Dear all, I wanted to wish you all a very merry Christmas and I hope I am finding you all in good health. With heavy heart and tears in my eyes I wanted to let you know that today it’s 2 months since...
Dear all, I have been occupied with my dad's situation for quite sometime now (extreme tiredness, weakness, low iron and low RBC and Hg, we had to use wheelchair most of the time), and we finally...
Thanks Cyclon for the advice, I always accompany my father at the appointments, I will make a list of all our concerns... we have tried food supplements (even eggs from Japanese quail on daily bases...
Hi Cyclone, Thanks for always taking the positive out of the situation. My dad is extremely tired and weak, and yes the doctors are checking his iron levels. Some weeks ago even though the iron was...
Thanks mattam, I can see we observe this doubling reduction, wasn’t sure what you meant with “Mumbo”. I know Steve has also seen this with the PSA halving between treatments....
Hello, My dad’s treatment is still ongoing he has finished with the third cycle of lu 177 and should be starting the forth on April 20th. His PSA has dropped to 44,3 and will have a PET scan next...
You show so my gratitude towards your wife, it’s admiring. But there are options as I said you can make things work. My dad was diagnosed 17 years ago and with MCRPC from 2011, we have putting off...
My dad was on carboplatin for 5 sessions he tolerated it well we were also at the end of the road until we were offered LU177 now we are very very hopeful. Please look at carboplatine until you can...
Thanks Steve and Cyclone for checking in on us :) Yesterday was my father’s check up two weeks after the second LU 177 infusion. He tolerates it well with minor ups and downs in energy level. The PSA...
Hi to everyone, hope all of you are doing well Yesterday was my dad’s second infusion with 8080 MBq [177Lu]Lu-PSMA -I&T He tolerated it well, he is now home and the blood works are okay the PSA...
It’s so heartwarming to read all of your posts. Just a short history. Diagnosed 2004 July; Salvage radiation in the pelvic area 2005 May; Hormon therapy with injection 3 months from 2005 -2016; PSA...
Just a quick update Two weeks after 1st lu 177 infusion psa went from 216 to today’s reading 160 Next infusion 28th of January it’s a 6 week cycle All the best Bianca...
Dear all Few days ago we started our journey with lu177 PSMA, after a long wait, preceding brain surgery for metastasis in 2020 and two gamma knife surgeries for small dots that appeared, and...
Hi, hope all is well with you My father has had 3 separate chemotherapy treatments 6 cycles each with Jevtana (cabazitaxel) the first time he was on it was a walk in the park why was that I can’t...
Thank you BillyBob Thank you Cyclone, always a pleasure to read your posts. Best to all Bianca...
Is there an edema in the brain? My father had edema and with dexametason the headache subsided substantially - that was even before the surgery. With radiation I know he did not have any headaches...
I’m glad I can make you feel at ease, I know how you must feel! My dad started feeling better just as he stopped chemo which started right after the radiation so I can’t really tell you how it’s...
Thanks Djin We went trough a lot, and I can only be grateful for the chances we have been given to enjoy time with him, the hardships are forgotten looking forward to creating more and more memories...
He had a whole brain radiation in mid of March 10 sessions, his PSA in Jan 2020was 110 today his PSA is 4. Yesterday he went from his apartment in the city with train to airport took a plane and came...
Hi, I’m sorry to read this but you are not alone Last year about this time my father had some symptoms that were puzzling gradually getting more significant i.e. headache, forgetfulness, sometimes he...
Hi everyone, hope you all are staying safe I wanted to give you an update on my dad’s treatment and how we are doing now. As this year is extra challenging for us, brain surgery Jan 2020, radiation...
Hi hope You are doing well I would like to suggest something if I may, even thought ADT shows effect in PSA decrease and I hope and wish it does, please consider my advise. Going trough all we have...
Such great news! All the best Bianca...
Thanks Bill I wish you all the best as well Bianca...
Thanks you Pratoman I wish all the best to you 😊 Thank you Cyclone, enjoy your weekend your replys a re a pleasure to read in this difficult times, I have to find strength to go trough all as my...
Thank you Djin I am wishing that to everyone! Thank care Bianca...
Hello everyone, hope you are all doing well! I wanted to give a little update on my father’s therapy and how things are going. Diagnosed with lung metastasis in 2014 (3 surgeries) and brain...
Thank you Cyclone appreciate the support and interest Bianca...
My dad has been before trough docataxel (taxatore I believe is called in the US) and has been on cabazitaxel (jevtana in the US) before as well. Cabazitaxel has worked before but not for a long...
Yes, he started with a PSA of 61,2 and just a week after the initial infusion was 55,5, we will know his new PSA on May 12th the day he has a blood check again before the new cycle which is on the...
Thanks, I’ll check your suggestion. I hope we all goes well Bianca...
Thank you Cyclone, this is currently quite a ride, I am not with my father due to travel restrictions and have no way of visiting him, its least to say frustrating, but I cant do anything about it....
Thanks Djin, I was just thinking out loud being puzzled with this and maybe a bit disappointed that all scans and he has scans 3 times a year for the past 6 years latest before diagnosis was mid...
Thanks Djin it shows from your article that it should help. The issue for which I am asking this is that my dad had a brain surgery with resection of a big mass 6cm by 6,2cm which means it has been...
Hello everyone, Hoping everyone is staying safe. I have a question, has anyone come across any research and treatment protocols that incorporate lung and brain metastasis. My father diagnosed 2004...
Thank you Mattam for the kind words and encouragement 😊 I wish I have at least a portion of the strength, endurance and the personality that my father has, he is the person that I have always looked...
UPDATE Hi to all again after almost a year :) My father is doing good now :), we went trough a very difficult period since his surgery end of September 2018, but we are good right now and I wanted to...
I am researching Lutetium 177 PSMA and availability in Austria and will talk to my father to see further possibilities. I have also checked out that other forum mentioned above and read about the...
His doctor together with the surgeon decided that it’s best to have surgery, and they have scheduled it for 26/09 two weeks from now...
His last Pet scan was actually PSMAT SCAN specific scan for prostate cancer PET scans...
Thank you all, I will let you know later today what the assessment is and what will be decided....
We don’t know yet what the possibilities are we wait for tomorrow’s toracal surgeons to make their assessment and then we meet again with our urological oncologist for his input I was just hoping to...
He was referred to toracal surgery for assessment but we would not know what the decision would be from those doctors...
Diagnosis July 2004 prostatectomy + radiation He is on 3 months shots I believe eligard And so far he has had (I am not exact with the dates but it is raughly that period) Salvage radiation May 2005...
He is being treated in Vienna Austria...
Hi hope everyone is doing well I have a question regarding my father, his newest pet scan shows spots referred to as metastasis in his right lung lobe. Anyone with experience and info on further...
Thanks Allan we are so happy with the outcome but I believe our doctor is even happier, he was thrilled!...
Hi to all 😊 I haven't been writing regarding the development of my father's treatment, but today we have some great news to share. He was done with radiation to the pelvic bone fue to 3cm metastatic...
Hi Allen, thanks again I have been reading, and from what I have found I understand as you have explained that with the abscopal effect distant unknown micrometastasis may be killd by triggering the...
Thank you Allen again for those details. We are from Europe and provange is not available to us, we have confidence in our doctor. I have read the benefits of immunotherapy however I don't see in the...