Sorry. I just noticed you’ve started a new thread already....
Suggest you start a new thread that states you are looking for doctors in St Louis. You might get more replies with recommendations. Best to you in your search for good care. As many in this group...
Keep reading; learning about the disease from people here. You will get good advice. Don't hesitate to let the group know the city, state where you are seeking treatment. You will get recommendations...
No, I don't think the RO would report him - but he did tell his colleagues about it so who knows? I could write a letter to the Chair of Radiation Oncology (since we "met" in the elevator) expressing...
Tall Allen - your comments this week sent us on the right path to look for a RO. I'm grateful. We received a message from the URO's nurse yesterday (while were meeting with RO) that hubby's PSA had...
Interesting debate about how much treatment and how much info is too much. My hubby won't research his disease. He relies on me to do it and filter it and explain it in language he can understand and...
Thanks for all the great comments. It's been a stressful couple of weeks for sure. We will celebrate tonight at a Fund Raiser trivia contest. (If there are Qs about nadir, BCR, Axumin scan we'll...
Good news! I posted earlier this week that my husband's PSA had increased slightly from .2 to .4 in three months and Urologist at UTSW wanted to start Lupron and ordered PET Scan. (Note: My husband...
So, the link didn't work - but here is the part of his profile that resonated with me. “Many times we see patients who have already been diagnosed, and they are wondering what the next step is,” Dr....
Thanks for the additional information on the post RT PSA levels and recommendation to monitor PSA every three months. If you are interested, read the profile of the RO we will see Thursday. There are...
JNF, Thanks for providing your perspective. Not sure if it really matters, but the PSA bounce actually happened at 60 months (so a little outside the typical window). Decided to schedule an appt with...
Thank you for your response. Your perspective about the Urologist rings true. He was shocked my husband didn’t want the RP. His RO At UTSW WAS DR Pistenmaa, who has retired. I’m going to see about...
Five years after Radiation, by husband's PSA increased from .23 to .4. His urologist is very concerned because PSA has doubled in three months. At first, we thought the Urologist was over-recting,...
Thank you for quick reply. His radiation treatment was the primary treatment. He had Lupron prior to starting the RT. I will start a new thread at your suggestion. I don't have all the gleason info,...
Interested in following this thread. My husband's PSA is at .4 and he's scheduled for AXUMIN PET at UTSW next week. His PSA doubled from .23 to .4 in three months and Urologist was ready to start...