Hey guys, just wanted to share some good news I got a couple days ago. My PSA 6 months after RALP is now undetectable (<0.01]. Thanks for all the advice and support from everyone in this forum. Jeff...
Congrats to all on the good results. My last PSA result 3 months post-RALP was 0.02. Next test is in May. Jeff...
Interesting. I wasn't aware of that, thanks for posting your research. I guess you could try a more traditional trimix with papaverine, PGE1 and phentolamine to see if that gives you more consistent...
Chlorpromazine? Are you sure about that? I didn't know what that was so looked it up and it's an anti psychotic! If you're injecting that into your dick, it's no surprise you're getting strange...
Yeah, that's why I suggest skipping the injector and try it manually with only the syringe. That way you can control the needle exactly and only inject the meds when you know it's fully inserted. Jeff...
Must be quadmix as it is the only one containing atropine, I think. My guess is the failures are due to not getting the medication fully injected into the cavernosum. Do you alternate sides for the...
Hi dotcom, I second Jim's reco of franktalk.org. There is even a subforum for injections. You didn't mention what you are using, but I assume trimix. Have you refilled your prescription or are you...
Hi Crazy, If I recall correctly, your husband is getting the MRI at Duke, correct? Duke uses MRI-guided biopsy technology which utilizes the MRI images to guide the biopsy if it's needed. If the MRI...
Richard, Great news about the good pathology report post-op. I didn’t have your particular issue with drainage, but I did have a hematoma at my largest incision site. I was worried about it and asked...
Great news! Congrats!...
Just had the 3 month follow-up visit with my URO and first PSA test after surgery is 0.02 ng/ml. High fives all around the exam room haha. The wife and I are celebrating with a little mini vacay this...
Thanks for all the replies. I sent my doc a message on MyChart asking why the standard test vs ultrasensitive. I love the fact that he replies to my messages within a few hours. His response: "For...
Ah, ok. Thanks for clarifying. Maybe we should add that one to the abbreviation list :-). I've been using Trimix for about a month. It works great for me. Still looking forward to hopefully achieving...
So I go tomorrow for my first post-op PSA test. My doctor has already indicated that he intends to do a regular PSA not an ultrasensitive. I haven't yet asked him why, but I suspect he is in the camp...
Sounds like a great plan, Saipan. You're fortunate to have a care team that you like and trust and works hard for you - means a lot. I wish you all the best going forward. What is ICI? I checked the...
OK, I give up. I'm done......
Ah, ok. Yeah, I'm not familiar with those, but I did check out the URLS you provided. The second test has to be sent to a lab and has a 3 week turnaround time. I don't see any reason to do this since...
What kind of indicator are you looking for in a home urinalysis kit? If you're looking for it to provide an indicator for prostate cancer, then you would be wasting your time and money. Go get the...
Thanks Jim. The moderators' decision seems very fair. That being said, I'll answer the first question. No, the doctor cannot feel the entire prostate during a DRE, only the portion that is adjacent...
Yes, it's typically a very slow process and usually not noticeable until later in life, if at all. Even then, the most common symptom is only a weaker urine stream. So, if I understand correctly,...
You didn't say who did your urinalysis but, if you haven't already, I suggest you make an appointment with a Urologist, who specializes in urinary tract disorders, for a thorough workup and exam. He...
Winglets, how long has this been going on? Have you started or stopped any medications recently? It's not very common for guys, but have you been tested for a UTI?...
Sorry about your diagnosis, but welcome to the group. I can't really add any advice beyond what has already been given, but you're right, this place is a gold mine for the newly diagnosed. I only...
I know this is a stressful period for both you and your husband, but it sounds like are now on a path to get some answers. The MRI should reveal if there are any suspicious areas that would warrant a...
I've been at WakeMed Urology since my PSA was first flagged by my GP in Dec, 2016. They have treated me very well....
Which URO are you guys seeing at Duke? I got a second opinion from Polascik after my initial diagnosis and let's just say I was less than impressed....
I also live in Cary - small world. Jeff...
Good info, Peter. I would just add some additional info on which Sudafed to buy as I was initially confused when I first started using trimix and bought the wrong one. There are 2 versions of...
I’m very surprised that your URO started you on 40 units of that formula. My formula is about half the strength of yours and I’m taking half the volume and still getting good results. No wonder you...
Since trimix is a compounded drug, there is no universally standard mixture. It varies somewhat from pharmacy to pharmacy. As the name implies, trimix is a formulation of 3 different drugs:...
Good to hear things are improving. That’s not at all unusual. It was at least 2 months maybe longer before I felt like I was peeing normally. I would have good days when I felt normal and the next...
My uro started me on 40mg generic sildenafil daily about a month after my surgery. This is mostly to help with blood flow. Unless you are one of the very, very lucky few you won’t be able to achieve...
Good luck on your recovery. Sounds like you’re on track. I had the same issue with pain at night for a couple weeks after the catheter was out. After I emptied my bladder the pain was gone. It could...
Great news on your PSA test. I have my first post-op test on 6-Feb. Hoping for good results as well. Sorry to hear about your girlfriend. Cancer sucks!...
Most AS protocols as far as I know generally call for Gleason 6 and PSA < 10. Nobody can say with any certainty what will happen in 10 years, but the biggest risk in waiting is that the cancer will...
Bugs me too and I’m a Capricorn lol...
I think you misread the original post ravineman. The OP is 2 *months* post-op and has been pumping for 2 weeks. Jeff...
I started Trimix injections about 2 months after my surgery so I’d say you’re in the ballpark. I’ve done 3 injections so far and they’re working great. For some it’s a trial and error process to get...
Great news about your PSA and pathology report pgpb. My URO waits 3 months for the first PSA test so mine is not for a few more weeks. Sounds like you’re on track toward continence. Just keep walking...
I believe him. I was walking over 3 miles a day about 2 weeks after my surgery. Good for him for staying active. I firmly believe it helped with my recovery to continence and overall recovery. Jeff...
Hi 12/21, I have seen a few sites dedicated to wives. This one seems to come up most: http://www.hisprostatecancer.com . Here's another one: http://www.yananow.org/ProstateCancerWomen.shtml . I never...
I agree with pratoman. My surgery was a week before yours and while I’m back to doing most activities, I don’t think I would try anything extremely strenuous for another couple months at least. Jeff...
LOL, as you can see from our sigs, Saipan and I have both been where you are recently. Stay positive and active, things will get better. If you have any questions along the way, just ask. There are...
Sounds pretty typical for less than 3 weeks post-op. You have a lot of healing to do and it just takes time, months actually before things are fully healed. Keep kegeling and stay as active as you...
Glad your recovery is going well, Leonard. As tennisplayer said, it takes 6-8 weeks for things to fully heal and you'll feel good as new. I'm a little over 2 months post-op and just now feel close to...
Great news, Ricky! I'm hoping to join that club in February when I have my first post-RALP PSA test....
I’ve been on Lipitor for about 5 years. Before starting the statin, my total cholesterol was around 250 and LDL was high and HDL was low. My mom and grandfather both had high cholesterol so I have...
That’s great news, oldbeek! Merry Christmas!...
Thanks everyone for the input. Sounds like it’s a fairly long term thing but I think I’ll take a break for a few days and see what happens. Jeff...
Hi all, Merry Christmas! I had RP 8 weeks ago and have been continent since about a week after removal of the catheter. I started doing kegels 6 weeks before my surgery and been doing them ever since...