Hello I talked to my ET nurse today and I saw some bumps on my stoma. I heard that is normal. He said that is from the colitis. How do I get rid of it? Thanks...
I am new on the pouch waiting for my part 2 surgery but until then I need to get some pouches. Which ones work better? Hollister or Convtec? I am trying to order on line? I have hollister but they...
Hi I feel a little sensation when something comes out of of stoma it feels like a little pain but it goes away. Plus my bag is very heavy and full of air. I had lunch two hours ago and it is all...
Hi I just came home from last night from my surgery and I don't know what to do. I have a nurse come in tommorrow to help me with my bag but I have some questions. 1. My bag has allot of air inside...
I just had my surgery I am eating but I don't feel an appetite yet. I never did when I had UC. Plus I am not urinating as much I'm sure I will soon since I need to drink more liquids. Thanks AG...
sorry Peggy 113 when you mean gas you mean gas from the anathesia? Right? How long does that go away?...
Yes they did I should be able to go home soon. I still get a little pain around the shoulders especially when I breathe the doctor says its from the gas from the anathesia. I hope the pain will go...
thanks I didn't didn't know I had gas there I am on liquid now. I think solids tomorrow....
I offical an UC free! I have a pouch too. I am still in the hopsital. My stomach is making all these gurgling sounds and so is my bag. I am sure that is normal, My shoulders have been killing me...
Hi. I decided not to have surgery. I will work this out. I know it will take a long process to heal but I am ready to do it. Thanks...
I will ask them about the treatment when I leave. So because you had allot of cyclosphorine they said they would be complications? Too bad. Thanks again....
Thanks I will not go for surgery I will tell my doctor tomorrow and stick with the meds. I am going less seeing some less blood and little stool formation but like you said it takes time. Thank you...
I'm feeling bettter but I'm still getting blood when I go so I'm worrying I will loose blood again I might not have a choice but to have surgery...
tghanks again i am getting two units of blood now the good news i haven't had too many flares today so i will give it another day on the meds...
Thank you the problem is my colon is severly sick and I don't have many options. I know I have been recently diagnonosed but my health is not getting better. I am losing blood I need to get a blood...
you're right I'm giving it two days for it I am using enemias and they are taking stool samples Thanks...
I will talk to the surgeon. Luckily I am in good shape to get it....
been in two hopsitals for about two weeks on cyclosphorone and predesone IV. I have been on cycloshoproine for about 5 days. Lilttle improvement but still blood and not too much form. I have lost...
better than nothing. I am in the hospital right now for over a week trying to get a cure and so far nothing....
SCIENTISTS IN IRELAND AND COLORADO FOUND A NEW TREATMENT THAT COMPLETELY REVERSES IBD? http://www.ucd.ie/conway/news_288.html ANYONE KNOW OF THIS?????????...
Hello so am I wasting my time with cyclospphorine?...
I understand thanks everyone. So far these meds are working good I should be out of the hospital soon and I can start on with my life with meds. I'm not worried with life on meds. I am on the...
So you where falring since may? What did the doc tell you to do?...
I know I just want to go home Where do you get the blood tests done? They didn't mention it yet. They said when it is done I just go home with meds....
I'll be honest I'm advoiding surgery now. I just want this cyclosporine to work so I can go home. Maybe in the future...
Imuran and I guess the cyclosporine for a while in pill. So how is your liver and kidney? Do you have to do frequent blood tests?...
Thanks this is my second day on the IV. I'm going more but I see less blood. I am getting more stomach aches. This hospital is very good with that stuff. So you noticed better in 4days?...
Yes I am and they are giving it to me now in IV Did u get it from IV too? How many days until you known it works? I'll keep you posted...
Wish me luck they are starting me on cyclosporine through IV to stop my inlfammation Has anyone used this does it work?...
I understand I am talking to the surgeon today my flares have not been getting better after a week of IV steroids. After the colonscopy I guess we can talk remcade but I will ask how long should I...
Here I go I am getting another colonscopy today to see how bad my UC is or if I have crohns. After they do a check they will give me the option of either cyclosporine a heavy drug then after a week I...
going for a second colonopscopy tommorrow had one last month in another hospital. It seems that my whole colon is flarred. I have been been on IV steroids for a few days around the clock no help....
Read my post it's quite bad!...
Hello I am in the hospital now to treat my flare ups. I have been in hospital since wednesday. They gave me steroids, Aascol, imulan since Friday and the flares have not went down. I am on IV for...
It's offical I'm checking in to gte my remicide and steroid shots. How long are you usually in the hospital? A few days?...
When did it go away? What meds did you take? please tell me? I'm losing weight!...
seeing mu GI tommorrow for over a week all I have been getting is dark diarrhea with blood no matter that I eat. No stools just watery like I am off Colazol because it gave me cramps I am on...
I'm taking 40mg I don't think that's enough. I will ask about asacol does that work pretty quickly? He talked to about remicide and imuran but I was only on Colazol for 2 weeks I'm not ready for that...
Hello for the past few nights I cannot control my flares they are all in the form of liquid diarrehea blood and mucus. I have lost a few pounds in a few days. I am on predisone. My doctor took me off...
You're right I don't feel dehydrated may I ask you guys how servere have you guys gotten a flare up? Does Remicide and Imuran end the flares pretty quick? Do I have to be on Remicide and Imuran for...
Thank for all who have replied. I have been having allot of flares lately. Mostly blood and mucus especially at night. I cannot control it. I do not feel week I do not feel dehydrated. But should I...
I have only been on it for over 2 weeks. I don't know what else to do I'm just seeing him next week and he says to try a specialist downtown Should I jump this GI?...
I told him and he wants me to go on Remicide or Imuran. I am off all the meds all together I am on nothing. Thanks...
Plus I am getting stomach aches everytime I eat something is this normal?...
Plus I am constantly getting diarrera and getting BM's especially after I eat a meal even before is that a side effect to Colazol? At night I am going a few times in the middle of the night is that...
Prednisone is I guess Cortizoid. I will give it another week or two. I can't seem to keep anything in my stomach. I eat something and I have to move it out almost instantly. I get stomach aches too....
Which one is better? Should I take both? I am on colzol now 9 tabs a days its ok but I still get frequent BM's at night. I have only been on Colazol for about 3 weeks? Should I give Colazol another...
Came from my GI today. I have been on Colzaol for about 3 weeks and nothing better. Still blood. Doctor says I should try remicide or IMuran. Remicide is very expensive How well does Imuran work? He...
Hello I am going to the GI tommorrow. My symptoms have not gotten better. I am constantly having diarrea since my meds especially at night. I am going over 10 times a night and all i have is watery...