What about the appetite? Everyone is telling me to eat but I just can't do it. So far all I can stomach is saltine crackers. When does a normal appetite start to return?...
I've had jpouch surgery last week and need help. Here in Ontario you can't speak to doctor to save your life. I'm 1 week post op and am currently dealing with a low grade fever that floats around 99....
I've been lurking on this forum for quite a while but haven't posted since my suffering with UC days!! I'm curious if there is anyone on the board from Ontario Canada and if so how long have you been...
Hello all... I haven't posted in quite a while, I've been feeling great since my new "attachment" and I've been living it up!! Now after years of UC suffering I'm finally healthy enough to take a...
I'm with you. My navel is gone too.... It was pretty strange at first but luckily I'm a pretty hairy guy so it's not as noticeable now....
Thanks for all the replies... I pretty much started on the treadmill the first or second day I was home from surgery. Not much mind you I started at about 4-5 minutes at very low intensity. I'm now...
For those who go to the gym, how much or a risk is the whole hernia thing? My doc still has me limited on how much I can lift (15lbs max) but once I'm cleared I want to get right back into the gym....
Thanks for all the replies... The main thing I'm really worried about is distance riding. I'm definitely not up to this right now but back when I was healthy I would go on 30-40km rides through the...
Hello all, I'm about 6 weeks post op and I would really love to get back on my bike. Does anyone have any suggestions or offer some advice on cycling with the bag. I've been sick for about a year so...
I'm about 5-1/2 weeks post op since my illieostomy and I'm having pretty severe hip joint pain. It's almost like I can feel when my stoma is outputting and shortly after that feeling I get sharp...
Hello all... I'm now about 5 weeks post op and am feeling a lot better. I have always wanted a motorcycle and now I have decided that after the horrible UC battle I've had for the last year and now...
Gentlemen.... I'm new to the ostomy world (4 weeks post op) and I'm trying to figure out the wardrobe situation. First of all do most of you wear boxers, boxer briefs, or regular briefs? How many...
I'm hoping that someone can offer me some advice here. As of today I am 3 weeks post op (illieostomy and appendix removal). Anyways last week I was starting to feel really good, I was eating like a...
thanks a lot for the replies... I'm really starting to feel better about this each day that passes. I was very afraid that I would never be able to get back to my former active lifestyle. I'm still a...
Hello all.. I'm still very new to my ostomy (2 weeks post op) so I I don't plan on hitting the cliffs anytime soon but I do have a question. I used to be a very active rock climber before I got sick...
Well hello all, I guess I'll be posting my questions over here instead of the ulcerative colitis board from now on... Anyways below is a little history on how I ended up with my new bag.. After...
Well hello all, I thought that I would give the latest update on my year long flare... After trying all the colitis meds right up to Remicade nothing was working for me so I started to talk to the...
I am really thinking of getting a tattoo if I ever get out of this current flare, kind of a celebratory thing. I'm starting to feel a little better after last week's remi infusion and I'm hoping that...
Hello all... I had my first Remicade infusion yesterday. I don't really feel any different yet but I did manage to sleep a good 7 hours last night which is very rare for me lately. I've got my...
thank you all for the replies. I get my first infusion on thursday. I'm a little excited and nervous but I'm really hoping for good results. I realy want to get back to work and a more normal life....
Hello all... Well in an attempt to end my almost year long flare I'm starting Remicade next week. I'm hoping some people that are currently on Remi can share some success or failure stories with me....
I'm about to start Remicade and I'm wondering if there is any downside I have not thought of. Since it has such a high success rate and relatively low if any day to day side effects why are we not...
Another Canuck!!!, Southern Ontario...
Yeah I've tried all the tricks with the enemas, half bottle, warming etc... nothing seems to work anymore. It's so weird a few weeks ago I could take the whole bottle over night with no problem, now...
Hello all... I'm still dealing with my almost year long flare now. Waiting for insurance to kick in so I can start Remicade. Anyway I've noticed lately (past few days) that when I have my morning BM...
