Hope the Humira works as well for you as it does for me....
I was terrified when my doc suggested remicade. I only went on it while prepping myself for a colectomy. I got so sick, I thought what the hell. It was the best thing that happened to me. I stayed on...
I always had bad flare ups until I went on remicade. I was only put on remicade after a severe reaction while on dipentum and purenthol. I stayed on remicade until I went on medicare. It gave me back...
I used prednisone for over 10 years and it made food taste great and generally made me feel good, but it made me anger easily and I didn’t know that was a side effect. I always felt like it only...
I took it as soon as I could get it. I feel freed. No mask and no fear. Good to have my life back. I’m part of of a large family and no one in my family has had any severe reactions....
I’ve been on humira for over 5 years and was on remicade for over 5 years before that. My life has been very close to normal for the entire period. It did take several months before the treatment...
Were you having problems before your colonoscopy? A colonoscopy definitely stirs up things in there so it could be just a side effect of the colonoscopy, but you definitely need to check with your...
Remistart was great but once you go on Medicare they stop helping. My medicare and supplement pay the same as they did when I was just on regular insurance so it doesn't make sense to me why they...
I took my first 4 Humira shots today. I hope this works for me. The shots went much better than I expected. I've been on remicade for nine years, but needed to make a change due to finances. The...
I took remicade for 9 years and it worked well for me. I actually took my first 4 humira shots today and I'm hoping it will work well for me....
Thanks for the post. I love blueberries, but don't eat them often. I used to eat ice cream most evenings and decided that I needed to stop that habit and I started eating yogurt with a couple of...
I'm an ex-smoker as well. Many ex-smokers develop UC. The incidence of UC among smokers is very small. There was even a study done using nicotine that looked promising, but when a larger study was...
I've been on remicade since 2006 and it has been great for me. I was scheduled for surgery and decided to give remicade a try and I'm sure am glad I did. I did start feeling better right away, but I...
I'm generally brown or mustard yellow. As long as there is no blood, I don't really don't care what color it is. I have seen green, but I think that was caused by my diet....
I took prednisone for over 10 years and all it ever did for me was manage the symptoms when I was on 40 mg or more. As soon as I started to taper, things went bad. It gave me a voracious appetite, a...
I agree with several comments. To me being able to live your life without being held down by the disease is the most important thing. If I can work, exercise, and have fun with very little disruption...
I'm a jogger and have been since I turned 31. I have run during flareups, but it can be problematic. I run on a track which has restrooms available. The track is a half a mile so I'm never more than...
Thanks....
Unfortunately, I believe that is what all the doctors do when treating bowel diseases and all of the drugs are subject to have horrible side effects, but it is better than doing nothing....
What is IVIG? I haven't heard of that one....
Johnj, I had a similar experience with asacol. It was making me sick and the doctor kept telling me to stay the course. Like a knot-head, I stayed on it until I wound up in the hospital. Then I tried...
platinumpixie, Thanks for the input on simponi. I will discuss it and humira with my gastroenterologist....
Thanks for the input. It sounds like I may need to find a way to pay for the Remicade....
Due to financial reasons, I have to switch from remicade to some other treatment plan. If you are using humira, I would appreciate you sharing your results or lack of them. Mike Whitehurst On...
johnj, Either 6mp or dipentum almost killed me. It had a tonic effect on my liver. I was out of work for almost 6 months. I went from 160 pounds to 125 pounds in about 2 weeks and was in intensive...
I have always been a runner and that builds bone mass. I did have had a bone density test several years ago and everything looked ok. I took large doses of prednisone - as much as 100mg, but my usual...
CCinPA, I am a retired state employee and have insurance with them, but it will not qualify to stay on Remistart and even with this supplement, I just cannot afford to stay on the program.Thanks for...
Thanks for the response, but most of these knock you off the program once you go on Medicare; however, I believe I will be able to afford my share of Humira - I can't afford to stay on remicade....
That's correct. I forgot to add that....
I'm a participant in the 23andme IBD initiative. You get a free DNA test as part of the program. All you do is answer a number of surveys and you become part of a genetic testing program. This might...
I need to come up with an alternative to remicade. I was using Remistart to offset some of the cost, but because I am now on Medicare, they will no longer provide any assistance and I can't afford to...
I've been on the regular routine with it, every 8 weeks, and it has worked well for me. I am as normal as I get. I haven't missed a day at work in over a year due to the colitis. It did take 3...
After reading the possible side effects of remicade and other postings, I cancelled the first appointment that my doctor set up for me about 3 years ago. Since then I got into a flare from "hell" and...
Just in case you need one more afirming voice. I went on Remicade as a last ditch effort before having surgery. I started treatments last January after being in a severe flare for over a year. It...
Kelsie, I've been on Remicade for about a year now. I've only had minor problems towards the end of my treatment period. Remicade has been wonderful to me. When is the next treatment?...
I have a hard time with enemas, but I use Canasa suppositories as needed between my Remicade treatments. Canasa is a 5-ASA drug. It works good for me....