I'm very fortunate to be alive after a bout of Gleason 8&9 Prostate Cancer in all 12 biopsy cores and extensive local spread in all directions including lymph nodes. Due to the seriousness of my...
Thanks everyone for taking the time to reply. I'm 63 years young and working on my first 100! LOL The information you have provided is first class. I have an excellent urologist that I have been...
Hello all, Long time since my last post and I have a question for everyone. After hree years of undetectable PSA, my last six month test came back .1. I had Gleason nine in 11 of 12 cores, 80%, and...
Thanks guys for the responses. I appreciate the time you have taken in responding and agree with a lot you have said. Bob...
Hello Everyone, I have advanced prostate cancer that is Gleason nine and some pelvic area lymph node mets. Based on this, I have had my prostate removed, gone through 40 local radiation treatments...
I agree with everything Andrew mentions above and want to especially reiterate that the reason most doctors do not give percentages regarding mortality or duration is that no one knows. Although the...
Thanks everyone for your helpful suggestions! I'm going to pursue some of your suggestions. Best of luck to everyone. This is a wonderful forum. Good information! Bob...
Slight correction in my earlier post, it is just a little over a year since my last Lupron shot rather than a year and a half. Bob...
Hello Everyone, It has been about a year and a half since my last Lupron shot and I'm still very fatigued most of the time regardless of how much sleep I get. Any ideas on what may be causing the...
David, Fantastic, you deserve a lot of praise for your good attitude. Keep it up and keep us informed. Fellow '9'er. Bob...
Dear AJ, I too had rising PSA after surgery. Had localized radiation treatments. (forty in all) and two years of ADT. Good news is PSA went to undetectable and hope it does for you as well. I was...
Like your good sense of humor Cyclone, 'Food for Thought' LOL Also appreciate your idea about 'drinking calories'. Excellent point. Thanks again for the good information everyone! Bob...
Thanks again everyone for the helpful replies. Lots of good info and you are motivating me! Bob...
Hello Everyone, Thank you everyone for taking the time to give me and others some feedback and good information. I like the idea of not eating outside set hours. These seems to make some sense. Often...
Thanks everyone for the quick responses. I did not mention the positive news, the Lupron did it's job beautifully and my psa has been non-detectable so far. The weight's a disappointment, but not...
Hello everyone, Quick question. What is the best way to get my weight back down after Lupron treatments stop? It has been one year since my last Lupron shot and I'm still 23 pounds heavier than when...
Thanks Tall Allen. You really help a lot of people with your knowledge. My first six month post Lupron treatment PSA blood draw will be in June. Hope all is going well with you as well. Bob...
Hello Everyone, I have had been very blessed during my two year stint of Lupron shots in that my PSA went to non-detectable. As one can see from my signature data, I have aggressive prostate cancer....
Thanks for mentioning my post not including my signature. I have edited it and now it's there. The history really helps everyone respond. Thanks again for mentioning this Pratoman! The CT is next...
Hello Everyone, A week ago, I noticed excessive amounts of blood in my urine. I mean large amounts almost like it was pure blood with lots and lots of what looks like large blood clots in it. No pain...
I do not think it means a thing. Some people are big fans of MDA, but I think there are equally good doctors and treatments elsewhere. Let your heart and first impressions lead you. It's what you...
Subdennis, Lack of control will be uncomfortable at first. Have lots of pads and do not hesitate to use them. The kegel exercises help, but don't strain too hard while healing. Getting control back...
That seems high, but your Doctor knows more than I. Right now, I would go with the testing program he is recommending. Good luck! Bob...
I don't know what answer to give you regarding the frequency of exercise, but I do have a suggestion that will help you regain continence. When you start to try to control your flow, do it in the...
Hello Everyone. Thank you for your kind responses. You do not know how important each and every one of your emails are to me. I will pursue some of your suggestions to reduce the amount of fatigue I...
