450 mg is a very high dose I rarely see it usually sleep disturbance, agitation can occur at that dose....
Thanks And how are you doing alephnull? Im still learning about Eligard...
Thanks All He just got good news, Undetectable. Therefore, is it safe to assume that it s in remission now since he has not had a Lupron shot in 10 mo. ? I m still not clear if the system is cleared...
Thanks guys for the replys and support. I 'm on my own navigating the treatment questions/concerns because he refuses to discuss it and I have to accept that is just how he copes. It s called burying...
Hello All. I have a Question reg lupron . My husband is a G9 and we were told very convincingly after his Davinci 2 yrs ago in August 2017 that the absolute only possible treatment is HT and that...
What an amazing and beautiful message of peace. Thank you Your post is what I needed today. All the best...
Hi Guys, chiming in here because we are talking AUS as well. He wears "diapers" and 6-8 pads/day. He did not feel that PT was worth the time since it s almost 2 yrs since RALP. Ill be anxious to hear...
Chiming in here because my husband, G9, was also adamant about "getting it Out" ! He refused to get a 2 nd opinion or listen to reason being a bullheaded 100% Irishman (no offense anyone) Recovery...
Here s wishing you all the best. This is a wonderful support with loads of knowledge. Warmly, JKO...
I m so sorry. I can t imagine how sad it is and it is something i dread regularly. the anger is directly related to grief and sadness and it needs to be expressed not suppressed. therefore, it s a...
Prayers for the best decision for you , I can t agree more that Lupron sucks! it s just so hard to see my formerly very strong husband get weaker, and now he s freezing all the time and has boobs. He...
Good Day All and a very Happy Memorial Wkd , We are coming up on our 18 mo of Lupron and wondering if anyone can offer thoughts on taking a break from Lupron. We go to Roswell, our MD left the Cancer...
Awesome!!! Wishing you all the happiness and T in your future ....
What an inspiration, and just what i needed to hear for my husband's G9. I m always searching for the positives to hang my hat on and today it is you. Many many more years of continued success I wish...
I m so sorry for the loss of a beautiful soul in your lives. And talk about a lesson! wow! live in the moment great job sharing that Best JKO...
hoping and praying for the best news Lady J! you have tons of knowledge and support from the fellas here on HW. Best, JKO...
My husband has been on Eligard for 1 yr and the stiffness in the joints , muscle fatique and soreness has been the biggest side effect so far. However, I can t imagine what the PSA would be without...
Good Day All, We are coming up on the first anniversary since the Prostectomy , and still so many unanswered questions. Obviously, that is expected I understand but our surgeon is still our MD, and...
What a relief to get the Cath out!!! Hoping betw the Lupron and RT that you are good to go Best JKO...
Many healing thoughts coming from Buffalo NY! We, my husband, went through it all last summer and it is different for everyone like childbirth. I truly hope he ll breeze right through with a great...
Sorry to hear this and most of us understand how you feel. You are in the right place for support, education, experiences. Wishing you the Best...
God Bless you and your family in this extremely difficult time wishing all of you peace...
thinking of your Dad LMD I know how much I love mine too best wishes to you hope is eternal...
Good Morning Bob, we too are in the exact same boat as you are G9, aggressive, pos pathology report post op yada yada Lupron etc and wondering exactly the same thing ! I just wanted to reach out and...
Mike tough news we heard similar and G 9 etc. You will get great help support encouraging words suggestions on this forum. Seriously a wealth of knowledge when you feel scared lost and confused....
totally agree Rob 100% the waiting is def tough! the unknown we have very similar pathology RP was the day before yours too at Roswell on 8/23/17 Park in Buffalo NY our Dx and Bx. was also in June...
I could nt agree more with Gary praying for your battle and your wives too geeez thankyou guys I m hearing that waiting for the bladder situation to heal is the way to go I keep telling myself to...
Hi guys, we ll join "the club" started the Lupron 2 wks ago met with RO a month ago heres a Q He said he has no plans of starting RT until continence gets better and I m anxious to get going on it...
Thanks Naples for your response I hope it works for all of you he s 58 yo and we are still trying to process it all the sexual stuff seemed to go out the window with the RP and taking his SV out some...
Everton thanks for your response im sorry for all your suffering with Lupron and hope the Gaba is helping my son takes it for anxiety and it has been the best medication he ever had now im guessing...
Venlafexine and Gabapentin are on the top of my list of med requests should these SE occur I will def make sure he gets them if needed this disease is a nitemare from day 1 I know everyone agrees! we...
I appreciate the feedback so I know what might be coming wishing everyone the best and hope and pray for nondetectables...
So sorry to hear this you are in my thoughts my brother in law had amazing success with radiation for mets to the brain Best of luck to you and your family...
Hi John , it s only been 1 1/2 wk since Lupron and no SE's so far what Ive read it can take a while though he has suffered so much with the RP had the catheter a month hopefully, he ll get lucky...
Please add me to the list that no one wants to be on I appreciate all the info support and help coping with Pca thankyou so much...
Thanks for all the support and sharing it helps to be prepared PSA at 12 wks Post op was 4.8. I don't even know where the cancer is. Most likely lymph grateful for the clean bone scan. Blessings to...
Thankyou Beth i ll look back again on the past threads i always get overwhelmed , distracted and then my head hurts I m sure you can relate i thrive on positivity but i d be lying if i did nt say i'm...
good to know Thanks he may continue feeling good for a while...
thanks for the feedback. it has nt been a wk yet since the injection so far, he feels great and I wanted to be prepared. He is not interested in knowing much, it s just his way of coping to not be...
Hello All G9 bunch, first lupron shot Fri, 11/24. wondering how long before side effects may begin I realize everyone is different. but a week 2 weeks ? Also, when should the PSA go down. ? The PSA...
Awesome PSA post op. Horaaaaay. 👋👊👍. So very happy for your positive outcome. Many more blessings to you...
Thanks for your input. He already had a bone scan in July. The PSA post op scared me and in my opinion I thought he should start hormone therapy sooner . He's feeling pretty good physically aside...
Gleason 9 , Lymph + , + margins , seminal vesicles + , thanks I want to get going its aggressive...
My husband just went for first PSA following Davinci on 8/23. It was 4.5 and our MD wanted to start HT that day which was 10/13. Then he decided to first do a bone scan. They didn't even schedule the...
Needed to hear that today. Same situation here. Husband gloom and doom. I'm extremely happy to hear that. Best wishes for continued healing...
Thanks Jack. Good advice. Regards. Janet...
Thanks Peter I appreciate the feedback and willing to try anything pretty much. I tried to get him to go to Roch , even just a day trip , hang out and realize, other guys have the exact same issues....
good Morn, I m curious if anyone has positive effects from herbal/alternative treatments like say Essiac Tea, elderberry , Probiotics etc It s worth a try a friend of mine swears that "E tea" is...
Thanks nyc lawyer yes I agree the recovery is the most important thing his surgery was 3 mo behind yours good to see your margins, bone scan SV and LN clear !...