you win went in check me out and ordered a cardiolyte stress test. Hospital is refusing it though due to my wife's incredibly high bill. (She receives IVIG infusion monthly for her termial disease to...
I have a history of lung/heart problems. I frequently go into a-fib. Last time was 6 days ago when i had a cardioversion. Yesterday during a period of extreme extreme stress, I experienced a crushing...
sorry---i used to have an extended signature line--it must have gotten lost since i have been gone so long I am 54 and was a gleason 8-9 with pretty much cancer everywhere in the prostate. And the...
I am approaching 4 years cancer free. The seriousness of the gleason made a radical--non-nerves sparing surgery necessary. I haven't cared as I am the caregiver for a terminally ill spouse. In fact...
If possible I would request 2 blood tests. 1. TPO-ab 2. GAD-65 There is a disease that is very similar to lupus (some rheumys say the are the same thing) that a high TPO-ab is a sign (thyroid...
Another word of hope. Another 6 months have passed---now over 3 1/2 years and still cancer free. There are miracles still for the high gleason boys. Keep your chin up--even if other things don't...
I am not around really at all anymore, but I thought that for those who struggling, that things can go well. My psa was up, my core sample were nearly cancerous and my post surgery gleason was either...
it has been a long time since i have been around. Just wanted you all to know---still all zeros for me even a bad gleason is no reason to give up keep up the hope all...
Some time ago I began posting asking for info on GAD65 antibody numbers in diabetes. Although my wife does not have diabetes at this time her elevated blood sugars indicate the possibility that it...
thanks to all for you quick replies. Emmie after I saw the way you spelled you name, of course I membered that we have conversed on HELPS. You are right. Thanks so much for you continued help. And I...
I was talking to a person from this forum just this morning that told me there are maybe 2 people on this forum that are suffering with Hashimoto's Encephalopathy. I have found many people over the...
Just a word of update Yesterday I got my second post surgery PSA test back. NO PSA found. mayo lab tested down to <0.1 and found nothing. Good news for me, I thought I would share Thanks for the...
Hi Rock A lot of times numbers such as yours are considered 0. This is very normal. First there is a margin of error and secondly there seems to be what I call an "echo" number such as yours which is...
sorry that you find yourself here, but happy that you are. You will find the largest collection of experiences and knowledge here that you can find possibly everywhere. Your decision on treatment is...
Everyone says it. Here is the documented study on the impact of not having an experienced surgeon http://www.cnn.com/2007/HEALTH/conditions/07/24/cancer.prostate.reut/index.html Patients with...
I know that I am one of the lucky few and I do not want to cause anyone any sadness. After only my first post op PSA there is a chance that I have beat this cancer thing. Granted I know that it is...
As requested I will update you on our Grandson. We have some everyday as we are keeping all of the childcare within the family. He is progressing very well. Eating all the time and his movements and...
ginjer--welcome to the site. You will find a great number of people here who care very much and have a lot of knowledge and support. I know it is silly to say this but slow down. What I found was...
several weeks after surgery--I no longer use pads--starting to think about the ED issue as I lost all nerves in the surgery. I have had pain since the surgery--in my side (not at the incision site)....
Glutamic acid decarboxylase is an synthesizing enyzme that works on Gaba (gamma-aminobutyric acid). I do not and will not ever understand how it functions. What I have come to believe is that Gad65...
I am curious if any of you have been tested for the GAD65-antibody. It is evidently elevated in some people with type 2 diabetes. GAD65 is Glutamic Acid Decarboxylase. I have done some reading on it...
Just another quick note 6 weeks out after surgery. I think I have better bladder control now than before the surgery 1st post-op PSA <0.05. Feeling great and very lucky thanks for the support David...
Hi Rick That is really great news. I know that the last few weeks have been hard. You are really lucky. Stay in touch, and stay healthy David...
Just a quick note--small in a lot of ways, but exciting to us. As I used to say this to my son when he was little. I wore my big boy pants today for the first time and it worked.--I will probably...
