Ally and I are more than happy to help in any way we can if you are looking for guidance to get this legislation passed in your state. We are working on getting it passed at a federal level....
Erica, It looks like we will take the train to Springfield. Unfortunately, David will not be coming because he has to fly out somewhere. You can take the train with us. Are you interested in meeting...
For Beth in Springfield-- How are you feeling? Do you think you will make it to the April 11th event?...
There's still time to register. Please let me know if you are interested in attending and meeting with your legislator....
Erica, Could you please give me the contact information for Howard at GIRF if you haven't talked to him yet? Thanks, Lisa...
We have several groups who will be exhibiting and legislators are interested in meeting with their constituents. It's very exciting. Please let people know about this important opportunity to spread...
RobynO, Hopefully things will work out and you will be able to come to Springfield. We're setting up meetings with legislators so if you are going and you would like to meet your legislator, please...
We are going to be setting up meetings between the attendees and their respective legislator, so I will need to know who will definitely be attending. We will most likely be taking the train to...
I'd love to meet up as well....
RobynO, That would be fantastic. Let me know! Lisa...
Erica, Thanks for asking. I haven't talked to Howard yet. Will you be seeing him soon? Could you ask him? If not, I'll send him an email or call him. Lisa...
The easiest way to get started is to go to www.crohnsandme.com . The Advocacy link will bring you to directions on how to simply click and a request will automatically be sent to your local...
It's really inexcusable. That's how I felt when the store manager wouldn't let my daughter use the washroom when she was obviously in tremendous pain....
Let me know if your daughter needs someone her age with the disease to talk to. I'm sure Ally wouldn't mind. I agree that you should not give up on Remicade yet....
Thank you! Ally's Law states that any retail establishment with three or more employees present must allow a customer with a medical emergency access to their private restroom. The history is that a...
just a reminder...this day looks like it will bring a lot of awareness to IBD...anyone who is interested in traveling to Springfield, please let me know...
Just a reminder...in case anyone is interested in traveling to Springfield or who lives there and wants to attend......
Erica, I totally understand. I hope you are feeling better and not too stressed with work. Take care and I'll see you next month! Lisa...
Beth, April 11th is IBD/Ally's Law Awareness Day. We're expecting resolutions from both the House and the Senate as well as (hopefully) a proclamation from the Governor. There will be tables set up...
Erica, Is there any way that you could to Springfield on April 11th for IBD/Ally's Law Awareness Day?...
Erica, Let's arrange a time to meet at the conference. Ally and I will both be there. Thanks for the message. Lisa...
My daughter got C Diff after a hospital stay for her Crohn's. Unfortunately, it seems to be fairly common and difficult to prevent. She had to go on antibiotics and that took care of it....
This conference is excellent! I always learn a lot and it is so nice to meet or see other individuals and families who also have IBD. I also enjoy speaking with the exhibitors too....
I also think you handled it well. My daughter, unfortunately, had to deal with the same type of behind-her-back comments. It's very hurtful. Good for you!...
My daughter wasn't able to handle the 6MP either. She's now on Remicade and has been for a few years. Between the Remicade and the fantastic care by her doctor, David Rubin, she's doing well...
Dr. Fichera was Ally's surgeon. He's a great guy!...
There will be an IBD/Ally's Law Awareness Day in Springfield on April 11th. It will start around 10 a.m. and we are hoping to have it in the rotunda of the capitol building. We may be able to get a...
My daughter and I will be attending this as well. It is well worth it....
Ally's Law is currently in legislation in MA and several other New England states. Go to the Advocacy Center at www.crohnsandme.com and you can see which states have Restroom Access Act legislation....
My daughter has been on Remicade for 4 or 5 years now. She feels so much better!...
I'm sorry that you are having to go through this. You may want to think about switching to a doctor that will return your call, or at the very least, have an associate call you back. Feel better!...
Please let me know if anyone in IL is interested in participating in IBD/Ally's Law Awareness Day to be held April 11th in Springfield. Thanks, Lisa...
Ally, my daughter, sees Dr. David Rubin at the University of Chicago. I believe Dr. Hanuer is more involved with research now. Dr. Rubin is a fantastic doctor, person and friend. He saved Ally's life...