Hi All, I've noticed that I seem to experience alot of pain when taking mesalamine enemas, and it tends to increase the frequency of my BMs within the hours after taking. I've also tried Canasa...
I only became lactose intolerant after dxed with UC which sucks because my favorite food is cheese =( Nowadays, if i eat lactose i get gassy and crampy....
Hi Everybody, I'm going on a 2 week vacation to the Philippines and China next week...but I'm in the middle of a flare, and I'm totally freaking out. I don't think it will be under control by then,...
Hi Liz, Your case does seem severe, but alot of us here have gone through what you have at that level or even worse, so you're in the right place =) And I think we've all struggled (or are still...
I tried it -- I was desperate during my last big-time flare a month ago. I was told I'd notice an improvement by the end of the session, but it wasn't so. Cost me $40 plus $60 herbs that didn't work...
I get migrane headaches once in a while. I've never had them before until I started mesalamine (from both ends)....
When I'm flaring pretty bad, it's a huge struggle for me to keep it in. I tend to start counting after putting it in and sometimes I get up to 90 seconds before the agonizing pain goes away and I'm...
You should be taking daily mesalamine enemas along with your daily Asacols. Same medicine, but taken from both ends. It's much more effective for maintenance....
When I'm flaring bad, I get really really tired -- maybe from the stress but maybe just from the difficulty sleeping at night and the general havoc that's going on in our bodies during a severe...
Kiss, The only thing I can really speak to regarding your initial post is that I strongly believe you should find a new doctor. You can definitely find someone you'll be more confident with. It will...
aggiesoft, I'm glad MMS is working for you. I wonder if anyone else has tried it. I found the MMS website to be a little sketchy though -- some of the claims are a little far-fetched, ie. "it kills...
I got diagnosed with c. diff (showed up on a stool test). I was having a terrible "flare up" for two weeks, and my doctor insisted on a stool sample, turns out my symptoms were because of the c....
Hi jblue65, I know I say this on a lot of threads, but make sure to get a stool sample test for pathogens. It could be you've contracted c. diff. It's getting more and more common especially if you...
Geez, what a horrible doctor you have. You really can't change doctors in the UK? And not being able to get the enemas for a week because they have to send a letter....? Can't they use a fax machine...
Have you had a stool test? Flagyl is used to treat c. diff. I've been put on that antibiotic before while waiting for the stool sample to come back and it sucks. It has some pretty harsh (not...
Cigsbeezon, Your explanation of your current symptoms sound similar to my flare ups. Beth75 gave some very good advice for you. I'd just like to add that you will probably be asked to do a stool...
http://healthinsurance.about.com/od/faqs/f/preex.htm...
I took aloe supplements from GNC for a month. Didn't seem to do anything. Tried lots and lots of juiced wheat grass and dried wheat grass in pill form for a month as well, and that didn't seem to...
I get the same sort of feeling when in a flare lying down at night. And I basically do what ucwarrior suggests -- it's a little less miserable that way....
If you were stool/blood-tested and came back negative for parasites/pathogens, given the description of the scope findings, it does sound exactly like what you will see for a UC diagnosis. Congrats...
This sounds exactly like what I went through -- and given your description I'm surprised that they're "unsure" if it's crohns or UC... that's like THE description of UC/Pancolitis... they should at...
I think you gotta trust your doc on this one and since he says not to be concerned, don't worry. Other causes of low RBC are pretty lousy and you might end up psyching yourself out by researching and...
When I started Rowasa I had pretty bad headaches for about a week, then it went away. And then when I had to start taking double-doses of Rowasa per day I got headaches again for a week. And it's...
Beyond the "topical" treatments of Mesalamine, everything is scary. I can't really blame your GI for not wanting to go forward with LDN given his lack of experience and the treatment's relative lack...
Also, I agree with quincy, you should get on some rectal meds while your in this flare. Probably Rowasa (Mesalamine) -- same thing as Asacol, just gets in you the other way. Asacol isn't always so...
Only take Tylenol (acetaminophen) if you NEED a painkiller. Don't take anything else. Advil (ibuprofen) and Aleve (naproxen) WILL be problematic given your UC. I've read that one thing that may bring...
The topic of this thread relates to one of the biggest difficulties I have with this disease...explaining the complexity and the severity to the people close to me. The average person equates GI...
Perhaps try taking some high calorie Ensure's between meals. That's all I can think of. Good luck....
I just started using corenemas for the first time after my flare up peaked. I noticed a significant level of relief the next day, and I'm getting back to normal much faster with them instead of just...
I've only had three severe flareups so far, and they both built up slowly over 3-4 days with increasing D then blood, then 7-10 days of hellish BMs. I haven't noticed any patterns -- ie. there hasn't...
jpouch surgery procedure is more complicated than open heart surgery? seriously!?...
Wow! That's very fortunate. I can't even imagine a flare up without pain. My last flare up I was experience pain that matched and exceeded anything I've ever had, and I've had quite a few sports...
Sounds like it could be UC. But you should probably get (if you haven't already) a stool test for other possible pathogens....
My first colonoscopy, last year when I was 30, was the first time I was "put under" for any procedure. I had always been TERRIFIED of being sedated -- I hate not being in control. And on top of that...
This is very interesting topic for me. My family has a severe history with gall bladder problems. I wonder if something to do with crappy gall bladder genetics caused or triggered my UC......