since Jim...
Important for the reprite care for yourself. You are no good for anyone exhausted. Hospice will take good care of him. Sleep the best you can and write down the questions you have. Prayers for you...
Thinking of everyone on this lost today. I have a very busy next 3 days so I am expecting a peaceful one too. If Jim is watching he knows I am getting better, I will be working outside in my plants...
nhwife, I am sorry that your husband has reached the hospice point, but so happy that you are both in agreement that it is time and they will get a great physical and mental support system for both...
Passages, so good to hear from you. Yes we are on the same road, dips, curves and a few pot holes, but we shall survive, and even ask why and do we even want to. I am going to a support group tonight...
Xtandi worked for my husband for 6 weeks. Severe nausea and pain from mets. Zytiga, exact same . Nausea so bad he had to have infusions for dehydration and nausea. But nothing worked for him once for...
Wish I was at homeonVegas to meet you Tony and join the walk.. LuAn...
David, I've been so connected to the Xtandia thread I haven't been reading the others. So glad to read about your relationship with your doctor and his nurse. This is the kind of relationship we had...
The author is Dr Gerald Chodak....
For whatever reason, yesterday in my mailbox was a package from Janssen, makers of Zytiga. Info packet on using the med and a large paperback book called Winning the Battle Against Prostate Cancer....
jacknsan..any chance you could see Dr. Vogelzang in Las Vegas, a great prostate research doctor with all the latest trials and he is associated with UCLA. He would see you and reccommend and follow...
Thinking of the warrior ladies today. Headed to bank to resolve issues and then digging my hands in the earth for a great day of mulching..love to see the end result. Also found a support group,...
Today felt like the same day Jim passed away, so difficult and cried all day, never really slept last night. So many stressfull situations but the good news is I think I have found a support group I...