Thanks for the continued support and thoughts. My recovery continues to progress well. I think the leakage is right on track. Much better than many and not as good as some. I am very happy with it....
As you know from our time chatting, I have had a full plate this last year or two. when I was diagnosed, I did all the research I could, as quickly as possible. I wanted and felt like I needed the...
hawkeye I am not sure if my wife really is worse off than you. Over the last year I have gotten to know people that should make both of us feel blessed. What I have learned is that the effectiveness...
one more thing If you truly have been diagnosed with HE your neurologist must know----you can not under any condition be rapidly removed from prednisone. Most HE patients (those for whom steroids...
i was just directed over here from someone on the prostate cancer forum (I have that). I am surprised to find you--there aren't a lot of HE patients out there. First my wife has HE--appears to have...
call them pads if you want---I don't like diapers david...
Today is Tuesday. I have been amazed at how easy the beginning of recovery has been. Having not really had major surgery before, I assumed I would be nearly totally incapacitated for the first few...
I just got off the phone with my Doc.--amazing man--all the final pathologies came in--lymph clean--prostate capsule was not penetrated--seminal vessels which were removed were clean. The doctor was...
Today is Tuesday--Surgery was last wednesday--I got out of the hospital Friday. I am amazed how easily everything has gone. I expected the surgery to be worse, as well as the pain. Not to say that I...
Thanks for the prayers and support from all of you. I had surgery on Wed morning and got home Friday night. First and most importantly one of the Doctors said he got the lab results and there was a...
Just thought I would let you know. Jesse has been home a few days and with each passing day is more like other babies his age.--It is very exciting. Since I have been there since day one and since I...
thanks for your support for. I thought I would take a minute and update you on my grandson's health. The hospital did a contrast CAT scan because of various fears. The test showed that all the areas...
I have appreciated in my limited time here, those of you who have archived your illness and recovery. I had planned to also do so next week. But as I find myself in a waiting room, I find that I have...
thanks for all of your continued prayers. we were set to go home today--even have the car packed but Children's decided that they need a contrast CT and possible an MRA. They think they have found a...
I am grateful beyond words for all of your support. We are still in Denver at children's hospital. Tomorrow Jesse will have an MRI to determine (or guess) at the level of damage he has suffered. It...
I know I am new--awaiting my surgery--lots of family health problems--some of you know my wife also has Hasimoto's encephalopathy. I posted that my daughter had a baby on the 8th.--unfortunately...
Brachytheraphy takes special training. I know that my doctor was just recently trained and is still being supervised by the doctor from Texas that trained him. I think if I hadn't been so far along,...
Just a little update I have started donating blood and just got the test results back on the bone scan and contrast CT. Both came back good. The CT shows some things but none relating to cancer. That...
Sorry to meet you under these circumstances. But yet this is a good place to be. I don't know what your future holds--but I believe I can say that we are on it together. So what do you say we both...
I too can assure you that you are not alone. In the last few days alone--I have been tremendously supported. one of this boards posters sent me to yananow.net. On that site you have the chance to...
being a newbie --I say thanks for all your work. The last few days have been easier because I am not alone. You deserve a wonderful vacation. You have earned it...
Good luck on the surgery. You are not alone....
John -- Thanks so much for sending me to the yananow website. it really made the rest of my day--seeing all the survivor gives me so much hope --and I really needed it After reading, I finally made...
I know I am really new to this--just a couple of weeks of research--and then the news Gleason 8 (4+4)--8 of 12 samples cancerous--up to 70% PTI--perineural invasion-- I know this is really not good...
I too am from Colo --over in Eagle County-- David new to the group--PSA 5+ 8/12 cancerous --some 70% Gleason: 4+4=8 64% cancerous surgery scheduled May 23rd...
Tuesday I got the call---prostate cancer--Friday I got the numbers--8 on the gleason scale 4+4)--cancer in 8 of 12 samples--up to 70 PTI-- perineural invasion. --the tests were checked by two other...