Has anyone tried Buttermilk for their disease? Could it be effective orally or as an enema? G...
I also have surgery planned on the 23 of March - feeling apprehensive but I've read lots of good stories on this, so hopefully it should be fine... Can someone who's had surgery recently confirm...
Does everyone here have a problem with coffee? I know its one of those items that does cause problems in people with Ulcerative Colitis, but is there a brand that is more easier on the gut then...
I've not had bleeding for nearly five years, but I've been in a constant flare over that time with around 10 BM a day and really bad urgency. Colonoscopies have always show severe inflammation, but...
Its just an experiment for me to see if it effects my Colitis - I also have a nail infection and Psoriasis which also could benefit from it. G...
With all the recent posts about anti-fungal diets, I just wanted to know if anyone is using Pau d' Arco as a supplement. I've just started a Pau d' Arco based tea which doesn't taste too good but is...
Kim123, How bad were your symptoms before you started the anti-fungal diet? I have experimented with the SCD in the past but ended up losing to much weight - I am not the best in the kitchen and rely...
Suki2008, I am also in the UK and facing surgery too. What are your symptoms like at the moment? I was told to prepare for surgery almost a year and a half ago, since then I've fought tooth and nail...
Has anyone had success with Yeast Free Diets? If so, how long did it take for you to see any improvements? What about Coconut Oil can it help with symptoms? G...
Has anyone actually tried LDN for their Colitis and had positive results. I think we've been here before with other miracle medications like the Adacolumn and Refaximin and both in my case anyway...
I've already asked my GI doctor about LDN and he bluntly refused to give it to me saying, he doesn't believe it can help Ulcerative Colitis. I think you will probably need to speak to a very open...
I've also tried it and although it hasn't helped my Colitis, it has helped the back pain I have from Sacroiliitis. G...
Is it possible for conditions like Sacroiliitis and Ankylosing Spondylitis to disappear after a Colectomy or are they there for life whether the Colitis is in remission or not? G...
Does anyone here think they suffer from Ankylosing Spondylitis? I have an aching, stiff feeling in my lower spine which radiates to my buttocks and thighs, I think its a sign of Ankylosing...
Has anyone here had success with N-Acetyl Glucosamine? I am planning on trying it, but just wanted some input first to see if it is what it says it is... I think it's one of the main ingredients in...
As far as I can remember my IBD nurse did mention that Cyclosporine can cause kidney failure. Has anyone ever tried Cyclosporine and could it be used as long term drug? I thought Cyclosporine was...
I have tried Remicade last year. I had 8 infusions with no effect. As for Humira, I don't think its available to Ulcerative Colitis patients in the UK and as far as I've read, people who don't...
I've actually had two GI Doctors say surgery is my next option and I've seen a Surgeon who has also said that I am a good candidate for a Laproscopic Colectomy and J-Pouch. I also have an appointment...
Colonoscopy results show Pancolitis with severe inflammation all the way round. As for steroids, I have used them extensively over the past 8 years and have noticed that they don't seem to work as...
I have tried Probiotics of all kind - everything from VSL#3, Culturelle, Acidophilus and Ecoli Nissle with no real effect. As for fibre, I know for sure that Psyllium Husk gives me a laxative effect...
Definitely loose diarrhea with moderate cramping. Could these be the symptoms that warrant going into surgery... I have tried mostly all medications from 5-ASA's, immunosuppressants to biologics like...
How would you describe a true flare-up or remission? I am currently floating between both of them in a sort of limbo... I have 10 BM a day with no blood but lots of urgency - would that be described...
Has anybody on this forum read books by Jini Patel Thompson? There is a particular book called "Listen to Your Gut", which I have been interested in for sometime now but it is very expensive. Can...
Can someone please advise me on how effective Predfoam would be in a person with pancolitis who is also unresponsive to oral Prednisone? G...
Paul seems to be having a tough time during his surgery. Is this the case with all surgeries? I am becoming more apprehensive with the prospect of an operation myself, seeing how difficult it could...