Hello Guys, I'm coming up on my fourth and last Lupron shot. (at eighteen months now). The Lupron is working in that PSA has been taken to zero, which is fantastic! However, the worst side-effect has...
Tall Allen's is an asset to this Forum. He really knows his business and does so much good via his reading and participation. Tall Allen offered me advice a year ago which was right-on. He's a star...
Dear 60th, I know it has been quite a shock to receive the news you and your family have received, but rest assured that there are many men like you standing with you. It is obvious you have a strong...
Hey Nick, You have a good attitude and that's 80% of it. Keep it up! Here are a few tips and some experiences from my operation. There actually was no pain involved in my operation. I do not know if...
Thanks everyone for taking the time to reply. Your responses help me realize that the side-effects I'm feeling are nothing unusual and seem quite common. As everyone says, the side-effects are better...
Hello Friends, Quick question. I'm coming up on my last Lupron shot at 18months to cap out 24 months of hormone treatments. Are the side-effects of Lupron cumulative, i.e. do the side-effects get...
Wow, you are motivated to get active which is wonderful. Good spirit! However, please, please be careful right after the operation and do what your body tells you. If you feel pressure or pain in the...
Open Message to all you Guys, Thank you for taking the time to provide me with some information on what your recovery time was after getting off Lupron and also whether PSA normally rises after...
Mr. Bill, Regarding your question about how long it took for the Lupron side-effects to kick in; it took about a week before I started having hot-flashes where I would start sweating profusely for...
Dear Peter and Max, Thank you both for your informative responses and best wishes to both of you. Also, thanks Peter for deleting the duplicate post. I am fortunate that the Lupron is doing its...
Hello Everyone, It's been a long time since my last post, but I have two questions for you guys, especially you Gleason Nine guys like me. I have been on Lupron, aka 'hormone therapy' or 'ADT' for...
Thanks everyone for taking the time to reply. You have all given me a lot of information and I wish all of you the best. The hip and shin discomfort is so minimal and PSA has dropped so low, I'm...
Hello Members, Have any of you heard of prostate cancer spreading even though the PSA score was low during ADT? The reason for the question is that I have very aggressive cancer that has already...
Thanks John_TX for the info and especially the names of the two drugs. I will mention the drugs to my doctor when I see him next time if the hot flashes continue. I have to believe that getting up...
Thanks Redwing for your advice and congrats on getting through three years! Way to go. Also thanks everyone who responded. The information has been extremely helpful. Everyone is advising at least...
Jpen44, Fatigue is the most onerous. I'm tired all the time, even after sleeping. Previously, I had so much energy, few people could keep up with me. Increased urination frequency and hot flashes,...
Thanks for clarifying this Allen and offering suggestions. You have a lot of knowledge in this area. As much as I study, it challenging. I will continue following my doctor's recommendation for 24...
Allen, Thank you for you thoughtful reply. You are correct, I have found only one study to date indicating that six months of adjuvant ADT is as effective as two years. Here is the link to summary of...
Yes, Mike, I just completed salvage radiation. I need to update my signature to include this. The radiation went very well with very little side-effects. Thanks for asking. Bob...
Hi Everyone, One clarification, I rechecked my appointment schedule and my specialist has scheduled me for a PSA test every three months rather than the six month interval stated in my email above....
Hello Everyone, As a Gleason nine, margins positive, seminal vessel invasion, and metastasis of the local lymph nodes prostate cancer survivor, I have a question. Some studies claim that six months...
Dear Bob and Mal, Thank you for your kind and informative answers. Bob...
I have localized advanced prostate cancer, Gleason 9 with lymph node metastasis. I had a clean bone and CT scan one year ago, and then again three months ago, but am experiencing a mild ache in my...
Thanks everyone for offering your help in this decision. It's very encouraging to have others offer some assistance. I wish the best to all of you and have a Merry Christmas. I'll get another PSA...
Allen, You invested a lot of time into your response and for that, I am deeply grateful. I will read the studies you reference. It's a tough call on what to do. Thanks again. Bob...