I'm still dealing with this damn flare that just won't go away. I'm down to about 3-5 BM's per day but am still in some pain, seriously tired and still losing weight. I've dropped about 40 pounds...
Alright I am completely confused and in need of some advice. I've been dealing with a flare since summer of 07. I've been on a few rounds of pred, salofalk enemas, cortifoam, cortenema and have been...
After everything I've read on the net it certainly seems like pancreatitis but the only thing I don't understand is that it only affects me for a few hours around dinner time. Outside I've that I...
I'm hoping someone who has had this can help me out.... I've been on 100mg of Imuran for about 6 weeks now and although it has done next to nothing to help my colitis symptoms I've definitely been...
Hello all... I have been battling this flare for the last 8 months and it has finally taken it's toll on me emotionally and physcologically. My doc has recommened taking Cipralex 10mg once a day to...
I think I want in on this... I need something to take my mind off my ongoing flare. I'm going to try and do 20 minutes on my cycle trainer. I desperately miss my mountain bike. Does anyone have any...
Excellent article. I wish I could share your view of hope.... I have been a very negative person my entire life and I know that I need to change this outlook to help my disease but I just don't know...
ATTN UCHICK.... Sorry to hijack this thread but I also suffered nerve damage in my feet during my course of Flagyl but I was never prescribed any meds for this. I was basically told to excersise and...
Alright, I have made a few posts over the last little while about this flare I'm in. I went to see a new GI yesterday because I haven't been happy with the responses from my previous GI. This one had...
Thank you all for the replies.... The thing that's scaring me is that I have tried all the suggestions that have been thrown out there. My doc has prescribed 5ASA retention enemas, suppositories,...
The problem with the pred is that it is not doing anything. I feel no different now then I did 6 months ago when I was on a maint dose of salofalk. In fact I felt better back then without the side...
I am currently at the 1 month mark of taking 100mg aza and have noticed no improvement whatsoever. I have been through 3 rounds of prednisone with no improvement. I have been flaring for almost 6...
I had an awful experience myself with the H Pylori drugs. I'm pretty sure that it was the Flagyl that did me in but I was told by my GI to stop taking the meds after 3 days. I had severe tingling and...
Can cortifoam be taken twice a day or is that to much? My current GI told me to just use it before bed (which does enable me to get a nights sleep). I have been seeing a second GI for another opinion...
I agree, I just had them done together before Xmas. I was a little sore the next day, the doc didn't use nearly enough meds for me and I was awake the entire time. But for the sake of preping and...
I did make a post a while back about the h pylori. My current GI tried to treat me for it but I had nasty side effects to the Flagyl that they put me on and I had to come off it after only 3 1/2...
Thanks for all the replies.... I have a call into the GI but I'm waiting for him to get back to me. If I stop taking the Imuran for a while does it reset the clock on how long it takes to work? My...
As I've posted a couple times before I've been dealing with a flare that just won't go away since summer 07. My doc has put me on 100mg per day of imuran starting on Jan 15, 08. I have been...
I can see why the pred is suspected of causing the leg pain but what i don't get is that the pain only started after i started taking imuran? I've been taking pred of various doses since sep. right...
Interesting you should mention the pantoloc as a possible culprit. I have never thought about that one. I'm not sure why the doc is leaving me on the pred until the imuran kicks in. I've been on the...
Hello everyone I really need to vent I hope someone will listen and give me some positive vibes.... I have been battling a flare since summer 07, since then I have been on 40mg pred, salofalk enemas...
I'm wondering how many people make it through a work day with this disease... I have currently been off work since Sep 07 dealing with this flare, I have started Imuran a couple weeks ago and have...
In my current flare I have lost about 35 pounds in the last 4-5 months. Currently I am 6' and only weigh about 160. Granted at 195 I wanted to loose a little bit of weight but I would like to get...
I started Imuran on Jan 15/08 and am starting to notice what I think are the side effects but I'm not to sure what other people experience. Also after you have been on this drug for a while do the...
I have a two part question for you folks. I have been off work now since late Sep with a pretty nasty flare. After going to through 2 rounds of 40mg pred, salofalk enemas, cortifoam, nothing seems to...