I agree with Sue - you can ALWAYS go back to a perm end ileo if needed. But I would NEVER go straight for a bag. I only had my bag for 6 weeks - it was the absolute worst 6 weeks of my life. I was...
kimberleydg , I am going through the same thing (I am alost 5 months since my takedown)- my abdomen hurts every time I eat. Especially if I eat too much. My entire abdomen is just plain sore. I have...
That happened to me just a few days before my complete obstruction. Hope you are better....
Sue, Will a scope determine a partial obstruction?...
Thanks Ohio, I guess I just don't want to sound like a hypochondriac! I mean I KNOW that I am supposed to have 8-10 bms a day - but I think this is a little excessive. I just hate to have to have...
So, I have been having a lot of trouble the past month or so. I am having over 20 bms per day - just water..yuck. I can't eat much, get nauseated easily and my abdomen is very sore. I have tried...
Good luck with your reversal - I wouldn't worry about the toenail thing. That shouldn't have anything to do with your upcoming surgery....
Thanks for the replies - maybe I will try some applesauce. As far as my diet goes - nothing much there. Honestly, I barely eat anything. Just crackers during the day and a light supper....
I had step one of a two step j pouch July 3 - six weeks later August 19, I had my reversal. Only one complication - a complete obstruction in Sept - it cleared on its own after 4 days with a NG tube...
Yep - the 32 pill prep. I have always wondered why they can't condense them into 5 or 6. I tried the liquid one time - and there is NO WAY I could drink all of that. My last scope I was in the...
Thanks for all the replies. The only prep I have ever done is the pills. But for some reason I just get so nauseated that I keep throwing them up too. But, if I can just keep in mind that it will be...
Do you have to prep for colon surgery????? I think I am dreading that the most....
My pharmacist told me it was $1700. OUCH!!!...
Thanks for all the replies. My GI doc put me in the hospital for 5 days. I am still very sick. Trying to just hang in there......
I saw my GI doc Tuesday. I am now back on flagyl, cipro, 40mg pred along with my regular maintenance meds. I am still no better - I have probably already been 15 times today. Do I call him? Really,...
Has anyone ever had a one-step surgery done?...
I am VERY stubborn - I hade symptoms for 2 years before I ever went to the doctor. Finally, I got soooo sick, REALLY high fever and bleeding, my primary sent me to a GI doc very quickly - had my...
Princescolon, How has the humira worked for you so far?????...
Thanks for the info. I don't think I will try the stomach shots - sounds painful. I am going to try just the thigh area....
So, my last Remi infusion did absolutely nothing to help me. I called my GI doc yesterday - and they made me come right in. Anyway, I am going to start Humira ASAP. I had to go back to the clinic...
I am looking into that now. My GI doc didn't act like it would be a problem with my health insurance to switch me. Remicade is quickly loosing effectiveness with me. But I am going to hold on to the...
All of my MAJOR flares have been in the spring....
I guess mostly, it is my fault because I NEVER talk about my UC. No one around me ever knows that I feel bad - until it is VERY bad. I never complain about anything regarding my UC to my husband. Not...
Well, I feel ALMOST as bad as I did in Feb when I was in the hospital for a week. My GI is out of town - on call guy called me in Cipro and Flagyl because I am running fever. Hope these work. I have...
My GI doc told me the same thing. I HOPE he's right!!!...
Excercise almost always makes me feel better. I try to walk/run as much as possible. Some days I venture off of my street - others I just walk up and down my street b/c I never know when I will have...
You know, I have been in the hospital with 2 really bad flares over the past 2 years - and both times I had really bad thrush in my mouth/throat. I told my doc last time I was in the hospital that...
Do you see a Dr. before the infusion? You could always ask when you get there. Mine won't let me get the infusion even if I have a bad cold........
I don't think they tested me for the antibodies for Remicade, but the did do the test for the Imuran. To make sure that it was working -or to make sure that I was taking enough. Not sure which....
I have not found that food has anything to do with my symptoms. Unless I am horribly sick, I eat whatever I want. I do always try to eat healthy though. My GI doc says diet has nothing to do with...
I know, my first change will be to shorten the intervals. That seems the easiest to try first....
So, I was in the hospital in February with a terrible flare. Had a checkup this morning with my GI. While I am MUCH better than when I was in the hospital - I still am a long way from being in...
Yes, unfortunately that is normal. I had a CT scan done recently while I was in the hospital. I was up ALL night that night running to the bathroom. Immodium doesn't help me in that type of...
I have ALWAYS used the pills - I just can't keep the liquid down. And I will even throw the pills up too - at the end. But my doc has no problem giving them to me....
I guess we all have that limit that we reach when we just give up hope on any medication and go for the surgery. I know that this is crazy, but I honestly wish that the surgery would be an emergency...
Has anyone had any relief switching from Remicade to Humira? I have been in a bad flare for about 6 weeks - in the hospital for a week in Feb. Remicade is just not working anymore. Dr. is starting to...
I'm new here, but I have had pancolitis since 5/05. I wanted to respond to your message about your son. I am also on Remicade. It has always worked well for me. Then a couple of months ago the...