Thank you all. I appreciate you taking the time to reply. It helps us know what to expect....
Yikes...still. Is your testosterone not rebounding?...
I don’t even know how I feel about this. My husband is having his first Lupron shot tomorrow. He can’t start his proton therapy until September at the soonest....
For those of you who are or have been on Lupron, how long did it take to start feeling the effects? Hubby is having his first shot tomorrow. He’s been on bicalutamide for about two weeks now and they...
I don’t think so. I think it’s still 22 treatments. They put him on the schedule to start September 8. That might be a loose date placeholder, but at least it’s a date....
Good news and also some conflicting information. David had a call with Dr. Tang’s PA this morning. The good news is that they got proton approved so it will be that instead of regular EBRT. The...
I have a question. In normal times -as in “non world is falling apart covid-19 crisis” what would be the normal timeline of my husbands treatment? Is there a “standard” amount of time they want you...
Our local urologist will administer the injections. We have a previously scheduled appointment with him on Monday and as of now, they are still seeing patients. We are waiting on a call as i type...
His MRI shows ECE/EPE on both sides and NVI on one side and questionable on the other side. I believe that’s the reason for the EBRT. No seminal vehicle or bladder neck invasion though....
We were finally able to connect with the RO via phone this morning. Based on the latest biopsy results and MRI findings, he is recommending 22 rounds of EBRT with SpaceOar, a brachy boost, and 18-24...
Interesting take. I don’t disagree. Hubby replied to the doctor and said he wants to start the medication. He’s begun over the last few months having some urinary issues. He’s concerned that if he...
Below is the message we just received from the surgeon. His initial message indicated they are not allowed to schedule any treatments except for emergencies due to the coronavirus. I’m thinking his...
Thank you. We do plan to have the slides sent to JH. I think I’m more concerned with the possible neurovascular bundle invasion on one side and the extraprostatic/extracapsular extension on both...
We just received David’s biopsy pathology. Of the 15 cores taken, 5 cores are 3+3 and 2 cores are 3+4. A message from the doctor said that basically the whole left side of his prostate is cancerous...
These were the findings on the after biopsy hospital summary. Not pathology...just notes. FINDINGS Findings At Operation: TRUS Estimated Prostate Volume.......42 cc MRI Estimated Prostate...
I got the full copy of hubby’s MRI report. Now we are anxiously waiting for the biopsy results. Hopefully by the end of the week. Study Result Impression Highly suspicious cancer foci noted in the...
Hubby had his fusion biopsy this morning. They took 15 samples...7 targeted from the 3 separate areas of concern and 8 random from other areas. Of the three areas of concern, one was high risk, one...
His MRI report uses both terms which is why I’m asking. For one lesion it says EPE and on the other one it says ECE....
This will be our first time staying there. Are there food options IN the hotel?...
At MDA they have closed all the beverage stations and self service food items. I had to track down a Starbucks to get a cup of coffee and wait in line for about 30 minutes and they had no equal or...
Thank you everyone. These are definitely strange times we’re in. We are about to get on the road and head back to Houston. While I’m very thankful our doc there was able to get the permission to...
I’m very thankful he petitioned to be able to go ahead and do it!...
Hubby had his MRI at MD Anderson on Sunday. It was a 3t but also with an endorectal coil. This morning we were in the car driving to the hospital for his pre-op appt ahead of his biopsy on Thursday...
Right. All three labs graded it and then MDA backed off. I find it quite odd. Dr. Troncoso’s name was not on their original report....
Just received this from MDA. DIAGNOSIS A. LEFT BASE (A): PROSTATIC ADENOCARCINOMA IN PERINEURAL LOCATION, MINUTE MICROSCOPIC FOCUS (0.5 MM). (SEE COMMENT) COMMENT The focus of carcinoma in part A is...
I can’t answer what he meant by that. I didn’t ask. Just stating what he said. But I would assume he was, in part, referring to cost. Again, this was sort of a “what if” meeting. When we got there...
Yes, we need the expertise and the skill of the docs, therefore I’m behaving myself to the best of my ability. My frustration level with MDA is pretty high. I logged into his MyChart account the...
That’s what the RO at MDA told us. That proton is no better than photon from a treatment outcome perspective. He told us he’d do it if we just wanted that extra bit of “flare” and if our insurance...
Like I just said to Djin...he has a MRI and another biopsy coming up in a few weeks. We are totally over these slides. It’s just a matter of curiosity at this point. I’m just trying to understand...
Yes, he has a 3t MRI followed by a fusion guided biopsy in a few weeks at MDA. It will be his first scan. And yes his OncoDX score was 23 - low risk. At this point, the controversy over the slides...
So here’s the breakdown in chronological order. Original pathology by GenPath Slide A 3+3 with perineural invasion Slide F 3+3 Slide J 3+3 Slide K 3+3 Slides sent to MD Anderson ahead of our consult....
I'm semi-guessing, but this sounds like a CYA semi-retraction wrapped in a non-retraction. Djin[/quote] Know what I call it...BS!...
I can say I have zero confidence in the pathologists at MDA. Hubby has MRI and biopsy there in a few weeks and before they even do it, I will have the wheels in motion for the slides to be sent to...
So what the heck does this mean? “ This report has been amended by Dr.Troncoso on 02/25/2020 to change the diagnosis from part A. In the original report a Gleason score of 8 (4+4) was assigned. The...
An update... Sigh. We just received another message from MDA. "We are requesting the slides from the outside institution and will review the case again. Unfortunately, the slides were returned and...
sadly, no, but you can post a link to the image.[/quote] Thank you. 🙂...
I wasn’t aware that JH does 2nd opinions on imaging also....
Yes, there is definitely that possibility as well. As for those percentages above, I don’t really understand it myself although I think my hubby figured it out at one point. The summary section at...
Can we post images on this site?...
We both see a whole lot of merit in doing another biopsy. That was always our plan from day one. It will be six months from first to this one. The first was a random 12 needle TRUS. This one will be...
THIS No, F8, he can be wrong, just like anyone can. Someone else pointed out that with 2 G6 opinions, and with one G8, this is possibly the worst place to be. If he is a real G6, with a good chance...
We are not discouraged from going there, but understandably we don’t have very much confidence in their pathologist, or at least the pathologist who read the slides. I also have an issue in how the...
We received the pathology report from JH this morning which was our third opinion. Great news! They concur with the original diagnosis of G6. In fact, they downgraded one core to atypical cells...
The RO we met with at MDA recommended this treatment for my husband but wants to include HT also. They upgraded him to G8 from the original pathology reading of G6. We had slides sent to JH for a...
We are facing something similar and it’s so frustrating. My husband was originally dx’d back in early October 2019 by random 12 core TRUS biopsy with 4 of 12 positive, all G6. We were planning on AS....
Congratulations on that result but sorry you had to go through the worry!...
I’m a Cajun and my daughter graduated from LSU so obviously Geaux Tigers!...
I wrote to the patient advocate because we were getting nowhere with Dr. Ward’s nurse (the gatekeeper). I expressed our frustration at not having received a response and explained that this was very...
We do have a login, but the pathology report isn’t there anywhere. The patient advocate wrote back and said he would get it uploaded by Monday night....
Update....sort of. More ambiguity. When I spoke to the patient advocate the other day, he said no problem on sending slides to JH. He sent us a release form which we filled out and sent back to him....