Thank you Fairwind, Good advise. Yes we have a call into specialist now to see what he says. It was our GP that suggested we talk to him due to hip pain, depression, soft muscle tone and generally a...
Thank you.... not taking any supplements in about a year now, no vitamin D3, K-2 or Cal/Mag. NO even any omegas or multi. Thanks for the reminder. Will do. Thanks DMlVT for the feedback on how you...
Hi all, I have been doing fairly good in years since starting treatment and PSA is ultra low. But so is my testosterone. My hip on one side is very sore and not much sign of my muscles or Libido...
Wishing everyone a Merry Christmas and a healthy new year! I am getting some very swollen ankles when standing to much. Never had before. Wonder if is just part of the course, post radiation or from...
Sounds like going for another three months is a safer route. If the arthritis gets worse... it gets worse. He is already cutting it down for the 12th month shot so it would be meeting in the middle...
i get my 1st PSA after HDR & ERBT on Dec 4th. They say it won't tell us much. It will just be a wait and monitor for the next year...... Yes, canadian. Lots of major clinical trails going on up here....
Great help to hear we are not alone. I get snappy when I am over doing it. I am also at the 6 month mark and doc are giving me option to continue as planned for another 3 months or stop now due to...
Has anyone suffered a side effect of pelvis pain and possibly the start of arthritis while on HT Zoladex shots. I am at the 6 month mark and wondered if this will get worse or stay the same if i...
Thank you - it is great to hear the feedback...
Thanks Peter, I guess it is just that they say the HDR and radiataion is designed to kill the cancer. My cancer was contained within prostrate but they ERBT the surrounding area 'just in case'. The...
i also have pelvic pain and they now say HT is causing the arthritis. It run in my family so concerned. I had HDR & radiation and was given the option to stop HT at 6 months and not take the 3rd...
Hi We felt the same and infact one doctors said it was G7 and 2TC and the next said it was G8 and 2Ta. We also did a lot of reserach. It tooks us about 3 weeks just to come off the ceiling from the...
Hi Sassy I have just gone thru treatment with my husband but also with hormone therapy. I would like to add that it is not just ED but the total lack of any desire and they can get very grumpy too....
thank you for sharing...
Just saw cancer Dr to-day and will see him again in 6 months. Originally he said a one year course of HT. To-day, after 6 months of HT [and HDR], He is not pushing the HT as much now. That it is up...
Just an update -I am a Gleason 8 guy. After the HDR followed by 23 days ERBT. ED is fine maybe 90% and no libido but Doc says it is a muscle so got to get it up and running again. No SF. We were told...
Yup Steven, coffee can irriated the bladder.. I changed to tea and much better...
updated stats Nov 2008 - PSA 3.75 - no symptoms & Biopsy clear July 2008 - PSA 4.00 - no symptoms Sept 2012 - PSA 6.40 - no symptoms April 2013 - PSA 6.94 - no symptoms except maybe tired more Biopsy...
thanks everyone. Does anyone know what the next step is: how do they test to see if Cancer is gone and when will I know?...
A lot said for positive thinking, eh! -...
hi - 6 mts in with HT and not too many side effect, everything works, no ed, but no libldo, no weight change or hair loss. Had a few panic attacks at start as the hot flashes set them off but took...
Sorry for the delay - Update time. The HDR bracytherapy went really well. Under for about 3- 4 hrs and woke up feeling good. I stayed over night as they thought I had a touch of sleep apena. Felt...
Thanks Michael. Hadn't thought of the bath - great idea ( if i can fit into it as it is tiny and I am 6ft) It sounds like the same treatment as i am having. I wonder how long after the EbRT you felt...
just to add that after been on zoledex for 4 months now I have very little side effect and yes i have no lilido. I have no sex drive but my wife still does :O) and everything still works fine in the...
just to add that after been on HT zoledex for 4 months now I have very little side effect. I did have Hot flashes that caused some panic attacks but they have gone now that I am used to the hot...
Hi Allen I have updated the profile. Got into a new clinical trail and now doing the HDR Brachy ( probe placed in prostrate, blasted with radiation for 10 minutes = no seeds temp or pernament) Just a...
Thank you A Yooper - wishing you well too...
Tomorrow is the HDR bracotherapy plus the gold markers for the ERBT that starts next week. Has anyone done the HDR? As I would love to hear how you felt afterwards and the next few days etc. Were you...
Well said Greg - as everyone has been a great help as we start this journey...
Thank you Lee...
THANKS PETER...
Thank you TOYOUNGFORTHIS It may be a glimmer.... but your message said there is some hope especially for the ED. The tablets didn't effect it so we have some hope already. We are really going to work...
Thanks 142...
Thank You PeterDisablelard Great info, especially about the depression and excerise and hair on head too...
Quincy - Thanks for the feedback we are sending you positive healing love and light - from Canucks's wife...
Thank You Quincy Great info. Thank you for sharing We were wondering if the fatigue started right away or took a while to happen? Trying to plan life at work.... off if i need to go on medical leave...
THANK YOU RANGERTUG Your feedback is wonderful. Thank you for sharing. It sure sounds like a lot of SE. We were wondering if it will effect me at work as i do some lifting but also a lot of math...
Thank you Zufus...
Hello, Tuesday is the start of the HT Zoladex injections. Have been on tablets for two weeks to prepare for HT... for the one year. Has anyone taken this and we wondered how you found it Did it hurt...
Talked with RO On to-day armed with all your suggestions for questions. I have updated stats now and records are in the mail too. Feels like we are moving forward now Thanks everyone Awesome support...
FYI - Dr said it Prostrate size and 28cc is actually normal to small for a man his age and after HT it will go smaller....
Thanks guys Just talked on the phone with RO On dr and he was wonderful. He explained it all in detail and i got 'Most of it' lol He is doing (after ERBT) a type of high dose radiation in the long...
A Yooper Thank you for your info. What is CPC, I don't see it in Abbrev's. Is the consult with Dr. DeManes free?...
Thank you, i will go back and check my wording... prostate volume or tumor etc....
This is great info..... My gut feeling is go HDB. We will discuss with RO ON Dr the question HDB v LDB. It is approved in other places but I think they are waiting to complete studies where I am. My...
Just when i had stopped crying this post got me going again because of all the kind and accepting words. Thanks I accepted that i was going thru the stages of grief, so let the tears flowed when i...
We are at decision time. Dr suggest HT 1 yr, EBRT 23 dys followed by Low dose braco seeds. I think his reasoning is because HDB is not yet approved here yet but is coming soon but not soon enough for...
Thank you - this is fantasic information and thank you for the straight up info. HighlanderCF - Thank you for your frankness! Biopsy taken by urologist radiologist. Read by local hospital first GS...
Hi Barb I am also a support person for a newly disagnoise person of PC. We had to give it some time to adjust to the news. I cried every minute for weeks when no one was around, can't sleep, felt...
After reading forum replies, i see people quoting their tumour size so i asked to-day and our Nurse said my hubby has a primary tumour grade of 28cc. After looking every where in interent i can not...