Allen, Had a consult with med one about 3 weeks ago concerning starting Taxotere. Was told that because husband is already castrate resistant he does not meet protocol for early Taxotere cycles. As...
Hi all Husband has been on Xtandi now since April 2015, doing well with no real side effects and great reduction of PSA. Became castrate resistance on Lupron after only 4 months PSA started rising to...
So very thankful to see this link today as my husband and I are headed to medical oncologist tomorrow to discuss this very treatment. On ADT husbands PSA is best it has been at 0.5, he is feeling...
Tall Allen, it had only been precluded by husband himself.. Lots of fear about it due to his also being a very brittle Type 1 diabetic. He had it in his mind that he would not survive the Taxotere....
Question for all you guys who are so awesome at answering them!!!! Husband was started on Xtandi on 4/9/15, as the Lupron only brought his PSA down for 4 months and then started on the rise again....
Ever since the beginning of this journey I have been feeling as if we were waiting for " the other shoe to drop." Husband started on Lupron 9/14 with a good response initially. The lowest his PSA got...
So sorry for the bad news but hoping that the study brings you good news. I understand the angry part for sure. Watching our husbands struggle through all the testing and treatments just sucks. We...
Au327, sorry I meant brittle as in his diabetes is very brittle or erratic and difficult to control. His bones though not so great either and yes he is on Xgeva monthly, and taking calcium...
Yes I think testosterone "T definetly needs to be lower at this point. Thinking maybe a change to firmagon may be in order. Also need to explore Taxotere. Just not sure how well he will tolerate...
Was hoping last months PSA bump was just a fluke, but instead looks like a new trend. Went from 1.4 last month to 1.7. Was so hoping husband had a little more time of steady numbers but looks like...
Ok all here is the update. Started on Clonidine last Wednesday. Has been sleeping like a baby ever since. Says hot flashes are almost non existent at this point. Occasionally will have one during the...
You guys are amazing!!!! Called PCP today (working together has special perks) and starting a trial of the Clonidine today. Keeping my fingers crossed but you guys have definetely given us other...
Husband has been on Lupron since September. Hot flashes are becoming worse and now not sleeping secondary to the hot flashes. Leading to lots of depression and hopelessness (mostly from lack of...
Husband started Xgeva injections last month. 10 days later had PSA drawn and it had risen slightly from 1.3 to 1.4. Not sure if there is a connection or if we are already starting to see a risie...
Hello fellow caregivers, Was just checking in to see how everyone is doing. Seems some are going through some rough times and some are coasting as we are right now. Know that I think of you all often...
Jane, welcome from another newbie wife. Take a deep breath, this is always a huge shock and sometimes being in the medical field makes it more difficult. When you are able to read the reports and...
Lisa, just wanted to add my welcome to all that you have already received here. I am here also because of a G9 husband just recently diagnosed. Definetely a huge punch to the gut. The new "normal"...
So sorry that you have to be here but welcome and you have come to the right spot for support and advice. As you can see by my signature I too am here because of my husband and we have some similar...
David, Reading your post I am amazed at all you have gone through. Dealing with the VA is so very frustrating I am so sorry you have had all these things to deal with on top of all your health...
Geop, Congrats on finding the right MO and starting your treatment with such a great attitude. As you can see my husbands stats are very similar. He started ADT 9/2014 and just received his 2nd...
Good news for husband today. PSA now 1.9. Making progress and going the right direction at this time. Testosterone still 39, would realistically like to see it some lower will talk to urologist...
Blood drawn this am. Now the waiting begins??? Should have the results in the am. Does the waiting ever get easier??...
Husband is due for 2nd lupron shot in 10 days. Has really responded well so far to first shot. 1 month psa was 7.6, followed by 2month at 3.6. Due for blood work again next Monday. Seems logical to...
So nice to log on tonite and catch up with all the caregivers. Have been spending the last 3 months completely wrapped up in PCa. I feel that our life is revolving around it. Do you guys feel like...
Such great news. Congrats!!!!! Time to look forward to the good things in life yet to come....
Pratoman So very sorry you had a terrible day. I can relate to both you and the doctor unfortunately. I can relate to you as my husband was recently diagnosed 8/14 and underwent the bone scan and Ct...
Fellow caregivers, Just one of those days where I needed to look here to see someone who "gets it". Past week has been crazy. Husband had "minor surgery", (for most people, but unfortunately not a...
Having blood work drawn tomorrow so husband is getting very anxious. Has been working a lot of hours this weeks and having lots of back and hip pain. He has himself convinced that PSA will be going...
Haven't posted before as I just joined the forum yesterday and was directed to this thread, but after reading just had to join in. So good to get other wives perspective, sometimes you think you are...
Thanks all for the welcome. Allen & adjust I have been reading lots of studies on the Taxotere and they certainly look promising. I am going to try again to broach the subject with my husband but in...
Thanks all for the help think I have it now even though it won't show in original post....
Not sure why it didn't show up. Is there a trick to it?...
Hi all, Have been lurking for several weeks now and have really been inspired and given hope by many of you. Thank you for that. As you can see by my signature we are just starting this journey....