I am 26 now and i was diagnosed in 2004 so i was 23 at the time. Wow it feels like i have been living with this a lot longer that nearly 4 years....
Thanks Gela.... I dont know what is going on. I keep getting respritory infections. I also seem to get brohncitis (spelling sorry) once a year now. I mean i would rather a respriory infection than a...
I have been on Remicade since august of 2007. It never fails about 2 weeks before an iv i start to develop a respritory infection. I have pretty bad allergies this time of year. (i am currenty on...
Oh my... i had to do them for about 28 days straight not my favorite med. However it took me about a week to figure out how to hold it. I was supposed to keep it in all night. I always did them...
I love oatmeal. When i am not flaring i eat it most morning. However I am currently in a flare and trying ot eliminate dairy and Gluten to see if it helps....
KaseyF: After i was first diagnosed i became very anemic. I tried to take Iron Pills and it made me really crampy. They suggested i take Iron Infusions. I went 1-2 times a week for 10 weeks. It...
no one but me....
Does anyone get back pain during a flare?...
yeah i use protien shakes pretty regularly. just make sure you are geting a lot of water in you....
princess colon thank you. I was hoping it could work that way. I am going to talk to my GI today so hopefully we can steer clear of the pred. nhmm: i am so sorry you are not doing well right now. i...
Thank you all for your responses. I hope this infusion helps. My infusion site is at my doctors office so i will be able to speak wiht her about it briefly tomorrow. it is either that or wait 30 days...
Hi guys, I have been in Remission since starting Remicade last august. about 2 weeks ago I started to flair. Ive got it all except for the abdomen pain. I have my next infusion tomorrow. Has anyone...
I took canasa for over a month straight. it helped me some. I needed remicade to go into remission...
Hey guys, i just had my fourth remi treatment last tuesday. So far so good. I noticed today though that my lymph nodes in my neck are tender to the touch. Has this happen to anyone before? They do...
oh that is great to hear. I am doing WW now that i can eat Fiber again :) I am exercising a lot more. More than anything i am just happy to be in Remission. It is always good to hear an uplifting...
I hate to be a girl about this but I am working hard to loose weight (from 2 rounds of steriods 20lbs each time). I started Remicade in August, have not noticed any weight gain from it. i have...
Thanks guys. The nurse had me go take another Urine sample to clarify if the infection was still there. it was so they put me on another round of antibiotics and asked me to wait to do my IV till...
k so i am waiting to hear back from my infusion nurse but I am coming off of a UTI (urinary tract infection) i am already off of the antibiotics and do not have a fever. however some of the UTI...
alabamababs: I recently spoke to my GI about the bloating and gas from the fiber. she said give it a month or so and it will regulate itself. I love being in remission but i just could not understand...
I have been in remission for the first time since being diagnosed in 04 after starting remi in August! I gained about 40lbs over the course of 3 years from steroids and other medications. I have...
oh sweetie... this is not silly at all. we have all been there. i use the fan and run the water. The guy should def. understand. I always try to be honest about my condition without giving too many...
Susan, As PB4 mentioned it is symptomatic if it is actual on your anus. the one i had was slightly to the left and the other one is on it. that is why i got worried....
okay so i am officially worried. I can probably get into the doc tomorrow. I called the GI today. i am expecting back blood work today. I left a message about what is going on. she is booked out over...
okay happy dad, did you have heart problems before? Was teh embolism caused by the Remicade? Eva, Did you have any other symptoms other than the chest tightness? I ran a slight fever (no more than...
well i called the infusion nurse and she sugested i see my family doctor. It sounds as if i might have developed a respritory infection. i am going to see my doc next week....
Thank you. I called the infusion nurse this morning so i am waiting hear back from her....
Thanks PB4. I called my specialist about it yesterday i will let you know how it terns out. Thanks for the info. I am still new to a lot of this and am learning something new everyday. This website...
Has anyone experience respiratory issues while on Remicade? I know it is a side effect. During my first infusion I experienced a little bit of chest tightness. I just had my third this Tuesday and...
well i just mentioned the same thing recently. i have been on 12 asacol a day for about a year now. i have never been in remission. i started Remicade in August and quickly became healthy. About 3...
I went for my remi infusion and the doc was not in today so i did not get to bring this up. i have not developed one right on the outside of the anus. UGHH it does not hurt or anything it is just...
okay so in the past 3 weeks i have developed skin tags. I have two now. i asked about it on the Chrons page and they mentioned skin tags are generally related to chrons and hemroids. i do not have...
I had to pay my deductable 300 but then it is just the specialist copay $40 in my case. There is no facility charge. My infusions are actually given in a back room at my doctors office. Nothing fancy...
I am so sorry to hear that. So you had UC and it has developed into chrons? I am sorry you are having to deal wiht this. My prayers are with you....
Hope you feel great after this one Meesh. i went for my third one today as well. This drug is the my personal miracle drug. i have not had any bleeding or loose bms since the first infusion. This is...
thank you all for your thoughts. iwent for my third infusion today. I had a cb test done and had them check my sed rate. this will at least let me know if there is still inflamation. I breifly spoke...
one last question. did any of you have any complications getting pregnant?...
I have UC and am on Remicade. My husband and i took a long time deciding whether or not to take Remicade for this very reason. i will have my third infusion tomorrow so far so good. it is so...
I dont have chrones, i actually have UC but i noticed what i thougth was a skin tag a few weeks ago. However it is not locatd that closely to my hole. (sorry to be direct) it is actually a little...
cottonelle flushable wipes are my fav. i keep a box in the bathroom and when i flare i keep a travel pack in my purse....
okay so i go for my third infusion tomorrow. since the first infusion 6 weeks ago i have -stopped passing blood -only go about 2-3 times a day (used to be 5-12 depending ) -limited stomach cramps My...
i have had the same problem, but i think it is from the blood i pass. we get a purplish stain on the seat. i too try and clean it immediately but it is still pretty stained. We just get a new one...
HI red head twin. Your doctor is very wrong about the constipation part. i have had UC since dec 04 and have not been constipated once since then. I too have a flare that time of the month. I am now...
i just had my second infusion this week. I have to say it is my special miracle drug. i have not had any bleeding since the 2nd day after my first infusion. i went from 7-10 bms a day to maybe 2 or...
I have been on asacol since 04 and have had my hair highlighted the whole time. no biggie and it always turns out perfect....
MY UC def. gets worse during this time. I just pop some tylenol and pray it ends soon :)...
I did not have a bad experience with Canasa. It actually helped a lot. i had to take it everyday for 3 weeks. It helped during those three weeks. i was okay (not great) the 4th week (first week off)...
so it is just the drink not the enema?...
Stacey, My doctor did not bring up Remicade until a couple of months ago. It was Remicade or Pred. again. I have had it with the steroids so i chose remicade. I was diagnosed in dec. 2004. with the...
Thank you! I will def look into this more....
UGHHH i feel your pain sweety! My last four visits to the GI started with i will do anything just not pred again! I am still trying to loose the 40lbs i put on from the first two rounds. Plus it only...