Just curious what the lowest dose of sulfasalazine that anyone has been on. I am suppose to take 3 pills twice a day, but due to my pregnancy, if I take the pills in the morning, I usually end up...
Sulfa is a class B drug so it is "safe" during pregnancy. I don't think I can breast feed on it though. I guess while you are pregnant, the placenta really doesn't "let in" that much of the meds, but...
It's been a while since I've posted because luckily I've been feeling alright. I recently moved and began seeing a new GI. I told him that I really didn't have any UC problems; however, at least once...
I'm pregnant too (6 months) and have pretty much been flaring since I found out. In the beginning, it was so bad that they actually hospitalized me for 9 days with IV steroids because they were sure...
That was very helpful and informative! I never knew that it was so versatile!...
They did a story, on Dateline NBC, about those foot pads. They had a group of people try them and they had doctors evaluate them. The main outcome was that they DO NOT work and that it is a scam. The...
What do you guys mean by "no pain." Do you not have cramping? Is it just that you go a lot during the day (with blood)? Do you have cramping and urgency to go when you have to? I'm just trying to see...
What is the name of the generic enemas that you are using? Until I read this post, I didn't even realize that I was using the generic kind. I looked at the prescription label and sure enough it said:...
My only advise is CONTINUE to take your meds no matter how good you start to feel. It's easy, especially when you are first diagnosed, to miss doses once your symptoms subside. Good luck once your...
I actually have a few boxes of the rectal foam. I try to use it, but it seems like I have to go immediately. I also do the Rowasa enemas at night. Do you think it's best to wait until I'm done with...
I'm just curious if anyone has ever taken their meds for UC along with meds for IBS (such as Zelnorm). I often think that some of my symptoms are from IBS as well as IBD. Just curious to see if...
I was diagnosed with IC about 3 years ago, but the doctor didn't do any tests. They just did urine tests to rule out infection and when they still couldn't figure out why I had all the symptoms of a...
When you say rectal pain, is it also rectal pressure? I know that usually, once I start going, I get really bad pain and pressure. It feels like I have to constantly go. I usually have to lay on the...
I have really enjoyed reading everyone's response to my question. Especially the last two responses because they seem to see things the way that I do. I realize that the colon serves a purpose and...
ChristieAnne67, So you're on Pentasa, 6MP and get Remicade infusions? Is that usually how much someone is on or is that just what you need to stay well? Any info is appreciated! Thanks!...
I'm not JEG, but I can tell you that I was flaring when I conceived, but I don't know if that makes any difference. I had a bad flare when I was pregnant with my son, but did not conceive him during...
I had a friend, with UC, and when she was thinking about getting pregnant, she had a doctor say, "How dare you be so selfish and want to have a baby with your disease!" I can't even imagine what I...
I, too, was discharged from the military for UC. I have yet to go on a job interview, but when I do, I don't see why I would need to disclose that I was discharged because of a disability. I received...
Thank you for all of your replies. I realize that the decision to have surgery is HUGE and I do look at it as a last resort. I haven't exhausted all options yet. I have yet to try 6MP or Remicade...
Someone told me that Remicade has been linked to Lymphoma. I know that the risk is small, but it's still scary. When you're on Remicade, you continue to take all of your other meds?...
I'm 5 months pregnant and have been flaring since day 1. I've been using the Rowasa enemas as well as the hydrocortisone and the cortifoam. I was on prednisone for a while, but tapered off (I just...
So, it wasn't until I started using this site that I realized just how serious our disease is. My question is if everyone is suffering so much, why don't we all just have the surgery??? I realize...
YES! Prednisone gave me all kinds of joint issues. I always notice that my fingers start hurting first. Then my arms and legs and so on . . . Even my skin hurts sometimes. I can just touch it and it...
I am 5 months pregnant and have been flaring since December. I was hospitalized in Jan and in Feb. During my Feb stay, I was 6 weeks pregnant and I was on 300mg of IV steroid for 9 days! It was the...
I don't feel like anyone understands what I go through . . . . especially my husband. He's one of those people who is never sick and could set a watch to his "bathroom trips." I hate always being the...
I must warn you, this post may be a little graphic . . . . I was diagnosed with UC in Jan 2007. Since then, I've had 3 scopes and all the biopsies showed that I did indeed have UC. My only concern is...
I'm pregnant right now so I am limited to what drugs I can use, but I want to think ahead. Can anyone please give me some insight on 6MP. I've never really been able to get my UC under control so my...
I've used the hydrocortisone (steroid) enemas more than the foam. It seems like the foam doesn't get up as far. With the liquid enemas, it seems like so much more "medicine" gets in there. Plus, the...
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[color=red>Well,] [b]Also, I just started using the proctofoam. It doesn't seem like much gets "up" there. Has anyone had any luck with this? It's easier to use during the day than the enemas. It...
Well, if nothing else, it's comforting to know that someone else is going through the same thing I am. I can't believe how terrible I feel. I hate how fat my face is. I look like I gained 20lbs. in a...
Well, I was discharged from the hospital today. I was on IV steroids (300mg a day) for 9 days due a bad flare that I couldn't get under control. My body feels like it has been through a war. My...
[color=blue>I] 4 weeks). This news is very very welcomed; however, it comes during the worst flare that I have had since being diagnosed a year ago. I've already been hospitalized (3 weeks ago) and...
I'm currently in the middle of a bad flare, but I'm also trying to get pregnant. My husband and I really want to have our 2nd child, but I'm wondering if it's irresponsible of me to keep trying while...
-Nicole...