Quincy-thanks for these thoughts. I will definitely discuss your suggestions with my gastroenterologist....
Quincy-I am a big believer in rectal meds, but have been able to maintain remission on only Lialda. If I were to see any issues I would definitely bring them back. Thanks!...
Thanks so much Songlady, that is really what I hope happens. Can I ask what dosage of asacol you were on when you nursed successfully?...
Thanks for the advice Fruitgirl. I totally agree that controlling my UC needs to be a priority, if I end up in a severe flare I'm no good to anyone, let alone a newborn! I just wish there was more...
I know that there are women on this board who are/have been breastfeeding while taking mesalamine. I am due in a few weeks and have not been able to taper off of Lialda and stay healthy. I understand...
As an update, I am still not 100% but my currect plan with my gastro is to taper down to 2 lialda (and immediately go back up if it does not go well) by the time I deliver and then see how it goes...
My understanding is that it definitely is present in breast milk. It seems, though, that at an appropriate dosage it is not harmful to the baby. I still haven't decided what to do, I plan to speak...
Thank you both for your replies. I wonder what an "excessive" does would be. I currently take 4 lialda per day. Maybe I will speak with my gastro about reducing the dose to 2 per day....
Hello everyone! My last post here was about how going off the birth control pill drastically improved my colitis, allowing me to maintain good health with only Lialda. Well, now I am 8 months...
I have had this problem for years. I take Slow Fe. It is easy on the tummy....
Good luck to you!...
I continued to lose hair after I was off pred, but it did eventually stop within a few months. Hang in there! Hair loss is pretty common with pred....
I had student health insurance while I was in law school. I remember it being affordable but I also remember that the coverage wasn't the greatest. I didn't have many options as far as what doctors I...
I lost a ton of hair on prednisone. Once I was off it grew back just as thick as before. Agreed that various meds can be the culprit here....
I am also from New York, NY : )...
I definitely found a connection between going off the pill and an improvement in my UC, check out this post for more discussion on this:...
Also, if you are not happy with your gastro you should get a second opinion if you can. It is amazing how the quality of doctors can vary. I notice you didn't say anything about your diet. You might...
It is common for prednisone to make you more moody and emotional. I noticed that I cried a lot when I was on it and got upset pretty easily. I would bet that you will feel less "edgy" as you taper...
people it is okay but now that I have seen the strong connection between my UC and the pill it is a no-brainer for me. ...
Thank you for the good wishes, it will be our first. Before now it has been too scary to think about being pregnant with my UC. I had read that the pill could make my UC symptoms worse, but my...
I am happy to report that I have been in remission for a few months now and really feel like I have my life back. It has been a dream. I have been waiting to post on this topic for awhile to see how...
I had terrible night sweats while on prednisone. I frequently changed pajamas in the middle of the night....
I took a flagyl/cipro combination once and it helped me get out of a flare....
I definitely have heavier UC bleeding and symptoms during my period. Also, when in remission, I often feel shakiest stomachwise and am nervous that I might start flaring again. Anyway, you are...
I also lost weight on pred and had a moon face. For me, it didn't go away until I was off pred completely. I was skinny with a moon face, quite a look /community/emoticons/smile.gif . Anyway, don't...
One of many reasons I am glad to be a vegetarian!...
I've done several flex sigs without drugs-it's certainly not pleasant but it is totally bearable if you prep right. Totally agree the air after is the worst! In a sick way, I actually like watching...
I would agree with most of the other posts here. I feel amazing compared to when I am in a flare, but it's never perfect. I go about 3 times before I leave the house in the morning, often with some...
I never took antidepressants, but I have spoken with a therapist. I found this extremely helpful in dealing with my UC. Sometimes I think we all try to spare those close to us of the details and...
I drink one cup at home in the morning a few hours before I leave-I actually thinks it helps me the rest of the day because it helps get "everything" out. I find if I then eat lightly at work I can...
C, for sure....
My husband is super supportive and always lets me know we're in this together. But part of having married someone who is so caring is that he sometimes feels helpless against this disease and wishes...
New York, NY...
In my experience (and I think many on this board would agree), the steroid enemas are much different than the oral steroids because they do not go straight into your bloodstream. When I was on oral...
I have not taken the mesalamine foam, but I had this problem with the regular mesalamine enema. I was also v. nauseous. I never have this problem with the steroid enema, and since they give me better...
I do pottery and I find it so relaxing and therapeutic....
How is your diet? I often think I have more bleeding when I "cheat" and eat foods I shouldn't like raw vegetables which kill me....
Dr. Abreu was my doctor in NYC before she moved to Miami. You are in great hands! I wish she was still practicing here....
I eat yogurt for breakfast....
congratulations, what wonderful news!...
Thank you for posting this-it is so true! I was at the doctor this morning since I'm flaring again and was feeling kind of hopeless but your post made me laugh and cry at the same time....
Fairbr-sorry to hear you are going through such a rough time. As for surgery, I have never seriously considered it myself so I wouldn't want to comment on it. But many people on here know all about...
I am a vegetarian and during a flare I usually eat a lot yogurt, egg whites, soup and bananas. I eat pretty healthy, though I do eat a ton of carbs (bread, pasta) which I generally seem to tolerate...
I take the canasa every morning (do you think nighttime use is better?). Also, I am not currently on enemas at night, but in the past I have used both Rowasa and cortenemas to control a flare (am...
Each time I flare, it seems that my symptoms are more severe. Has anyone else experienced this and do you think this is "normal" for UC?...
I always tolerate eggs well and I usually am ok with peanut butter. Thanks to all for the advice and good wishes. This has really helped me think this through, and I think I am going to stick with...
Thanks for the support and advice-I tend to agree with all of you. I think I let too many people get into my head on this topic. At the end of the day, I truly believe that being a vegetarian is the...
It's so funny that you say that-this is what I tell people about vegetarianism all the time! I guess I am just feeling worried about my health during a pregnancy. But you're right, if I worked at it,...
I was able to get extra above the base amount through my employer's plan without a medical exam or medical questions of any sort....
I have been a vegetarian for more than 10 years and I have always thought it helped my colitis. However, lately I have been thinking of starting to eat some chicken a few times a week to get a bit...