Thanks everyone for your suggestions! I will be sure to have all of the stuff with me. sfgiantsjo- hopefully I can have the 1 step. My surgeon said he wouldn't be able to know that until "game day"...
Hi! I usually post on the ulcerative colitis boards, but since you have all been through this, I thought this would be a better place to post this topic. I am having the j pouch surgery on Jan 8th...
I don't have any bad effects from it. It doesn't cause constipation either....
I take it. It is fine for UC. My GI actually told me to take it rather than vicodin. I also have arthritis in my spine, so I take tramadol regularly. Hope this helps! Hope you feel better soon!...
I am supposed to have the first surgery for the j pouch in early Jan and I was wondering how long I should expect my mom to be here to help with the kids? My Dr says you can go back to somewhat...
I don't know if you have heard of this or not... but in the cleaning section in the store there is something called Greased Lightning. I use it on my clothes and it really helps get the stains out,...
My prep directions said to mix the Miralax with 64oz gatorade and drink 32 oz at 5pm the night before and then drink the other 32 oz 5 hrs prior to the scope. Is this right. Would this be why I am...
I have only gone one little time so far. I drank the fluid pretty quickly too. I didn take a vicodin... do you think that will slow things up. I am "bubbling" so I guess eventually I will go, but who...
I have a colonoscopy tomorrow and I began the Miralax/Dulcolax prep at 5pm tonight. I was wondering how long would it be before I start going to the bathroom? I have never had this prep before only...
I agree... the phosposoda is AWFUL!!! I mixed mine in a certain flavor of Gatorade and now I can't drink that flavor because of the reminder! I have a c-scope on Tuesday and was happy to learn that I...
For the past couple of months I have been having painful bloating. It looks like I am pregnant.. I'm not. Anyway, I can't suck it in because it hurts so badly and it also hurts to press on the lower...
My Dr just called in Canasa suppositories in for me. I have never used them, but I'm sure some people on here have. Hopefully they will work with the bleeding... maybe you could ask you Dr about them?...
Ha Ha! Thanks... you too!!...
That's true...at the ER they just call your GI and ask them what they want them to do!...
Does it work better than the levsinex?...
I have blood everytime I go to the bathroom... sometimes it is just blood. It sometimes looks like someone has been killed, but I know that it probably looks like a lot more than it really is. Call...
If you are feeling weak, or extremely tired you might need to go to the ER or at least call your GI and let them know. You could be anemic. I'm in the same boat with you though...I'm sick of seeing...
I am currently having a flare up...as usual! I take Levsinex as an anti-spasmodic, but it is not helping anymore. Sometimes it does, sometimes it doesn't. I was wondering if there are any other...
I don't know if you are asking me or not.. but AS stands for Anklosing Spondylitis. It is a disease of your spine where the bones fuse together. The HLA-B27 gene test is a simple blood test. You are...
whole colon, but 30cm are the worst...
Can you get the flu shot if you are on Humira? I have heard NO, but then heard others say it's ok??...
This is funny because I went to my primary Dr today because I have an upper respitory infection and he gave me a Z-pack and also cough syrup with codeine. I was just getting ready to post a question...
I am positive for the gene as well. I saw a rheumatologist as I was having severe lower back pain. I had several CT scans, X-rays and MRI's and the rheumy told me that I had arthritis in my spine...
I have a quick question for those of you on Humira. My whole family has had a cold and now I have it too. What are my the chances of it developing into something else because of the Humira? I had a...
I've had it done twice because I have chronic pancreatitis. I didn't have a problem during or after either time. The procedure is a piece of cake. They sedate you and then put the tube down your...
I just had a CT scan because of severe pain in my abdomen for a while. My GI sent me a letter saying that the scan showed thickening of the left side colon wall, likely due to the colitis. He said...
I also have pancolitis, but the worst part was the lower 30cm. I was wondering if it was getting worse higher up also because the pain is moving higher up. My GI knows about it and is great!! I love...
i agree, it is the most painful shot I've had too. Supposedly it's not the needle that hurts, butt he medicince. I take them out and let them sit at room temp for 20 min and I numb the injection site...
This may be a dumb question, but if your colitis is spreading will it cause pain in the upper part of your abdomen? I have had pancolitis for about 10 years, witht he lower 30cm causing the major...
I am also on Humira for my ulcerative colitis. I tried Remicade and it stopped working so my GI said to try Humira as my last option before surgery. So far it is not working at all. I have been on it...
I usually get a call back in about an hour or two. I have been seeing this GI for about a year and a half. With my old GI, I was lucky if I got a call back within 2 days! They were awful about...
I haven't tried it yet, but I think I am going to start it tomorrow. I will be following it sort of loosly because I don't want to eat goat's milk cheese or some other stuff. I will try to follow it...
Have any of you heard of a man named Jordan Rubin or "The Makers Diet"? A friend of a friend knows him and told my husband about it. I was wondering if you guys thought it was legit or not. This guy...
After seeing my GI Dr. this morning. He has decided to switch me from Remicade to Humira. He thinks I may have built up immunities to the Remicade. I am also getting an appointment with a surgeon. I...
I am on Remicade currnetly. At my last infusion the upped the dosage from 5mg to 10mg, because with the previous dosage I was still having flare ups regularly. Anyway, my question is now if I get...
Me too! I am on Lialda and the same thing happens to me! Funny , I thought I was the only one!...
I had a sigmoidoscopy done about 10 years ago with no sedation whatsoever. It hurt so bad I was crying, and that was only a sigmoid not a colon. I vowed never to have another one without some sort of...
Ours is a Beagle. He is 10 years old, and lazy now in his old age! lol He used to be very active, but his hips hurt now! He likes to cuddle up to us too, so he likes when I lay in the bed all the...
My dog's name is Jasper too!!! That's how I came up with the name! What kind of dog do you have?...
I have Rowasa enemas also, but I have so much inflammation that I can't keep them in at night. My Dr gave me Cortifoam enemas to help as I can keep the foam in. Ever since I was diagnosed with UC...
I too had an EUS done. It is really a piece of cake. You'll be mostly asleep so you won't know what's going on. My Dr thought I had a tumor blocking my duct, that was why I have chronic pancreatitis....
It's not really working so great right now. That's why my Dr is upping my dosage. I'll be great a few weeks after it , but then I am right back to flaring again, so my Dr thinks that if he increases...
Congratulations! Good luck tomorrow!...
I am having my 4th Remicade infusion this Thursday and my Dr just increased me dosage from 5mg/per kilo to 10mg/per kilo and I was wondering if it would take the same amount of time for the infusion...
Motrin, usually causes flare up like symptoms. It should be avoided when you have UC. You can take Tylenol (acetimenophin) sp? Good luke! I hope your "poopy" day was just a result of the Motrin! Hope...
There is a rebate program for the Remicade. I think it is called Remistart. Someone might know the name or the website. I have really good insurance so it only costs me $35 per infusion. My Dr's...
Are you able to do any exercise? If so try walking for at least 30 minutes a day (or work up to it) and try eating whole wheat versions of the pasta and breads. The exercise might help! Good Luck!...
I am on Remicade currently. I go next week for my 4th infusion. I as supposed to get the infusions every 8 weeks. I keep having these "mini" flares that start around 6-7 weeks after my infusion. My...
I am on Lialda too. I was on 4 pills, but now I am on 2 a day. I noticed that since I started taking the Lialda, I will spot some in between periods. I have never done that before. I don't know if...
I started out with my Dr giving 1 Lialda a day and then because I was flaring so badly, he gave me 4 pills a day. It is the same formulation as asacol, mesalamine. The Lialda isn't really working for...