Thank you all for the information. I hope I wouldn't have to try Remi first, but I guess I should be thankful I have decent insurance and a good support system. Have a great weekend. Jen...
I'm considering Humira. I am 38 y/o female in misery. I've been flaring off and on for a year and a half or so. I've had UC for 11 years. I take Imuran, Cortifoam, and am on Pred most of the time...
I took 150 mg Imuran and 5 mg Pred throughout my pregnancy. My GI Dr at the time showed me several studies that showed a comparison of women who had never been on Imuran vs. those who had been on it...
I didn't have any success with Entocort, but I hope it works for you. It was really expensive, and was much less effective than Pred for me, so I switched back to Pred. As we all know, what works for...
I had a bunch of hair loss from Asacol. It stopped as soon as I stopped taking it. It was weird because it had never done that to me before and I have taken it lots of times in the 10 years I have...
I also take VSL#3. I think it helps the symtoms a bit. It is true, it is not cheap! I tried to get it through my insurance, but they wouldn't go for it even when the Dr called it in to the pharmacy....
Great topic... I'm thankful for God & my church Family: husband & 2 awesome sons getting to stay home with my kids friends my home Happy Thanksgiving everyone! Jen...
mare jenjim...
I never felt like Asacol helped me either. I quit it cold turkey. Jen...
I take the usual abortive medication for migraines which currently for me is Axert. There are specific direction on taking these, like you have to wait two hours to repeat the dose, if the first pill...
I have seen improvement with the use of nicotine patches. I am not currently using them since I am on Pred. I'll save the patches for when I am off of Pred. I started to see my first signs and...
Hi everyone, after my kiddos had a stomach flu last week my flare seemed to worsen a lot. Who knows, maybe it was coincidence. Anyway, the blood was awful, so GI dr started me on Pred (4th time this...
Hi Sunshine, How is your daughter? I've been thinking about her and I hope you were able to get her in to the Dr last week like you said you were going to. Have a wonderful week. God Bless. Jen...
I've taken it several times over about 8 years. It's used sub-lingual, right? That was the way I got the most effectiveness from it. I thought it worked fine to get through the bad abdominal pain,...
I'm guessing that you got an extra bad sample of what flares are like since you had c-diff with it. I hope you can get on the right meds and not have another flare for a really long time, but if you...
I drink a cup or two each morning, I think I'd be a zombie without it because of the drugs Dr (not GI) has me on that I take at night but still has effects in he a.m. Coffee doesn't give me diarrhea,...
I've been on Imuran for too long, I guess about 8 years. The dose has varied, from 50mg (I lowed it, not Dr) to the presribed 150mg. No matter the dose, I seem to get random skin infections while on...
It sounds like you have had your worries put to rest, YEAH! I BF my son on Imuran for 2 1/2 years; I didn't need Asacol at the time. I thought of one other option, I didn't do it myself, but I...
Oh, I'm so, so sorry you are going through this worry. I will pray for her and I really hope it's not too serious (not IBD). I know how silly this is, but I feel like I know you from all of the kind...
When I had c diff I felt awful; totally wiped out, stomach cramps and lots of diarrhea. I had been on antibiotics for a skin infection and the urgent care doc assured me the dose wouldn't affect my...
I've taken it for quite a while (unfortunately the Drs aren't sure what's wrong with my lower back) and have never been told there is a problem, nor have I experienced any problems combing these two...
My son is 5 and he is fine developmentally. I was on Imuran, 150mg and 5mg Pred throughout pregnancy. This was the consensus between the GI Dr and the perinatologist. I also breastfed for over 2...
Maybe you should ask your pharmacist. I went on vacation to Florida this summer via 3 flights and asked my pharmacist if I should carry Canasa on or if it would be OK to pack them, knowing it might...
I've taken Valtrex in a flare several times. It helped the sores. It didn't make the flare any worse. I recently changed Drs and found out the former Dr was giving a high dose of Valtrex, 1 gram 3...
My Dr puts "use as directed" on the label and gives me 20mg, 10mg, and 5mg. If I ask, because (thankfully) it's been a while since I've been on it he says to taper by 2.5mg per week. Usually we use...
My DO recently did a bunch of random blood work on me. It showed a vit D deficiency. I wasn't surprised since I live in the rainy NW. He suggested I take 2,000IU vit D a day. I've been on calcium...
