ACT" stands for A-Adriamycin, C-Cytoxan, T-Taxol. They are chemo therapy drugs used for certain types of BC. The AC is given separately normally for 4-6 weeks and then the Taxol is given for another...
Thanks for your reply. I am now on my second round of Taxol. So far, little easier than the AC. AC was tough. Main complaint is the "flu like symptoms" for a few days after (muscle aches - feels like...
Thank you for your insight. I hope things continue the way they are going. Will ask doctor at next round what can be done for this cough thing. Very uncomfortable this time. Feeling better today....
Hi everyone, I have a quick question that maybe someone could help me with. I had a lumpectomy and full axcillary disecction in July. I have finished three rounds of AC and will have one more and...
Hi I have UC and am starting chemo for breast cancer. I will be getting the flu vaccine but not the other one. All chemo patients in this facility are vaccinated because it is not a "live virus". If...
Hi, I was diagnosed with the disease during my pregnanacy and experienced a flare. I used local remedies like the enemas. They seemed to hold it somewhat under control. I know for a fact changing...
Thank you for the information. The doc said every infusion I will get neulasta. I will keep an eye on the bllodwork and see if it is really going to be always needed. Chris...
hello I am starting 8 rounds of chemo in 2 weeks. I was wondering if you have had the ACT mixture (4 of AC and 4 of T) and what advice you can give regarding side effects, etc. I understand everyone...
Hi Want to know if anyone here has had chemo with their UC? Did it make it worse, better or remain the same? thanks C...
Hi. I know that Shire Pharma., the company for Lialda is very interested in promoting their "patient assistance" program and have been very active in changing their advertising to show consumers and...
I have been on it since about April. I feel that same about the BM's. Amazing feeling. The closest to feeling "normal" (before UC) I have no negative side effects as of now but who knows what havoc...
Thanks Mitzo, Like you I was diagnosed after quitting smoking. The Entocort really works for me (I believe) and has kept me in remission considering the stress I have been under lately (diagnosed...
Hi all, I have a question. Has anyone here been on Entocort for an extended amount of time (more than 3 months)? Can't find info on line about length of time use, possible issues from continued use...
I am sorry this happened to you. Happened to me alot. I use Librax. It is an antispasmatic and it helps control your anxiety. I love it. I believed it helped push me into remission. Good luck with...
Hi all, Thanks for reading this. I have surgery planned for Tuesday at Sloan in NY. I am having a lumpectomy and ancillary disection (complete). I had the PET scan today and the doctor will go over...
Hi I am now on 75mg of 6MP. I too had symptoms of fatigue and even my hair falling out (more than normal) but after a while the symptoms faded away and improved. When I first went on it, 50mg., same...
Hi All, I was wondering if anyone here has ended up having BC and UC at the same time. If so, can you share your experience with me. I am facing this challenge now... have met with one surgeon and...
Dear Ellen Thank you so much for your offer. I would love to get in touch with some women who have gone through this. I am going to see Dr. Elisa Port. I wanted to know for my family if there are any...
Hello again, I wrote earlier asking for help with my diagnosis of BC (infiltrating ductal carcinoma, Ductal Carcinoma in-situ in my breast as well as metastatic adnocarcinoma in my lymph) The good...
Hi all, I have had UC for 8 years. I just was diagnosed with an aggressive form of breast cancer that has spread to my lymph nodes. Has anyone out there found any type of correlation between UC and...
Thank you all for taking the time to write back. I have read the post about tears and sent it to a few people in my family. I am not concerned about the pain I am concerned about the fact because of...
Hi I posted a week ago about the microcalcifications and my Ulcerative Colitis and having a biopsy. I got the news today that the microcalcifications are cancer and it is also in 2 underarm lymph...
Hi to those of you who responded. My biopsy was yesterday. It was very bearable I think in part because people knew I was freightened. The stereotactic was fine, the additional pictures OWWW, but the...
Hi all, I am not normally on your post page... my home has been the Ulcerative Colitis page. I just heard from the doctor that I have to go for a stereotactic breast biopsy of my left breast because...
I love my Mirena!!! Best thing I ever did. Made my periods next to nothing and am very happy with the great sex I have without the side effects the pill gave me. I am sure you know every one is...
Hi Yes.. I was also diagnosed with oste openia at the age of 35. The cause was said to be my use of Prednisone. Some people, my GI said, have a more severe reaction than others (ie. the oste openia)...
Thanks for your comments. I do get bloodwork regularly. Last one was a couple of weeks ago. Everything was normal except my hemoglobin level was low (10.3) which is actually good for me (I normally...
Hi All, Need a little advice. I have been on 6MP 50 mg for the past two years. The doctor wanted me to increase to 75 mg to see if it will help in the relief of issues of flares etc. I started the 75...
Hi all, Question... I have been on and off pred for years. Every time I come off of pred. I have what I call a "rebound" effect with my asthma (ie. I start having difficulty with my breathing and...
Hi I think the best thing to do is just be more aware of your self for the next couple of weeks. If anything seems strange, if you feel a little odd, if you get red bumps on your trunk or have a...
I have flares like everyone else and seem to crave carrots and spinich during these times. When I am finally able to eat, I use fresh spinich and garlic mixed with roasted baby carrots. It makes a...
I am sorry about your sores. I am from the UC forum, but I had those sores so terrible when I was put in the hospital once for the flare and sores (could not eat/talk etc) I am also a teacher. The...
[color=green>Hi, cagio...
I am sorry that he said that to you. You should Whallop him. I did get pregnant with my son and during that pregnanacy was was the best I had felt for a long time. My UC went into remission, I was...
Hi, I am a teacher with UC and want to tell you to listen to the other post about the 504 plan making the accomodation for her to leave the room if necessary. This plan will work... is legally...
Thanks for your time Sherry.... it does seem like a close guarded secret. I guess i will just wait....
I am trying to get information. I will be seeing my GI on Monday but I received a copy of my blood levels today. Cagio ...
[color=blue>Hi cagio ...
[color=blue>Hello, [color=#0000ff>
[color=green>Was] [b][color=#008000>But....] all the living I did this past year and hope I will get there again soon. On pred again 50 mg to start. Hope to see some result in the next week....
[color=#008000>I] the risks vs. the benefits. It takes a long time to get the iron levels back but do use the Vitamin C... it does help with absorption....
hI SORRY about YOUR KNEE. MINE ALWAYS GETS INFLAMED BEFORE I FLARE. SOMETIMES ON PRED IT EVEN STAYS INFLAMED. MY DOC SAID THE INFLAMATION IS PART OF THE UC DISEASE. GOOD LUCK CAGIO...
Hi Sorry to hear about your problem but many of us have been there and are there with you now. I have found out for me that staying away from complex carbs. seems to help alot. I am able to absorb...
HI Sorry that you are not sleeping. The only thing that helped me during those times was Lunesta but... who wants to take another pill right. Anyway... I am not Lunesta free. Food definately affects...
Hi I have mini flares too. Some months are better than others. Spoke with my Gyno and he suggested the pill but I am ambivilent because of all the other medications I am on (he also said it is, when...
Hello I started the 6mp about 4 weeks ago. STarting to feel somewhat normal. I am also on 30 mg of prednisone. I had a huge flare and was on 60 mg for about 2 weeks and have been tapering down. I...