Thanks for the advice! I'll look into parents choiceand balmex for sure. Barier cream... I wish someone told me that! I'll be sure to apply before from now on. Thanks!! Yeah it does kind of feel like...
Hey guys, I haven't posted here for a while, but it has been one hell of a year. I had a total colectomy in february. I left it too late and had to have emergency surgery, as I was pretty much dying....
My avergae for last 6 months is probably about 15 times a day. maybe 6-10 on good days and can be over 30 on bad days. I don't use immodium very often, as they make my gut worse after taking them....
I think your pain threshold doesn't really work quite that way. I'd say that 2 people, one with normal pain threshold and one with high pain threshhold would both feel the symptoms equally, but the...
Firstly good luck with coming of the prednisalone! I finally got off it a week ago... and yeah, I have had killer headaches for the last 2 weeks, proper brain feeling like its about to burst out of...
Thanks for the advice. as far as meds goes: I've been ill for 3 years now, but only had it properly diagnosed about 5 months ago. I was on steroids (prednisalone max 40mg / day) from diagnosis until...
Mainly internal, except I think they become exteral during BM's temporarly. they hurt! especially as I am havving 20 odd BM's a day right now. thanks...
Yeah, I know, not a very nice topic, but one that I am pretty sure is effecting me a lot right now, and has been for at least a month now. any tips or advice for solving this embarassing problem?...
Christine, thats what i wanted to hear... fingers crossed thats how it goes for me, I'm pretty sure that the blood is subsiding a bit even tho I'm reducing pred... lets hope that a lack of urgency...
Well I have been flaring for last 6 months, and am close to getting surgery as a result. symptoms have been for from consistant, although have been consistantly bad, just switch from pain, to blood...
Thats the thing... normally when I step down steroids, I notice more blood etc. but not so uch this time, I suspect that may be due to the 6MP I have ben taking for a few months starting to kick...
Title pretty much says it all... What effect did 6MP have on you when it started to work? I have a feeling that they may be kicking in a bit, but I am also reducing my steroid dosage right now, so it...
Hey, I have been on varying dosages of prednisalone for the last 4 and a half months. But I am kene to get off them! this week I steped down from 10mg to 5mg and I was wondering if anyone else had...
I still eat a lot... you can only imagine how much I poo! It is ridiculous!...
Haha, thanks guys, good knowledge! I'm finding that eating nothing but rice makes my BM's very very watery... I may add turmeric if I keep going with this, but to be honest, after only a few days I...
This was a serious question btw... well kind of!...
OHHHH man, some of these suggestions are making me drool! Top of my list has to be steak... oh yeah, sooo good. and it doesn't seem to bother my gut at all, even tho I like it bloody as hell! snacks...
Oh oh, the dreaded house of POOOOO!...
I have to say that the effect on my fatigue wasn't all that great... you have to remember that if you are anything like me, your body is working overtime to fight colitis (even if it is fighting for...
I was, and still am if I don't take iron pills. I don't think it is really anything to worry about as long as your are treating it, just keep popping those pills and be amazed by your poo when it...
So I thought I would post up a light hearted topic for everyone to discus and hopefully entertain... How come, even tho for last 3 days I have eaten nothing but plain boiled white rice... my poo is...
Thanks for the replies. I knew that the answers would vary, as everyone reacts differently to drugs. Its just that I have a meeting with a surgeon later today, and I wanted to know time scale to give...
Hello, I know that 6mp (like azathioprine) takes a while before it starts to kick in and have an effect, but I was just wondering how long it took to work for those who are using it, and if it very...
hopefully that will do the trick. It should at least be good enough. Put it this way, I had a colonoscopy without any prep at all as it was a kind of last minute emergency one cos I was in pretty bad...
Very Interesting! I actually live in Einburgh, and my specialist (Prof Satsangi - a great guy!) works with the university research team. I'm going to get in touch and see if I can volunteer my...
Well, I'm on the last line of meds before surgery, so trying every option avaliable to me, and one was to go and see an alternative medicine guru dude. Name Jan De Vries (google him). Anyway, other...
Thanks palo. Thats interesting to hear, I suspect that it is to do with regional NHS budgets (since remicade is an expensive drug) I'm up in Edinburgh, and although they will do repeat infusions for...
If I decided to pay for private health insurance then remicade may be an option, but I doubt that I could sight up for medical insurance when I have an existing condition. Ah well, mussen't grummble,...
Remicade isn't offered for long term to people with UC here in UK on the NHS. They will administer one infusion only, with the aim to help either 6mp or azathioprine start working. Guess thats the...
Yeah, Intollerance to drugs is a real pain, and because it takes a while to rear its ugly head sometimes, it can be very depressing, as you do tend to pin your hopes on each drug you try. This is the...
Well, The night after writting this post, all hell broke loose. I woke with sever abdominal pain, started to throw up had a temperature and shakes, sore joints, as well as normal bowel issues. and it...
Thanks for the warning. I'm going to see my specialist tomorrow monring anyway, so will discuss with him....
I have been on azathioprine for about a month now (2 weeks at 50mg, 1 at 100mg and last week went up to 150mg which is the right dosage for me). I was warned that at first I may have side effects...
I definately agree with all those who say you have to keep your spirits high. Mind over matter! If you let your mood slump, everything else follows!...
I have been reading through a lot of posts here while stuck in hospital on drips and stuff, and although i think that the emotional support that everyone gves each other is fantastic, I also think...
Thanks for all the advice and kind words. Some background info on me. I am 25 years old (had UC since 22 although only confirmed a few months ago). I also run my own business, and yes, keeping that...
Hey, Well basically I have been flaring for 4-5 months now, and am actually typing this from hospital where I am on a steroid drip. I have tried to forms of 5ASA drugs (asacol and mezavant) ans...
An interesting read. Could lead to different treatment methds in the future. http://news.bbc.co.uk/1/hi/health/7679347.stm And maybe it will also lead to similar discoveries for people with Ucerative...
I think the trick is that you only use a very very dilute solution. have a read of this artical, although this one does not refer to colitis, it does go into why it is believed that Hydrogen peroxide...
Has anyone tried taking a diluted hydrogen peroxide solution? I have read several reports of it healing people from Colitis when taken with a few other natural supplements. any thoughts?...
Hey, I was just wondering if anyone has had any results from any form of alternative medicine? Either to help gain remmision from an average state, or to help control a flare up. Thanks, Keith...
Thanks for all the advice, I'll looking into everything you are suggesting....
Yeah, I have been wanting to kind of settle down a bit more for a while now. I am moving to a new place in Edinburgh (Scotland) within a month, and although I will still have to travel with work, I...
Thanks guys, madabs, you are right, that is exactly how I am thinking, I know that it is a life long condition, but I have not really accepted this yet, sometimes I do, othertimes I don't. basically...
The reason I am not on ant meds, is because for the last 2 years I have been traveling the glob a lot (mainly due to work) and had doctors that um and ah about my case. for first year I was told it...
Hello everyone, I've had what is suspected to be UC (Still not been confirmed even tho I have been suffering for 2 and a half years... I know, rubbish!) I am not on any medication, but have been...