Pitz, do you still need supplies? I could put a list together of what we have. EDIT: We have "Convatec moldable wafers and bags, 2-piece system" and then various samples, skin wipes etc....
Same here. Husband just had takedown surgery, we were told you can't "donate" the supplies. We would like to help out someone without health insurance. We have a big box of assorted supplies....
My husband is exactly 1 week post takedown for his J-pouch and is doing great. I'm actually surprised how well he's doing in the urgency department. I had planned on the worst after doing all my...
Yes, Kelli_C. We would like to help out if needed....
Hey everyone. I have not posted in quite a while since my husband had his emergency colectomy (3/08) and eventual J-pouch surgery. I just wanted to share that he is doing great since his takedown...
I'm sure it's been talked about before here but the search function doesn't work too well here. I read all the posts over on the J-Pouch board but only one person seemed to be in the same boat. Plus...
I guess it's obvious by my screen name that my husband is the one with the bag. Everyone answered the questions pretty well. Just my two cents.. My husband was shown once how to change the ostomy and...
It's good to hear that you'll get rid of that pesky UC! My husband and I were a little freaked out by the thought of a "bag" at first. We're both in our mid twenties and the thought that the ostomy...
10 mins from DC, if the Beltway isn't a parking lot... Born in upstate NY, spent the second longest time in Chicago, IL...I don't know what to say my hometown is... My husband was born technically in...
He's home! He actually went through Target and the Grocery store with me for the first time in 4 months! We also bought our first carton of milk, two blocks of cheese and frozen pizza! I would say...
My Husband got C-diff in the hospital stay before his current one. After a few days of Flagyl he was fine. He had some abdominal cramps but that was about it. The sorta good thing about it is now if...
BBC, He hasn't had the full j-pouch surgery yet. He just had his colon removed and an ileostomy which is the normal step for the j pouch 2 or 3 step surgery. Since this was an emergency we didn't...
Next update. As of Tuesday he began eating solid foods and sitting up on his own without much pain. He sent me a picture message of the lunch he ordered, Pizza, Mac & Cheese, hot chocolate, and...
My husband said the same thing about "Do you wish you married someone else" or "if I want to trade for a better model " etc. He feels guilty because we got married in April 07, didn't go on a...
My Husband was on Remicade every 4 weeks because 8 weeks was to long to wait for him. Maybe every 4-6 weeks will do the trick for you....
Eric is 28 years old and was diagnosed with Colitis when he was 20. Over the last year he had lost at one point 60 pounds. He was 5'9" and weighed 115lbs. At the time of surgery he had been doing at...
Thank you all for all your prayers and support. It really means alot to me and to Eric. I told him before he went back that I had gotten such a response on this UC board. I am happy to report that...
His name is Eric. Thanks....
So I'm sure alot of you have read a few of my posts over the last 6-8 months including my "tell me your surgery story". We've had so much trouble with prednisone and he got so sick over the last...
My Husband went through (and is still going through) horrible Prednisone side effects. I saw him cry maybe once before he was on steroids. On 60 mg he was crying every day for no reason at all. He's...
Unfortunately there is no cure for UC right now, other than surgery to remove the colon. I'm sure lots of people will tell you what they think is the best treatment etc. About C-Diff, my husband got...
My husband lost close to 60 lbs over the last year with a flare and getting really sick. His dietician suggested crackers with cold cuts on them as a snack as well as peanut butter etc. The protein...
What kind of side effects did you have? My husband is knocked out. He has bad abdominal pain, which I read was normal, but he also has chills and can't concentrate plus a slew of other problems. They...
I agree with the food. My husband couldn't touch a salad or ice cream with his UC. He would be so sick. He never had a intolerance to milk before his UC but now he can't touch anything with any dairy...
Charmin, You may want to write down what you are eating as well and see if you get worse after some foods. My husband has had UC for 8 years and he found he can not eat anything with any dairy in it....
My husband is currently in the hospital because of his UC. Third time in the hosipital, 4 weeks total over the three times so far. The doctors just diagnosed him with Clostridium difficile and I was...
My husband has been on Prednisone for a year now. He started at 30mg and was very angry all the time. Non-Prednisone he's very non confrontational, on prednisone he punched a hole in the wall, kicked...
DexCat, Metropolitan Gastroenterology Group in Chevy Chase? That's where our original GI is. Dr. Hardi, who works out of there, I think is the reason my husband is as bad as he is. ks1905, we are...
I'm a long time lurker on J-Pouch.org and they are fattening my husband up with TPN as we speak. We know that we need to get off the steriods asap. I figure we'll try to taper as we shop for GIs and...
Hope she recovers quickly and you guys can start living life UC free!...
Thanks EricaM, I didn't think to look there. I will definitely be contacting one of them....
My husband has UC and has been trying to get control of a flare for a year now. We got married in April 07 I have not had sex since July 07. :sad: Seeing that it's been 7 months of barely even having...
LOL - Yeah the fax is a little out of date. I need to show my husband that....
My Husband has been on Prednisone for a year now and most of it was spent on a dose between 30 and 60 mg and I've noticed that his hair is really thinning on the sides and back...he was thinning...
My husband had said that he had tried Remicade and the GI did admit in the ER that Remicade wasn't working. He will most likely try to push Imuran on him instead of surgery. Unfortunately I'm located...
I had the "pleasure" of speaking face to face with this new GI today. Sorry...I'm going to rant a bit. This is how the conversation went (Abbreviated): Me: So you mentioned in the ER that an...
"He also said that he left the rectum, and it was inflamed as well, but that it usually goes down on it's own when there's nothing passing through it any longer. If it is a problem, he said it's...
I actually found out now that this GI might not be as good as we thought. He just told us straight out if my husband gets any surgery he's only getting a ileostomy. End of story. There is no way he...
My husband has had UC for 7 years now with the last year being a hell of a flare. He's lost 60 lbs, bled alot, broke his upper arm because of the water retention in his legs and high dose of...
No, my husband has just (and only) Ulcerative colitis. I have a copy of the Colonoscopy report and it says normal mucosa in the rectum. Last time I checked normal meant nothing wrong...as opposed to...
Wow...so we just keep getting winners as GIs... (his previous GI, I strongly think is the reason he is this bad at all) I was pretty sure he could do the J-Pouch, had done all the research and spent...
So my husband has been struggling for a year now with 3 hospitalizations because he's become so anemic, weak and prednisone dependant. Tried everything, remicade etc. and nothing with send it into...
Just an update, my husband got severely worse over the weekend and couldn't even hold water down. The ER dr. thought he might have sepsis, that the abdominal wall is so thin that caused an infection...
I would NOT recommend Dr. Robert Hardi. My husband has been seeing him for about a year and it has been the worst year of our lives. He seems to just treat symptoms and not the underlying cause. I...
Thanks, that really helps....
My husband has gone through hell for the last year all because of a flare that was treated badly that led to so many things going wrong I would have to write a book about it to explain it all. To...
Yeah I had gotten him the children's chewable vitamins too. Good news is he's out of the hospital, got out on Wednesday. But then he had a really bad episode Thursday morning where he was shivering...
He's doing better. He's out of ICU. He got two bags of blood yesterday and 3 bags of plasma. It ended up (at least what the Dr. is saying) that it was the diuretic that he's on, triam, was what...
He's had his 4th infusion of Remicade, he was supposed to get it in another month but they moved it up to today. He was also taking Sulfazine and Rowasa enemas every night. He was at 2.5mg of...
So my husband has been having a huge flare since February and all the Meds (Prednisone) have been really messing things up. He started having a hard time swallowing and feeling super nauseous all the...