Hi Ive been on Pentasa for 18 months as a maintenance pill and they have worked great, apart from when i got lazy taking them and within a week was flaring , other than that great . Good luck Kerry...
Northampton, ( the rose of the shires /community/emoticons/tongue.gif ) England...
Well , my maintenance meds ( pentasa ) are certainly working for me . I got a bit lazy a few months ago and for about 2 weeks took them perhaps only once a day instead of twice and i started to flare...
/community/emoticons/yeah.gif Ahh Stereolab , my all time favourite band in the world , ever !!! Got everything they have recorded . Have you seen them live Whitesox? Been into Northern soul for 26...
Northampton , England I went to New York for the first time in May and completely fell in love with the city !...
For me it is my determination that this illness, disease ( i prefer condition ) whatever you want to call it will NOT stop me from living my life fully . It just holds me up sometimes . I know its...
At any first sign of flaring this is what i reach for first and 9 times out of ten it works so...... it isnt nice by any means but you will get used to it and i can do it now with my eyes closed ! (...
Hi CBW . One of the things that really worked for me was Scrambled egg and smoked salmon and i know other people on here have tried it and its suited them . Non farmed Salmon if you can afford it is...
As Colitisowns has said its different for everyone , with me it always takes about 5-6days , although last year i was on Pred for 5 months and they still didnt work . Not that i want to worry you ....
LR im probably being a bit dense but what are Clipper Steroids ? Kerry...
Just to add to this i have been on Pentasa for 12 months and apart from a small blip at the moment it has kept me flare free and anything that does that i love ! Good luck Jacenta Kerry Oops just...
London Red a few positives 1 . At least now you know what you have and it can be dealt with and once under control managed. 2 Once you have had Colitis for 8 years you will have a c-scope every year...
I hope you are feeling a little better by the time you read this . Its quite ironic because ive got the feeling im about to go all through it again after 12 months remission, and for the first time...
Hi I was diagnosed 5 years ago with Proctitis and unfortunately was diagnosed with Pancolitis 12 months ago . Not sure how common this is but thats what happened to me . Lets hope you are lucky and...
Northampton , England . Happy St Georges Day !!...
Hi charmin I had 4 weeks off after hospital stay and boy did i need it . im a chef so have a very physical job but you just feel soooo whacked out , Your body will have lost nutrients and you really...
London Red it is totally normal to go twice a day , stop worrying about it. i really hope you never have a major flare , at the worst time for me i went 32 times in one day ! anything less than 20...
Hi im from England ( northampton) I was diagnosed comingup 5 years ago with Proctitis, few flares but on the whole manageable until Jan 07 , problems started , went to my doctor who i had had a lot...
Hi Well , you put me to shame , i have been in remission since July and have carried on exactly as before i was flaring , diet wise that is. I adore chinese food and red wine and still have a take...
Sounds exactly like me when i came off it after 3 months. Quite achey, my knees really hurt and back , and still felt tired . All lasted about 6 weeks and then gradually started to really feel normal...
Im in freezing England , its all frosty and lovely . Im very lucky in that i get a whole month off work so am really relaxed and ready for christmas day. Going to the pantomime on the 23rd at a...
Im gonna suggest the only thing that didnt seem to cripple me when i was flaring and that was Smoked salmon and scrambled egg . nice , light and really tasty . good luck...
Cant really add to any advice but reading really reminds me of the worst part of my flare . i was going every 20 minutes , and im not exaggerating, all through the night for weeks and only dozing...
Not sure about anyone else but everytime i go the loo its different ! Ive been in remission since June and have days of the most perfectly formed stools and then it can be bright yellow and like...
Beth , i was very lucky and only got mild Moonface after being on Pred for about 3-4 weeks ( i think, those weeks are a bit of a blur now ) One thing im sure helped was adding NO salt to anything i...
Spot on Damo, i refuse to call this an illness , i prefer 'condition' . During my last ( and worst flare ) one of my best friends was dying of lung cancer ,she died on her 47th birthday . SHE was...
Im like Tab, was diagnosed with IBS 20 years ago, and the only time it gave me trouble was eating certain foods, cheese and sweetcorn , lob it down the loo and cut out the middle man lol . Found it...
Sorry butterfly was wafflling on your thread , I found Smoked salmon and scrambled eggs went down really well. mind you so did Chinese food and red wine but i paid dearly for that !! lol. Tab...
Hi Teresa Like you i have Pancolitis, and this forum has been an absolute godsend to me , just take a bit of time and look through some threads i can assure you , you will find all the answers on...
Reading your story was like reading how i have been this year , although luckily my flare lasted 6 months and touch wood i feel great now . Felt just like you on Pred, first of all i thought it was...
I was started on 40 mgs and started to taper after being on it for about 8 weeks in total , i had a 7 day hospital stay during that time and was on massive amounts of steroids by injection . hope...
I am the most unstressed , laid back , relaxed person i know , and i have flares , and long horrible ones at that . Id love to know WHY it all kicks off after a long remission time. Tab...
Ok , can anyone tell me the difference between Colitis and Ulcerative Colitis i didnt know there were two seperate conditions, i went from Proctitis to Pancolitis , seems i missed out the Colitis bit...
Me neither, went from Proctitis to Pancolitis in 4 years ....
Just sing - loudly !! Ive been with my husband 20 years and apart from the odd slip up we have never passed wind in front of each other , weird i know but i think its kind of sweet , anyway that was...
Hi icanrace I was like you , just wanted off as soon as possible, i had hardly any side effects ( luckily) and was in full remission. I , rightly or wrongly tapered down 5mg every 5 days , i...
Congratulations !! I think i rang more people up to tell them id gone 'properly' than when my husband proposed !!! ( think i was more excited to tell the truth lol ) long may you continue Tab x...
I lost 28lbs when i was flaring . i lost 11lbs in 6 days resulting in me going into hospital, i had some jealous mates who were trying to lose weight, until they saw how awful i looked ! how anyone...
hi mama d I take 500g four times a day - yours does seem quite high but hey if it works ... are you flaring or are these all maintenance ? Tab...
Hi, I found i could eat smoked salmon and scrambled eggs really easily . nice and light, easy to cook ,and nutritious. I have recommended it to a few on here and they all found it good to eat during...
I have minor to moderate inflammation in my Sigmoid Colon x 2, and on the other side a little bit. However, the biopsies have come back showing a certain thing that is always present in Chrohn's...
6 months - going loo20+times a day, anaemic, calcium defiency, lost30 lbs , hosptial ,blah blah blah you all know the story - up until then only a couple of weeks and 5 days of pred would sort me out...
Hi London Red Firstly you need to try to calm down , stress will only make things worse ! You have come to the best place with this website , we have ALL been through what you are going through some...
Im totally ok now after long flare this year but i have nowhere near the appetite i used to have and get full really quickly, everyone used to be amazed how much i could put way for a small girly !!...
Here's a weird thing - i had a major flare earlier this year and it suddenly dawned on me one day that i hardly ever passed wind !! As soon as i was better back to normal , strange old thing this Uc...
39 Northampton England !!...
During my worse flare , the first six months of this year , one of my best friends was dying of Lung Cancer, ( she died in april , way too young) THAT was scary . So no, after seeing her die the way...
It certainly will ( in remission since june and LOVING it LOL ) Tab...
Thanks again for all the replies,l I wouldnt say im exhausted, im still working , keeping on top of the house ( well most of the time, if i cant be bothered , i sit and read my book lol ) and...
So its not me being a weakling then ! I live my life pretty fully but just always have this lethargic edge to it . i do need to get back into some form of exercise . Thanks for your replies , as ever...