Hi all, I've posted a few times but not been on for a while. My husband, who was diagnosed over six years ago with gleason 9 and psa of 17, has advanced considerably. His psa is over 650, abiriterone...
Hi Passages Been reading through your post and thought I'd tell you what has and hasn't worked with my husband (he's at a similar stage to yours, I think) After having been on Xtandi for a mere four...
I'm so sorry for the sadness and pain you must all be feeling right now. I'm sure your Dad knows how much he is loved by you, and will be getting strength from your love and support. Sending you love...
I hate to say it too, but my husband's problems started when he first took Xtandi. Yes, he had a problem with calcium from his bone tumours entering his blood stream, but that is now under control,...
And got everything crossed for you today Zimac xx...
Hubby home from hospital after a intravenous dose of bisphosphanates to lower the calcium in his blood. He is still in such a poor way - can't face more than a tiny bowl of cereal for his entire...
Well, being anaemic would certainly cause fatigue Passages. Let's hope your husband picks up when the transfusion kicks in. Good job they've got us making some noise I reckon - like you say - ever...
Oh, and worryingly, psa gone from 250 to 475 in four weeks :0...
Well, it seems his symptoms had nothing to do with the Xtandi - and everything to do with the tumours in his bones throwing out too much calcium. At least he's in hospital (although still waiting for...
It means having too much calcium in the blood. Not sure what they will do - some sort of transfusion I think. They are admitting him into hospital to treat it, so will report back when I know more...
My husband has never been anaemic - however, we just got a call from his GP to say the blood test taken yesterday showed hypercalcaemia - the symptoms of which match what he is going through,...
Thank you Passages. What an awesome bunch you all are! It does seem that Xtandi is a blessing and a curse - we don't even know yet if it's having the desired effect. Will get latest psa results...
Thank you for your responses. I see there is a long thread regarding this drug so will have a good long read after posting this. Rangertug - my husband has the opposite problem with weight and is...
Hi all My husband has been taking enzalutamide for nearly four weeks now. He has had a terrible time, with fatigue, back pain, loss of appetite, weight loss - you name it etc... he is practically...
Hi, thanks for the above. The trial on the link is for people who haven't had chemo, which rules out my husband :( I am looking into a drug called Ketoconazole, which has never been mentioned to us...
Hi all, An update on my husband's experience with Zytiga. A month after his psa rose (after two weeks on the drug) his psa again rose, although this time, by only 6 points. We are pretty gutted,...
Thank you John. We are in the UK so not sure if we can do a phone consultation, but appreciate the response :)...
Morning all Just a little update on my Husband's experience with Aberiterone (Zytiga) After having been on the drug for 15 days, his psa rose from 35 to 47. This is clearly a disappointing result and...
Yes, we were told liver function and blood pressure could be an issue. He is getting both checked regularly. Blood pressure fine so far but haven't had results from blood tests yet. Really hope your...
Ah, that sounds like very good news Carol! I really hope the Zytiga will help shrink his tumours and alleviate the pain. It's great to hear how well your husband is doing - long may it continue :)...
Thanks for the links, and WOW, 70% decrease is amazing! Fingers crossed for similar results :)...
Hello all, have been lurking on and off for a while. Wondered if anyone on here has started with Abiraterone (you may know it as Zytiga) My husband has just started on it this last week as chemo...
Thank you all so much. This has been a great help, to know that there are other options to investigate. Will be researching all treatments mentioned to present to the oncologist at our next meeting...
Great, thanks for that information - good to know there are alternatives available. Just hope they are licensed in the UK too. Interesting about the second line chemotherapy - will do some research...
Hi all, Long time since I posted on here - hope everyone's keeping well. I wanted to ask those who have been battling advanced pc if they have any advice for my husband. Due to recent psa increase...
Hey, thanks for the response Danielle We haven't heard of ketocanazole, we're in the UK so wonder if it's only available in the US. Either way, it would be very much worth mentioning next time we see...
Hi everyone It has been some time since I last visited this site, hope everyone is keeping well. I just wondered if anyone could offer any help or advice with regard to my husband's situation. After...
Hello all, We are in a fair amount of shock after my husband's recent appt with his oncologist. His psa, which was 8.3 two months ago, has shot up to 12.5. He has been told that he will need...
Thank you Don, I will check out the website right away. Just wondered if anyone can tell me why the consultant should decide to stop one of the treatments (Casodex) is it supposed to confuse the...
Thanks Todd, I have sent you an email Julia...
What GREAT news Larry - well done you!! Couldn't be more pleased for you Julia...
I am so sorry that you are having to deal with this. It is every day isn't it? At the back of your mind the whole time. That brief interlude between results, where you can actually focus on something...
Hoping all is good for you Larry, waiting is the hardest part - thank you for your kind wishes, take care Julia...
Oh thank you all for all your advice, practical and emotional. It means so much. I have made notes of all the treatments etc mentioned by everyone and will be sure to check them out. Dale, I am one...
Thank you all for your good thoughts and prayers, they are much appreciated and welcomed by us both. The trial going on in the Uk does sound promising, but I think it is for people who have already...
Hi all, We have been reeling with shock for almost two weeks and so I thought I would reach out to all of you for any advice. My husband went to get the results of his psa test a week last tuesday....
Hi Bounty, My husband's bone scans were not clear - he has multiple bone mets However, you would not know from looking at him that he has cancer at all. Really, since he was diagnosed over 18 months...
But, unbelievably, there are many, many Dale Childress' on facebook Don't know which one to send out a friend request to!...
Hey Tony, I just went onto facebook and typed in your name - there are a fair few Tony/Anthony Crispinos so didn't know which one was you!...
Hello, Thank you both very much for your replies I have looked on Amazon for the book you both recommend but they don't list it. Wondered if you knew where I might be able to get it (I am in the UK...
Hi all, My husband saw his consultant yesterday who told him his psa had gone up from 0.6 to 2.1. A little history - his psa rose last September from 0.7 to 1.6, his consultant then decided to...
That is just the best news - Fantastic does not even cover it!! I am so pleased for you. I know it might sound trite but you will have a great christmas now basking in such good news!! God Bless,...
Hey Walt, I log on often here and am always looking to see how you are doing. Sorry to hear about the bad things that are going on with you, but really pleased to hear your mum is better - also that...
I'm so terribly sorry to hear your sad news. My thoughts and prayers are with you and your family God bless, Julia...
Job done Les /community/emoticons/smile.gif ...
Thanks for that Les, it looks like 1.1 is a good result /community/emoticons/smile.gif ...
Hi all I recently asked for advice on this forum about my husband's rising psa level and one of the suggestions was that he should get his testosterone level checked to see how well the zolodex was...
Thank you both for your responses I wonder why he wasn't prescribed both from the outset? Maybe the doctors were keeping the Casodex for back-up to increase its effectiveness? Would a fall in PSA be...
Great news on your numbers - fantastic start to the weekend!! Cheers, Julia...
Hi all I posted just over a week ago to ask advice on my husband's PSA rise from 0.8 to 1.7. The answer came back that it could be that the cancer has become hormone refractory He has now been...