I took it for a tubal pregnancy, two injections, I don't know the doses. I wasn't flaring at the time. I didn't have any side effects. Sorry I couldn't help more. Jen...
WishfulMa, To answer your question, I have about 15 inches affected, so the Dr calls it proctitis. As far as Imuran during pregnancy, I can only speak about my experience, which was one pregnancy at...
I agree with the above, if I can offer a little help to someone it makes me feel a bit better, then maybe some good can come from this horrible disease. Brandon is right! Pat, pat you guys! Jen...
I'm with Brandon. I order it on their website, get it second day air on ice and the shipping is included. I use the capsules, I can't stand to mix and drink the stuff. Jen...
Glad to hear some of us are having an OK day. I am having pain, but hubby went to pick up some Rxs tonight and came home and noticed that there wasn't a co-pay on them (it would usually be about $130...
Sorry to hear about the struggles you are having. I was in a similar situation six years ago. I was doing IVF cycles (tube problems; had them cauterized shut) and the first cycle not much happened....
I am so sorry you aren't doing well. I had c diff earlier this year. It really sucks. I was on a really, really high dose of Flagyl. You mentioned the "supposed" c diff infection. Was it confirmed by...
My UC showed up after I quit smoking a pack a day for about 10 years. I just started using the patch (a few months ago) and it helps. I am currently using the 14mg. Jen...
Hello everyone. I was wondering if anyone has tried aloe vera gel orally to help with UC. I was on a health food store this weekend and the lady working there suggested I try it for UC. She said I...
Hi you guys, I was away at the beach for the weekend. I was so glad to see your replies when I got home! I actually dreamt about the Dr's appt I have tomorrow that started this whole post. I have no...
Sunshineonmyface- I saw on another page you wrote you are a Christian, I am too. He is the best comfort for us. Thanks so much for the suggestions. I may have the food sensitivity test done. I hear...
I know, I know, no ibuprofen, naughty me. But I have been in so much pain and tylenol does absolutely nothing, so I figure a little bleeding is what I'll have to deal with. I'm open to other...
I see my GI Dr on Monday and I want to ask for some food allergy/sensitivity tests to be done. He has always said that this disease has nothing to do with what you eat, but that I may be lactose...
I take VSL#3 (2 capsules a day) and 1 DA a day. I think I saw improvement with the VSL#3, but maybe it was coincidence, it's so hard to tell between food allergies/sensitivities, the disease, other...
I took Imuran and Pred throughout my pregnancy, and I breastfed my son. I was followed by a perinatologist & a GI Dr. My son was 5 weeks premature (water broke- who knows why) but the Pred made his...
It sounds really rough, no rice stuff or gluten. I use all rice stuff when I try to be gluten free. It's an added challenge to cook for kids/husband and separate food for me! I already eat no dairy....
I'm interested in this diet. What is the difference between it and the gluten free diet? Is it like the gluten free diet, with additional restrictions? I'l look at the website. Thanks for the help....
I have improvement with the patch. I didn't feel like I was sick enough for Remicade, which the Dr was pushing, so I suggested the patch. The GI Dr said to use the 21mg patch. I smoked a pack a day...
I had my first flare within a year of quitting a pack a day habit. Then was diagnosed with UC a few months later. I only recently started using the patch (21mg; the strongest ones) to get rid of this...
All I can really add is that Dr Abreau was my GI Dr in Southern CA from 2000-2004 and I thought she did a great job. I thought she listened and she got me through my pregnancy. She left and went to...
I also have ulcerative proctitis. I got pregnant (via IVF) five years after the dx. I was on 5mg Pred & 150mg Imuran throughout the pregnancy to keep things from starting up. I had not had too many...
I always just tell the Dr that I want to be COMPLETELY out, and for all 7 or so of my c-scopes (4 different Drs in 3 different states) they have given me enough drugs that I don't remember anything....
I think you should definitely try to get in to a Dr (is it a GI Dr you have an appt with?) ASAP. It sounds like you are miserable and maybe that wasn't clear when you spoke to the scheduling person....
Just wanted to ad one more thought. I'm not sure on getting C diff in or out of the hospital (I was out), but I would second the person who said that once you get it, it can take a while to get rid...