Spent last week at MDA getting my 6 month bone scan, CT and blood work. Got the results Thur., both scans were clear and my PSA stayed stable at 0.2 so I am very happy today. Ron...
Wishing you a great day and a low number👍🏼...
Amen brothers... it's hard to read sometimes..but yet it is necessary for me to keep in touch, so I come by almost everyday to see if I can help someone....
Yes Debbie I did as part of the M! Clinical trial. It is a clinical trial to see if localized treatment of the prostate either by surgery about radiation will help slow down the metastases. They seem...
It was one year ago today I found out I had pca. It has changed my life in ways I never dreamed possible. From the shear panic of the first weeks, to the slow acceptance of learning to deal with it....
My Dr. had me doing 100 kelgel a day 10 sets of 10. Starting before surgery and again after cath out. I was completely dry after 8 weeks. I never gave up my coffee or my tea....
Around another corner Just finished my 8 week since my surgery. For the past 3 days I have been dry. I sure hope this remains the case, because it sure makes life easie. Ron...
Six weeks post op check up I had my six week post op check up today everything went well at PSA was down to 0.5. Not as low as a hoped but at least it still going in the right direction. The doctor...
John, who was your surgeon, mine was Dr. Chapen...
I am trying to figure out what underwear works best with the pads. I usually wear boxer briefs they seem to be ok but as the day wears on they stretch out and the pad wants sag down. Someone...
Had RALP on 4/11 catheter out on 4/19. Was making good progress with incontenance until last 2 days. Still dry and have control all night and as long as I am sitting, no control when I stand up and...
Sorry, to hear of your new troubles will keep you in our thoughts and prayers...
Welcome I am 2 weeks out of surgery today. Mine was also done at MDA. Like Raypaul dry in the mornings dry all night, problems come in the afternoon when up moving around. Hope you continue to...
GREAT news so happy for you....
Good read, sounds promising down the line....
Welcome to the club nobody wants join, you will receive a lot of great information and support here....
All suggestions help, I know it's a wild guess as to how much or if any I will need. Just want to be prepared. I am still a little nervous about removing my catheter myself. Although it was real easy...
As you may recall I had my surgery last Tuesday the 11th. Well I remove my catheter Wed morning any suggestions as to what supplies I will need to start as far as pads, pull-ups or whatever else I...
I had my surgery yesterday, all went well. I have been up walking around sitting in a chair now. Those who have had the surgery know what I am going through. Not a lot of pain bur really...
Dr. Chapin said he would try to spare the nerves, he says this is all he does and he does 8 - 10 a week there at MDA. So at least I know he has had a lot,of practice preforming the surgery. Also I...
Hey guys I am in Houston at MD Anderson, just finish all my pre-op work ups and met the anesthesiologist. My surgery is scheduled for Tuesday morning I have to admit I am starting to get a little...
Hang in there :yeah: there is always light at the end of the tunnel Ron...
Thanks for all the info George I reall appreciate lt. it also helps with the decision making. I have decided to have the surgery and it is scheduled for April 11. After much reading and discussing...
The endgame is to see if treatment of the prostate by removing it or radiateing it increases the life span of patients with metastasis prostate cancer. The theory being removing or killing the...
Thanks for posting, it gives people like me who are just starting the journey hope....
As you may recall I was offered to participate in the M-1 trial by Dr. Chapin at MD Anderson. The purpose of Thur trial is to see if localized treatment in metastatic cancer helps improves life span....
Thanks so much for sharing your story.. ..good luck going forward. Ron...
Got s new psa reading today it has gone from 4.8 to 4.1 since Dec 16. Was hoping for more but as we all know any drop is good news. SoI have gone from 68.8 to 4.1 after 5 month on lupron....
Sorry to hear about the pain. I can only speak as to my SE on lupron. No pain as you described only hot flashes and some light stinging in my chest.. Ron...
Welcome to the group, sorry you had to join but you came to the right place....
I got a call from MDA they want me to come back Feb. 8th and take part in a trial. It is called M1 trial, to see if local treatment of pc that has metastasized will extend the life expectancy of pc...
Thanks for the kind remarks, I am going back to MDA Feb 8th to meet with the urologist again and the radiation oncologist to discuss the removal of the prostate and the possibility of radiation...
Yea it worked...
Checking to see if dig will work now...
For some reason my sig. didn't show up It shows up on my profile just not here and I checked the box...
Hello guys, Been lurking around reading for a couple weeks, decided to come on board and say hi. My signature pretty much tells you my story. Any words of wisdom will be appreciated. Was back at MDA...