I declined to do follow up PSA testing until I started having symptoms. By then, the cancer had spread throughout my body and I had no options other than to prolong the end. In retrospect, I would...
My wife also resists talking, or hearing me talk about, my cancer. In fact, she has always reacted to illness -- especially her own -- with denial. It is her coping mechanism, though it often hurts...
It would be helpful to have a separate Xtandi thread....
My pre-cancer weight was around 190. I was down to 160 when I was diagnosed, having lost 30 pounds during the prior three weeks (zero appetite and all food/drinks tasted awful). I re-gained most but...
I started Xtandi a couple of days ago. My PSA rose to 377 after the chemo therapy failed. I stopped the chemo mid-December 2013. Too soon to tell how well the Xtandi will work. The capsules are...
Zytiga is not chemo. As far as I know you can keep taking it until it stops working. I was on it a couple weeks before it stopped working. I've been getting chemo now for four months but it recently...
That's great. Thank you for sharing....
I've been on Lupron and its equivalents (Firgamon, Zoladex) for over a year. I haven't had any problems other than the expected ones (hot flashes, weepiness, thinning of beard, impotence), which are...
I've been having chemo (taxotere; 6 cycles) for the last four months but it is not controlling the cancer. I'm starting Xtandi soon. Hope it works for me....
Lupron stopped working for me after only six months. I was expecting it to work a lot longer. I agree with the above comments. There is always something else to try. Get the best medical oncologist...
It is awkward jumping in here not knowing the long tortuous struggles of those already members and friends. My heart goes out to all those farther along in this exhausting journey. Your company means...
I am stage 4. It is throughout my bones. I think Gleason was 7 at diagnosis....
I went through severe cancer cachexia for three weeks in November 2013 just before I was diagnosed with prostate cancer. I lost 30 pounds during those three weeks. It was absolutely terrifying. I...
I concur with all the advice above. Another site I have found useful and supportive is http://www.yananow.org/Links.shtml . I just survived my first year. Our first few months were very traumatic but...