Thanks so much. I have just always felt responsible for the mess that was Dan’s Eligard tx....
Thank you. Appreciate your knowledge. We are a little freaked....
Thanks, Jack. He will be scanned tomorrow. He is being followed at UAMS by a radiation oncologist and a urology oncologist in the cancer center. This is not the greatest time to have cancer. The...
I know you guys hate me but I need help. Danny has been having what we thought was gallbladder pain. He had an ultrasound and he has two 2.5 lesions on his liver. He had a psa drawn last week that...
Please stay....
Beautiful. Please do not leave....
TA, If you are going to give your take on our story. Dan is unfavorable risk intermediate. You have an article from August of 2016 that states adt + ebrt + hdr in a study helped unfavorable risk...
I am not the prescribing physician. Dan was told by his uro and ro in Arkansas that he needed long term HT. The uro here in Atlanta said 6 months HT. Citing the pirads 5, Overlying gross epe and...
Tall Allen, Both the urologist and Ro we saw in Little Rock recommended HT. The surgeon also recommended surgery and told us Dan would need salvage radiation. Dr. McCord told us that he would have...
Stan, are you walking- treadmill, neighborhood, even around the house? Just thinking that might help with the gas and your depression. This is going to get better. Kit...
Dr. McCord sent us to a urologist- Dr. Ellis. Ellis said “doing it by the book” Dan should have 6 months of adt. I asked for eligard because of some things I had read here? Ellis had Dan take two...
Jack, thanks so much for your help! Carolyn is so kind. Tall Allen, Dr. Mark McCord Northside Hospital, Radiation Oncology ar Preston Ridge, Alpharetta, ga. Dr. McCord and his team are wonderful....
Dan had his second HDR brachy today. We are now done with treatment and can go home. Because there has been some “trash talking” of brachy here lately I am going to relate Dan’s experience. He was...
Jack, That would be great. Dan has last EBRT on Monday and HDR Thursday. Kit...
Dan does not take any meds. He does take a handful of supplements. We were adjusting to the 33/1 plan. Disappointed but did not want dan to die during HDR. Monday evening dan’s heart rate was 70. For...
just read common when first starting isc and with men who have had prostate cancer. What Saipan said- plenty of lube and call md if continues. This is going to get better. Hope you get some rest...
Michael, are you in Atlanta? I am not sure why/when they discontinued spinals. Dr. McCord did say a spinal would really lower Dan’s heart rate. Dan was on amlodipine for 10+ years. He was on a really...
Hi Jack, They don’t do spinals anymore at the clinic. We kind of begged for that today. I just had it in my brain that Dan needed two HDR Brachy. We will deal with whatever. Carolyn is so kind!...
Steve, Congratulations and thanks!...
Thanks, Andrew. I really do appreciate your responses. I think if we were at home I would not be so crazy. Kit...
We are here for another two weeks. At least. We would love to see you. Kit...
I will get the anesthesia records tomorrow and take them to cardiologist. Dan has resting heart rate of 52-60. Normal sinus rythm I think they gave him Propofol for catheter placement, radiation and...
I am sorry I have a messed up “signature”. I think some of it is there. Pca3 65% chance gleason 7or> Had mri before biopsy. Epe and pirads 5. Biopsy with mri- sent to NYU Langone: Pi-rads assessment...
I am sorry to bother you guys. I just want Dan to live....
I trust our RO. I did not mean to imply otherwise. Realize, that we are trying to process this. I think our RO is on the fence about this. He was on the fence about adt. When he sent us to the uro...
We saw RO this morning. He really wants us to not have the second HDR. Dan’s heart rate dropped to 38 during last weeks HDR. It came back up with a verbal prompt. He was snowed under. We see the...
Our Ro gave us a 14 French catheter in case Dan could not void after HDR. He said he did not want to give us “a garden hose”....
I think you will feel so much better if you self cath We were in the lobby at the ro and a volunteer came to talk to us: her husband has been been doing self cath for 20 years. She said he balked...
