Thanks Chartreux and Butterflake! Hearing your responses did make me feel a little better. It helps to know that I'm not alone. Sometimes, I just feel crazy. I've had this Undifferentiated Connective...
I was diagnosed with UCTD about 3 years ago. I was treated by a rheumy in Denver on diagnosis but since I have moved back to New Orleans, haven't been treated as the MDs here feel they need more...
Hello everyone.... I'm back! I'm horrible about checking in on this site unless I'm feeling bad. The last rheumy I went to when I moved back to New Orleans was difficult to get in to see so yet again...
Bill, Thanks so much for the info. I feel horrible, though. Not sure how I will get through 6 more weeks of feeling like this before running those tests again. I think in the last 2 weeks there were...
Hey Patty!! I'm glad to hear that yoga is helping you. I was thinking of starting yoga since I had to stop training for the half marathon. I just haven't been able to get motivated these days. Achy...
Let's see...where to begin here? I was frequently on this site about 2 years ago after initial diagnosis looking for answers and support. They diagnosed me as UCTD, put me on prednisone and plaquenil...
Hi everyone! I'm doing well! Still off the prednisone and doing ok. Have been getting a little sick every once in a while for the past couple of weeks because of all the stress of my upcoming move...
Hello! Welcome! I share the diagnosis of UCTD with you. I was diagnosed a year ago. I presented with joint pain, extreme fatigue after a horrible case of shingles a couple of months beforehand. I...
I was told yesterday by my rheumatologist that my TSH was elevated and they were faxing the results to my general practitioner. I got my results faxed to me and it looks like it was 4.69. My question...
Jeanneac, I have been tired since all this stuff started. My hair has been falling out more than usual lately. No low voice and yes to weight gain. I'm waiting on my general practitioner to call me...
So, I went for my last visit with this rheumatologist since I'm moving in a month and a half. First of all, she was going to try me on methotrexate and has now decided not to since I told her I was...
Thanks, Lynnwood! Trying not to stress out. /community/emoticons/smile.gif ...
So, I was just thrilled about getting off of the prednisone the other day. However, just got out the shower and my hair is falling out a ton more than it was and my heart rate while I am sitting here...
oops....wanted to update my med list before I posted that....
So, after a year of being on prednisone (and gaining weight that I didn't need) I have finally gotten off of the prednisone for the time being! We will see how long this lasts, since all the stress...
My main symptoms are very achy joints and extreme fatigue. My only tests that came up positive was my ANA and my CRP (which tests inflammation) so my rheumatologist has given me a diagnosis of UCTD...
Hello! I'm not really one of the people that have been here for a while, but I just started posting last year. Sorry, I haven't been here. I'm still around- lurking usually. Not in as much pain or...
Barb, I agree with Patty. You need support and love wherever you can find it right now. Talking about it on here is necessary for you. Maybe some therapy would be good, too. I think talking about it...
Oh! And moderators I hope it's ok that I posted it under this topic. I thought that I shouldn't create a new one because this is a recent post and it's the same topic. Hopefully, this is ok and if...
So, I have a question regarding this butterfly rash. I have not been doing very well on my meds lately and my rheumy is actually beginning to think about starting Imuran or Methotrexate if I continue...
Hi premed! I am another person "diagnosed" with UCTD. I was diagnosed almost 9 months ago. I presented with generalized joint pain, hair loss and severe fatigue. Nothing came up positive for me...
Thanks Judy! I would appreciate any info from your doc. :-)...
Thanks Babs!...
Hey Judy! Do you have a good rheumy out there? There's a possibility I may be moving back to be closer to my family. My "diagnosis" has told me that maybe I need their support and love closer to me...
Thanks everyone for your responses here! For some reason, I didn't get notified by email that I got them, but I thought I marked the little box. My headaches aren't as frequent now, but they are...
So, I have been thinking about moving back to Louisiana to be closer to my family and have more support through this illness and taking care of my 8 year old little girl. I haven't come up with a...
Patty, You were there for me when I was feeling frustrated and down! And it seems like you are always a positive light in everyone's posts on the site. Hopefully, this support from everyone here and...
Aims, It sounds like some type of vitamin deficiency to me, as well. This is what I found online and I agree with what they're saying from a nursing standpoint. "Deficiency of magnesium causes...
Hey smokeyswife, After you go to the rheumy, will you let me know what he thinks about it? I would appreciate it!...
As of right now, I'm only going to my GP and rheumy. I have a question, though. If they find other things going on or other symptoms will they refer you to a doctor of a different specialty...
Hey aimsgirl, I hope this isn't too personal to ask but are they putting you in medical menopause for something lupus-related? If so, what's going on and what are the MD's thoughts behind it? I'm a...
Thanks for the response Babs! I'm just getting frustrated with appointment after appointment and test after test. It's expensive and it doesn't seem to get me any closer to some kind of definitive...
Thanks sunshine, susan, and aim! Susan, I have not yet been diagnosed. I am still playing the Undifferentiated Connective Tissue Disease game. Where ANA is positive with some other symptoms but no...
I have been doing pretty well, lately. They have been trying to taper my prednisone dose (unsuccessfully)- still at 4mg. They want me completely off of it. Everytime I go below 4mg, I start feeling...
I am so glad that I saw this post! I have been having shortness of breath with exertion that seems to be getting worse and happening with shorter exertion periods. I have a history of asthma but...
So, I called my rheumatologist today and she was off today (of course, the one day I feel terrible- just my luck LOL) Anyway, I spoke to the very nice rheumatologist on call who suggested upping my...
Patty, I've only been on it since May. Started out at 10mg and she has been tapering me since starting me on Plaquenil....
Oh! Sorry....and my previous dosage was 5mg and she lowered me to 2.5 mg. Sorry about the extra reply- realized I didn't answer that question....
Thanks, Lynn! Did this include the lymph node swelling? I think that's what has me worried the most- never expected that....
I've been feeling really well lately. My doctor has lowered my prednisone to 2.5mg daily and wants me to come off it next month. I started the new dose about a week ago. Still on the plaquenil....
Oh! OK. I just assumed when on prednisone, it would be lower. Thanks for the responses!!...
I'm a worrier too! I am the type of person that has to know everything about what's going on with me and take in as much information as I possibly can. I also tend to think the worst when feeling...
I probably should know this but don't.... I went to the doctor last week since I was feeling poorly and she drew some kidney function labs, CBC, and did a urinalysis. I just listened to a message...
This was in another post, but wanted to add it to this post per moderator's request, so it would be located in one place: So....I took the ibuprofen as suggested by the MD last night before I went to...
oops sorry!!!!...
So....I took the ibuprofen as suggested by the MD last night before I went to bed which helped with my pain. However, I woke up this morning feeling like I was run over by a truck!! I couldn't pull...
Thanks, Sue! I'm glad to know I'm feeling like all of ya'll out there! I'm gonna try the ibuprofen she suggested in addition to the pred and plaquenil that I'm already on and hopefully this will...
I haven't written in a while. I hope everyone is well. I guess this is mostly a ranting message. Just frustrated. But, if anyone has any thoughts about anything please definitely share!! I've been...
Thanks everyone that has posted for that matter... LOL...
Thanks sjkly! I really appreciate your input. This is still all very new to me...even with the prior medical knowledge I have. :-)...