Who else has been diagnosed with this? I'm in the middle of tests to see if I truly have IBD (ulcerative colits) OR if I have post-infectious IBS (due to a bout with c-diff that lasted for 4 months)....
I have Erythema nodusm, have had it for 15 years! It comes and goes on its own, and now that I have UC, they tell me it will come and go with the flares. As soon as your flare is under control, they...
So, I have a complicated history, but basically I was dx'ed with Ulcerative Colitis, and then 4 months later someone finally ran a c-diff test, and low and behold I have c-diff. In the mean time they...
I have c-dff and they didn't know it, and my GI doc said the prednisone made it worse. So they tapered me quickly and started the Flagyl. I just finished the Flagyl yesterday, and my D symptoms are...
Yes, I think that's part of the reason she's so sure it's UC. But I really just want to have a definite diagnosis and she's not willing to say 100% sure until the c-diff is gone. And now, down to 10...
It's good to hear that I'm not the only one! :-) I've been soooo frustrated. I just want to know the answers... I suppose like anyone else too. I just really need to know if I have underlying...
OK, so for a recap: (and there may be TMI , so I apologize ahead of time) My history: I was diagnosed with erythema nodosum at age 16 -- unknown cause. Been dealing with it for 15 years off and on....
I had a bad reaction to the asacol, and we did a lab test for the c-diff, so it's definitely something I have right now. The rapid pred taper is due to the fact that pred doesn't seem to be helping...
Just got a call. My doc wants to rapid taper the prednisone, from 40 mg to 15 mg for 3 days, 10 mg for 3 days, 5 mg for 3 days and then 2.5 for 3 days. Sounds like an pretty intense taper. :( And I'm...
I've been reading, reading, reading, and I've noticed that most the time prednisone is used in conjuction with other meds. however, my GI pulled me off asacol and rowasa to have me strictly on...
Well, i thought that about the 60 mg too, I'm not sure... she didn't want me on it for more than 2 days... So what I did, was take my reg 40 in the morn and added 20 at night.... So last night was...
Ok. So went this morn, and she upped my pred to 60 mg for 2-3 days and then wants me back down to 40 mg. Also sent me for an abdominal CT scan (which I did right after I left the clinic) and so we're...
Ok, heard from my GI. At first was not going to do much until I started crying and explained how much pain I was in. They are still waiting for samples to come back,etc and I understand that but...
Well, i put in a call to the GI, waiting to hear back. I'll post as soon as I talk to him. Thank you all for your replies, for some reason the pain always seems worse in the middle of night/early...
What is your "limit" at which point you decide a trip to the ER is going to help? and what do they do for you? I'm in a lot of pain and nauseous and no sleep but feel like if I go, they'll give me a...
This is the first time I've been on it, and this is day 7 of 40 mg... tomorrow I taper to 30 mg. I can't sleep well, my back is KILLING me (it hurt before, but this is sooo much worse), i look...
So I was recently diagnosed in February, but have been flaring lightly (now that I know what a flare is!) for about 6 months, and it's gotten continually worse, hence the doc appt and subsequent...
Ok, so finally got some answers!! The GI doc was appalled at what the surgeon told me! And said no-no to the imodium (which I only tried once because the surgeon told me to). He took the pictures of...
How do you make that decision? Is it dehydration you go for? fever? a lot of blood loss? Thanks......
Ok, so I got an appointment with a GI next week so I'm glad I don't have to wait too long. I did try taking the imodium like the general surgeon wanted me to and all it did was bring on huge amounts...
Thanks for the reply, I'm a little calmer now and put in a call to my general doc asking for a referral to a GI doc. He wanted me to see a GI in the first place, but the wait was forever. Let's hope...
So went in today to see the doc who did my colonoscopy, and he told me according to my biopsies I have "active" colitis from my rectum part way up the left side, and they don't think it's chronic...
I was just diagnosed with UC on friday, and go into see the doc on Tuesday to discuss meds. I'm glad that I know what's going on now, but I'm still nervous and worried. I'm a single mom with 2 kids...