I just finished 40 IMRT sessions and am half-way through a 6-months course of Lupron, following a November 2015 recurrence of PCa, 7 years post-op (2008). Gleason 4+5=9, small tumor load and...
Thank you, Bob I will print your post and bring it with me. At the time of my surgery I had such clean pathology that even with a G9 additional therapy was not suggested or recommended. That of...
Well, decision time. My PSA went to 0.1 in August and then 0.12 this November. Time to uncross the fingers, dump the rabbit's foot and face the obvious: a recurrence. While it is tempting to wait...
Hi Ken, There is a lot of "positive thinking" on these sites--and all that is fine and good-- but the fact is that every case is different and your path will be your very own. I was in the same boat....
I had the shortest commute and very sorry that I was only there for the day. At 77 I still work a full week, managing my wife's practice. Time just disappears. Can't tell you guys how happy I am to...
I will come over for Saturday's events and look forward to being there. Thank you Steve...
Super Max That is Super!! An even better system than my own. Frankly, Dropbox had not occurred to me. You learn every day :-) My binder is so thick, I am too lazy to scan it all, but for newbies,...
The fact is until your husband has the results of post-op pathology, it's all just commentary. Every case and situation is different. Also, GS can be upgraded or downgraded post-op because GS based...
Tony I think your urologist makes all the sense in the world, unless the velocity (rate of PSA rise) increases dramatically. Salvage radiation is no free lunch. I have a similar situation, with the...
Thanks Nomar I simply deleted it. This was new to me. Steve...
By the way, do not discount flying into Buffalo if you can get a much cheaper ticket (or a better, direct, connection). It is an hour and a half drive but we fly out of there when the fare difference...
Re an earlier post, hard experience says that "0" PSA does not ultimately equate with "being cured" I was "<0.01" for a full three years post op on ultra sensitive assays, with organ-contained...
Super max" The Dr. Kwon video was fascinating and eye opening. Super thanks for the link. Those who have not seen it, should. Allen: I had seen that paper on another site. Sort of suggests that the...
Hi All, Thank you all so very much for the quick and very helpful replies. I kind of agree that if it looks like a duck, quacks like a duck and walks like a duck...chances are it's a duck. And thus...
I am an outlier. I had an RP in March 2008, at age 70 with post-op pathology staged at pT2aN0MX and a Gleason of 4+5=9! What makes me an outlier --at that GS--is that the tumor was very small and...
Good being young. The only treadmill am fond of is work. But you will feel weak for a few weeks. Your body has been assaulted big time. But I suspect you will be like new in a short time. All the best...
Yes, Pratoman, I read (or rather misread) your "footnotes" as saying you had two reading on your post-op slides. As I may have mentioned, my wife explained how subjective reading slides can be ,and...
Hi halbert All good news, but having a male nurse take care of that puts a damper on the story possibilities down at the bowling alley :). Next time pay for premium lever Obamacare. It has more...
Halbert It will be one of those memorable days for you. Great relief and an important step forward. I remember it well. I drove my Porsche and had pizza. Wrote a teary email to my four kids. Probably...
Hi Halbert, I did not want to be a busybody, but then again here we are, discussing who can't get it up---who is pissing in his pants--what kind of pads work best? A true brotherhood of prostates....
I just noticed that you went for a second opinion on post-op pathology. I was going to suggest that for consideration to Halbert but did not want to be intrusive. That's a very smart move. My wife...
Hi Halbert That is a very encouraging post-op path. I can imagine the feeling of relief. One suggestion: Start a binder and file every lab, the path, PSA's before and after...forever. It will be of...
Looks like someone was watching the shop and caught everything early in your case. A best case scenario other than not having it at all....
Halbert Thanks for the email. I did not pick up on the fact that this is brand new for you. I am still getting the hang of this site. I am a total wimp, but remember that the cath removal was a...
Pratoman - I smiled at your signature suggestion of "getting as much sex as you can" Pre-op. I did in fact--unenlightened by your later insights-- follow that advice back in March 08 when I had a...
Thanks all. Making the September gathering here will depend on the snow stopping by then! Rochester has had weeks of unending crummy weather (of course others, too). Would appreciate knowing which...
Wow! Thanks to all of you for those kind and welcoming replies. In truth, I was happy to ditch my compulsive Internet habit once I got less scared and more convinced that I was "cured". After a few...
Hi Pratoman/Hi guys (and usually some gals). I signed on to this site yesterday because I was intrigued about the Rochester gathering. I live in this god-forsaken (at the moment) place and was...