Hubby has one external iliac lymph node that continues to increase while on Eligard. Doc is suggesting radiating the node since it's been over 10 years since salvage radiation to prostate bed. Anyone...
Hubby on Eligard, just had Xtandi added as well. Wondering how long to expect PSA to drop. Thx!...
Hubby will start 160 mg/day Xtandi next week as well as continue with Eligard shots (just had 4-month shot). He and doc decided on this route due to our international travel and less need for...
Maybe adding Casodex to the mix? Hubby will get CT/bone scans next week as well as PSA/testosterone. His appointment with assistant oncologist stated doc may add Casodex instead of going straight to...
Thank you for the encouragement. Hopefully the fatigue won’t be too severe if it follows what his other meds have been like. Short afternoon naps while on Casodex and Nilutamide, then minimal fatigue...
Hubby got PSA results this morning. Up at 24.18 from 17.53 in January while on Eligard for the past two months. Although testosterone has been coming down from 24 in January to 13 this morning, it...
Perfect reply to my post, Cyclone. Thank you so much! We continuously track hubby’s testosterone and he has been at very low T of 11 after starting Orgovyx. Oncologist feels where he’s at regarding...
One other note - he was scheduled to start Orgovyx in 2021 but had decided at that time to continue on nilutamide for as long as possible. PSA started to rise, nilutamide was no longer effective, so...
Hubby started Orgovyx in April (which was after casodex and nilutamide were no longer effective monotherapies). However, PSA is starting to climb. He plans to switch to the six-month shot of Eligard...
Hubby started with hot flashes about 2 weeks into Orgovyx. T dropped to 15 but amazingly not much fatigue. He functions quite well. Unfortunately it seems the drug is losing efficacy after 6 months....
Hi Steve. My husband is starting Orgovyx (120 mg) tomorrow. HIs care is thru Moffitt Cancer Center in Tampa and will be only their third individual so far on this new drug. Diagnosed in 2013 as PT3B...
Anyone have experience with orgovyx? It is being recommended for husband who has advanced prostate cancer. Previous treatments were RP in 2013, radiation in 2014, Casodex monotherapy 2017 to 2020,...
Anyone have experience with intermittent Lupron? Hubby may be coming off intermittent nilutamide since it seems to be losing it's effectiveness (after intermittent Casodex for two years). Nothing...
Thank you all so much for your replies. Every response has been extremely helpful. My hubby has such a great attitude and that's what carries us through all of this craziness. Have a great holiday...
After 7 years, looks like hubby will be going on Lupron. Waiting on bone/ct scans to determine if it will be full-time or intermittent. Can anyone share their experiences while on Lupron? Are you...
Hubby had both knees replaced 2017. Was diagnosed PT3B in 2013 and after surgery/radiation and increase in PSA cancer was considered incurable/micrometastatic at time of surgeries. He had been on...
My husband has been on monotherapy intermittent Casodex 50 mg for a year now. This was the treatment plan agreed upon by med oncs at Sloan Kettering and Moffitt. Game plan is to go on Casodex when...
ADT was not started after prostatectomy and before radiation because the oncologists believed they were going for a cure with radiation. The thought was that any residual cancer was still in the...
Wanted to give update on our decision for treatment and hoping what we've experienced is of help to someone else. Been with Moffitt since starting adjuvant radiation in 2014 (after prostatectomy in...
Interesting. I asked the doc about the decrease from 6.6 to 2.6 in five weeks and he said it was about average for what he was seeing. He believed that by his next appointment November 1 hubby would...
Hubby goes to med onc at Moffitt in Tampa where we live. We have also been consulting with Dr. Slovin at Memorial Sloan Kettering. The two docs seem to be on the same page with treatment...
Anyone experience early onset of nipple soreness from use of Casodex for PSA increase and then be told to stop the Casodex? Hubby started 50 mg six weeks ago and has been having sorenes since about 4...
Well this certainly was the most unexpected oncologist appointment we've had since starting our journey with prostate cancer. Saw doc today for PSA results. He came in and asked hubby if he is on any...
Hubby is currently micromestastatic. Path report after RP had indicated "suspicious for lymphovasular invasion." Two lymph nodes removed at surgery, all clear. Med Onc believes cells circulating in...