Hi Paul, Congratulations for taking a wise decision and having the guts (or not as the case may be) to go through with the surgery... Was the surgery painful? and did you go the laproscopic route?...
Has anyone tried or is thinking of trying a medicine called Rifaximin. I think it's a kind of antibiotic, works well for travellers diarrhea. Its worth a shot... G...
Has anyone here been enrolled for a Interleukin-10 trial? I have heard good things about it and apparently new research has identified it as a possible factor in predisposing people to Ulcerative...
Is the J-Pouch Surgery very painful? I've recently seen the graphic pictures on Marks excellent blog (http://ucstory.wordpress.com/) and all the pipes and tubes coming out of his abdomen doesn't look...
Has anyone on this forum had a One Step J-Pouch procedure done? Can you please tell me the pros and cons of doing so and how ill do you have to be for a One Step to be too risky? (Pouch Failure). G...
I know this thread must have come up before, but I would like to know how good this new LDN drug really is? Has anyone here tried it and is it the miracle drug that everyone says it is? I was...
I've had 10 BM a day for the last 5 years with no blood or mucus but my blood test constantly show inflammation. Oral or rectal medicines have no effect. I think I am in limbo (neither in a flare or...
Can somebody please tell me if a NG Tube is always required during a J-Pouch Surgery? Is there a less painful alternative? G...
Charlotte, What is a NG Tube and does everyone have to have one? G...
To all thoughs who've gone for the cut. How painful is the J Pouch Surgery? I need real honest answers... I have a low threshold of pain and have been seen to faint during a blood test, so I need to...
I've recently tried this formula from a Chinese Herbal Centre, but it had no effect - in fact I felt sharp pains in my liver, so I had to stop it. Chinese Herbal Medicine has been reported to cause...
I am still not convinced about surgery... My GI has been nagging me about this for nearly a year now, after failing most medicines including Remicade and the Adacolumn, he says I have no other...
Who on this forum can tell me the best probiotic to treat urgency related to Colitis? Tried - Culturelle, Digestive Advantage and VSL#3. What else... Thanks, G...
Has anybody used Betaine HCl as a supplement for their colitis? I have read reports of people who think that Colitis and IBS occur as a result of low stomach acid. Is there any truth in this? G...
Does anyone here know where I can buy E Coli Nissle from? My GI said its worth a try, but its not available from their pharmacy and he said I might have to buy it from the internet. G...
Has anyone here heard-of or used Alkaline Phosphatase as a treatment for Ulcerative Colitis? I have been browsing the internet and found that its just as effective as Remicade in inducing remission....
Mudua, what do you mean by it worked? How did you feel before and after. What were your symptoms like? I also wonder whether a lemon fast and an ulcerated colon are a good idea? G...
I think both of these medicines are for high cholesterol, but they also bind and get rid-of bile acids. IBS patients with predominately diarrhea symptoms usually are prescribed them as well. G...
Have you tried something like Questran or Welchol? I think they help, but its really difficult trying to convince your doctor to prescribe them for you. My GI thinks the burning I get is part of the...
Is there anybody on this forum who has Bile Acid Diarrhea as well as their Colitis? I think I might have it, but Doctors don't seem to listen. Please tell me your symptoms and how to best treat it. G...
I have been diagnosed with Iron Deficiency and been given a prescription of Ferrous Glutamate. I have tried this for a couple of days and have very bad diarrhea and cramping. Now what do I do? Iron...
Can anyone suggest a good Anti-Spasmodic, I am currently using Buscopan which is giving me really bad headache and I always seem to feel drowsy. How about natural Anti-Spasmodics? Anyone?... G...
Has anyone tried Apple Pectin as a fibre supplement? I've read that it can heal colonic mucosa and can protect against colon cancer. G...
Me too... I have no pain, no blood, no mucus. I feel pretty much like a normal person apart from the fact that I have 8-10 BM/Day with urgency. G...
Many thanks Dan, for offering your book, however, I live in the UK so it would be difficult. I might just go to Amazon and buy a copy for myself. As for the Primal Defence, it sound like a useful...