My profile is very close to yours. Gleason 8, cribriform, pni and low PSA. I had numerous consultations. One recommended cyberknife. Several recommended against cyberknife. Honestly, some of that...
I had HDR on Wednesday Feb 16 by Dr Alvaro Martinez in Michigan. Taking .4 mg flomax daily, but no urinary problems other than a slight burning initially that has started to subside. Also some blood...
Depending on the doctor, it's probably less than a month after the initial consultation. But mine has been a long and frustrating journey. I decided on the treatment the week before Thanksgiving. It...
My experience is somewhat similar. I have Gleason 8, pni, and cribriform morphology. Realizing that brachy + Ebrt + ADT was my best option, I started my consultations. JH radiation oncologist did not...
Since the test results were not available until Friday night, I don’t think the MO has seen the results. He is generally quick to respond. But it might be Monday given the timeline....
Thanks Jack. For completeness, the PSA was 4.8 on the day of injection. It was 4.3 in October....
Cyclone, My MO tracked both. The testosterone was <3. But PSA increased. Not sure if I can draw a conclusion that cancer is castrate resistant after 1 month?...
After 1 month: My liver enzymes were fine. Bilirubin was high at 1.7. Kidney filter was on the low side at 59. Testosterone went to <3. Biggest concern is that PSA went from 4.8 to 5.1. Did anyone...
Vynbal and Jack64 Thanks for the insight. In answering your question, I have decided on radiation, but the type of radiation is still up in the air and it gets complicated. I’d like hdr + Ebrt. The...
I started Adt December 10 with a shot of firmagon and started zytiga on December 12. PSA in December measured 4.8, testosterone was 408. My second dose of firmagon is scheduled for this Friday,...
Didn’t think about dr kriteman. The test is really an RO test, but I will check Tuesday to see if they know a place that performs it. Dr Martinez office is working with Emory as a possibility. I give...
Update: The bcbs dispute with Northside hospital in Atlanta has not been resolved and my request for a continuance of care still has no response. Thus, Dr McCord says he can’t treat me. I had a Zoom...
Started zytiga and firmagon on December 10. So far, side effects have been slightly elevated blood pressure and I’m feeling a little cloudy. I can tell from daily exercise that keeping muscle is...
Thanks Jack. Emory was the group that would not recommend HDR due to the lone. Dr McCord is comfortable with it. Did you ever locate Dr Levitt?...
I have seen 2 HDR specialists in Atlanta. One indicated that he would not recommend HDR for me because I have a median lobe that extends to the bladder. The other noticed this, but still is...
Thank you for your posts on my topic. I am very happy the surgery went so well and wish you and your husband only the best in the recovery. Haven't made my decision regarding surgery versus...
JNF I just sent you an email. Let me know if you did not receive it....
Also, I have been gathering this information over the past 2 1/2 weeks. I know that I will need to decide a treatment plan within the next few weeks. with treatment execution beginning this calendar...
[quote="Fauntleroy"]“prominent median node that is near the bladder” I meant to type prominent median lobe. I think it means that I have a part of the prostate that extends more toward the bladder....
Thanks to all for your responses. All are quite helpful to me in navigating this journey. A few of you wanted additional information. PSA level was 2.7 in Sept 2020; increased to 4.3 in Sept 2021 I...
A friend told me about this forum and how much it has helped him through his PC journey. I was recently diagnosed with PC via biopsy with 4 Gleason 8 tissue samples out of 13. I am 60, in otherwise...