Hubby saw Med Onc this morning. Due to less than six-month doubling time from August 2016 PSA, doc wants to start him on Casodex, 50mg daily, intermittent til PSA goes down below 1. Doc said only...
Good morning all. Hubby just had PSA done this morning. As you can see from below, it continues to rise, although slowly and at this latest reading has not doubled since November 2016 reading. MSK...
Hubby saw med onc today. Even though PSA rose from .93 to 1.7 in four months, he wasn't concerned (yet) about PSADT. However, he does want bone/CT scans in November. Said probability of anything...
Interesting - we weren't able to get in with Scher. Seemed he was only able to add the more complicated cases to his workload. Understandable. Any idea how your contact is feeling on the Casodex?...
Thanks Allen. I did read your post previously and the study was one of the major topics we were going to discuss with MO. We know HT is in his future and they are going with IHT. MO at MSK said she...
No ADT as of yet. Both Sloan Kettering and Moffitt (our doc) agreed on starting Casodex at 8-10 PSA. But who knows if this rise timeline will change their thinking....
Boy, Bololidat, you're good! I read your response to my husband. Brought a big smile to his face, and mine. Mainly because it is our belief - live life, never give up, never surrender....
Hello all. Hubby had PSA this morning. Result is 1.7, up from .92 four months ago. Calculated PSADT at 6.1 months. We see med onc doc Thursday. He'll do scans. Can't find my notes on type of scans....
DH had PSA draw this morning. Results were .94, which is increase from previous of .62 in January (see signature below). Although still rising, at least it took 5+ months to double from the October...
As you can see below, hubby's PSA results from this week are at .62, which is good news in that it didn't double from the October reading of .47. We know Casodex and other therapies are in his...
My husband was also diagnosed at PT3B on pathology (see signature below). Surgery was Oct 2013, radiation about 9 months later (waited for continence) and increasing PSA since then. His care was...
Hubby got results Oct 5 - .47 which is actually good news since it had been tripling with past three tests and was .41 in July. So maybe the beast has lost a little steam, albeit temporary. We'll...
Hubby gets his PSA tomorrow as well, then visit with Med Onc on Monday. Would love to know the results immediately to see where he stands (we're leaning toward above 1.0 now) but protocol at cancer...
When faced with tough situations, my father-in-law would always use the quote "it's not how hard a hit you can take, it's how quick you can get back up." You, sir, have been "hit" repeatedly and for...
As you can see by signature, hubby also had SRT fail. We consulted with medical oncologist here in Tampa at Moffitt. His thinking was get a baseline bone scan when PSA reaches minimum 1.0 but he...
We are also in Tampa. My husband was initially diagnosed after biopsy as T1C with Gleason 3+4. This was from a urologist that we have stopped seeing due to his lack of knowledge and compassion. We...
Hubby had PSA last week. This is 1 year after finish of ART. Was PT3B after surgery. PSA rose from .03 in November last year to .05 in February., .17 in May and now .41 only two months later....
Hubby's one year PSA came back today at .41 - more than double from two months ago. This has been a steady increase since the ending of adjuvant radiation a year ago. We will be consulting with Dr....
Hubby's next PSA is in a few days, July 21. Was told by medical oncologist in May when PSA came back increased to .17 that his status is incurable, micrometastatic. (See stats below) We are getting a...
Thanks TA. Just spoke with scheduling. After we send them all John's info, Dr Scher reviews and makes determination whether he'll see John or pass it to one of his colleagues....
Joh's stats are Pt3b, SVI, EXE, positive margin G6 at apex, 4+3 with tertiary 5, RPP 10/13. PSA's .02 to .03 til adjuvant radiation started on 7/14. PSA's post-ART were .03 at 3 months, .05 at six...
Met with med onc at Moffitt for John's now detectable PSA post surgery and adjuvant radiation. We were pleased with his knowledge and recommendations. But we want to get a second opinion from an...
Oops - was texting with my daughter at the same time as reading your post. Had daughter on the brain. Sorry....
Gibson00 - you made my husband and me tear up - in a good way. Bravo to you as a daughter and your father as a fighter....
Fairwind - would you be willing to share more details on what you've experienced while on ht? I've been continuously researching and trying to get as much info as possible. We know this is all a game...
Fairwind - Thanks for the response and ideas about SSDI. I doubt at this stage he would qualify since he hasn't begun ADT and then failed. But if you have information that I could use to get...