Best wishes for your treatment. Dan is just tired/fatigued from the ebrt. He used azo and that seems to help with any urinary issues- otc. The rapaflo 4 mg helped after the first HDR Brachy....
Thanks, Idog. We are in Atlanta-we live in Little Rock. We were talking today about going home, for a couple of weeks and coming back for the second brachy. I wish Stan would tell us what is going...
Dan has had 22/28 EBRT. Started EBRT on 7/17. He had two weeks of casodex and an eligard injection on 8/2. Our RO was on the fence about ADT. When we saw Uro he wanted Dan on 6 months eligard. Dan’s...
Stan, if I said anything to upset you I am so sorry. I think when you cannot sleep everything looks so much worse? Tall Allen told me to try rapaflo for Dan. The flomax immediately gave Dan insomnia...
Stan1961, I am so sorry you are having so many problems. Dan could not take flomax. Have you tried rapaflo? Dan took 4mg rapaflo yesterday after first HDR. No SE at all. He could not sleep with...
Thanks so much. The RN just called from RO. Dan is in a lead lined room,alone, while they give the radiation. The nurse said they had the option of terminating the procedure. Dan remembers her saying...
I am sorry to bother you guys again. I can’t “edit” my signature. When we left Little Rock, we obtained our MR from our uro. The biopsy he had done on Dan- using the MRI had been sent to NYU Langone...
Dan has completed 22 of 28 EBRT. The RO said that adding 5 more EBRT and not having 2nd HDR would offer the same 5 year survival? However, he said the urinary and bowel problems would be worse in the...
We are in Atlanta. We live in Little Rock and have rented a place. The anesthesiologist had atropine ready if Dan coded. Actually, his heart rate dropped when he had his colonoscopy in June. Our hope...
Dan just had his first HDR brachy. His heart rate is always about 50bpm. Heart rate went to 38. We have to see a cardiologist next week. Our RO said he could do 33 ebrt and just this one HDR. We are...
This is Dan. I’m having my first HDR brachy this Thursday. I tried the flomax last night. I woke up with nasal congestion, dry mouth, dizziness, “foggy”. I also use a c-pap. Are there any drugs other...
Found an article that links eligard to “incident diabetes”. The SE of these meds are mind boggling. Eligard and firmagon both are thought to mess with insulin receptors. Sorry to ask again but do you...
When you say sugar spikes are you checking his blood glucose at home? How old is your dad? The glucose, frequent urination and vision problems are all symptoms of diabetes. I am sure you know that...
Hi Kitty, A couple of exercises your husband can do post-op-in addition to Kegel: Do these with legs flat on bed or straight out in recliner. 1. Calf pumping- point your toes forward and then back...
Kitty, I am a retired RN. After the surgery if I can help in any way email me? One of my sisters lives in Longmont. She could help. Her husband had penile cancer and had his surgery at the VA in...
I wish you could see a radiation oncologist? When my husband was diagnosed I came here thinking surgery was the only option. Dan started radiation last week. Prayers for you and your husband. He is...
CaliJR- thanks for the heads up. I do not know if they are targeting his lymph nodes? I will ask on Monday. The MRI showed no lymph node involvement but I don’t know how much an MRI can actually...
RX for Zofran. Dr. McCord said “rare but happens”. Dan and I have been together for 42 years and he has never had any gut issues. Thanks for telling us to tell md- nice to have it if he needs it....
Dan is having treatment in Atlanta. Thank you, Jack! We will be here for two months. Ebrt with two hdr brachy. Dan had his second ebrt treatment and he is nauseated. Was not expecting this. We joined...
Thanks so much, you guys. JNF, could you send me the Atlanta contact information? Thanks again....
We found out today that our current insurance allows us to go out of state. We thought we had to wait two months when Medicare kicks in. We saw our surgeon on Thursday and he was not prepared to talk...
I want to believe this is a massive misunderstanding. We had a two minute phone conversation with our uro when he told us about the path report. We said then “we want this out”. He does not realize...