I am looking for answers to the pain and weakness in my upper thighs. I can walk for about ten mins. Then the heaviness and the pain comes and I have to stop again for a few mins then I can go again...
Hello,oh I am so sorry that you have been dx with this rare disease. The good thing is, is that they now know what is wrong, and start treating you. Have you started any type of treatments yet? I was...
Angel12, Hi Nice to meet you. I am sorry that you went through so much with the dx process. It seems we all seem to go through some sort of bad exspeirence getting someone to listen to us. I feel I...
Hi Nadia2, count me in. susie...
Hi Naida2, Nice to hear from someone who can relate to this disease. I am also on antisiezure meds carbamizpine. I was put on this before I was dx because of perherial neuropathy but they gave me...
Nadia2, I just wrote a whole reply and lost it, I hate that when that happens, lol. Well lets start again. I am so glad that you are doing ok now with the HE. This dx scares me. I thought it was bad...
Peggy, thankyou so much for responding to my post. It sure sounds as if you have had your fair share of problems, Wow. I am so sorry to hear. Yes you are so right when you say doctors have egos that...
Joy, you are so right they are all frustrating and if people do not have anything like that going on in their health world they just dont get it because usually we do not look sick. Susie...
Joy, oh thank you for answering my post. I certainly do appreciate it. Let me ask you this if I may? Is your Hoshimoto's also the encephalopathy kind? I have have been hypothyrod for a long time, and...
Hi everyone, Just wondering if anyone here is dx with Hashimoto's Encephalopathy? I sure would like someone to chat with about this. I have a host of other autioammune diganosis going on, some pretty...
Hi, I need help here please, nobody has been able to answer me. I have been just recently dx with Hashimoto's encephalopathy. Also have UCTD with features of lupus and scleroderma, have Hashimotos...
Hi everyone, this is my first time posting here, as I am new to this site. But this subject hit home as I have the same happen to me on occassion, waking up like I cannot breathe, I was dx with...