I had a similar response to your daughter on remicade at 5 mg (4 infusions) and thought, along with my doctor that it was not really working...I did not want surgery and refused to give up hope on...
Kazygirl, Your post made my heart break for you. I am just a few years older than you and have also gone through terrible flares over the past 3 years that I've been diagnosed. One of which put me in...
Michelle, Just a note on how you're digesting all this information about your health in such a short period of time...you're doing a great job with it. I know it can be scary but it sounds like you...
Hey there, It really sounds like the Lialda isn't working...so maybe you want to consider talking with your doctor about not taking it and moving onto another course of drug thereapy. I too was on...
to give up all hope. I am completely symptom free and even forget I have colitis. I'm on no other medication and only get an infusion every 8 weeks. I am taking probiotics and think that is a good...
Whenever I was in a bad flare, my joints would also get very stiff and sore, so much so that it was difficult to get up off the floor after playing with my kids and was tedious to climb steps. Each...
Glad to hear that your treatment is doing well for you and I think what is important to share here is that Remicade isn't always and immediate fix if it does indeed work. My healing on Remicade was...
Jackie, Here are a couple sites that I found very helpful when contemplating j pouch surgery. One is a video journal on youtube that a young man created after having the surgery. I found another very...
Jackie, I was in the exact same position you were just 2 months ago and had taken Remicade at 5 mg for several months with alomost no positive effect. As a matter of fact, I was the worst I'd ever...
my Remicade infusions and asked if there was anyother dose I could try..."just for a laugh," I told him. He said I was on 5 mg and could try 10 mg, though he doubted it would do anything because the...
Katrina, I was just reading how you need to be careful when taking antibiotics with UC. The antibiotics can kill both the good and bad bacteria in your intestines and when the good are killed off,...
BBC, I ran a half marathon while on MP6 and Lialda and still had some mild signs of a flare with a little bleeding and actually found that when I stopped running, my flare got worse. I think...
cigsbeezon, I wish that someone had just explained the symptoms I would be experiencing during a flare so I could communicate effectively with my doctors to be medicated properly. I am giving you a...
Hey Toughkicker, As I sit here watching the Olympics myself and read all these threads, I'm writing to encourage you to follow your dream. Don't let this disease conquer you or your desires or life....
What is Bee Propolis! Do you know of it being helpful for Ulcerative Colitis? [/quote]...
Hi there, I don't know how long you've had Ulcerative Colitis for, but I went a long time with symptoms like yours while on mesalamine when first diagnosed. I wish someone had told me that Mesalamine...
The basics of the book are that your body is a self healing organism given you give it what it needs...namely, proper diet, rest, positive energy and thoughts, excercise, etc.... The diet seems to...
First of all, thank you to everyone in this community who honestly shares their thoughts, experiences, and feelings so openly. I just found this site last week and it has been like a Godsend...and...
Erin, I have the same problems when I drop below 10 mgs prednisone, so I wish you the best and will be thinking of you! I want to clarify something I said in my last post about remicade having no...
Jon, I have had 3 infusions of Remicade and wasn't sure if it was working until I completely tapered off of the prednisone. Unfortunately, when I did, it showed that the remicade wasn't a fix for me....
Whenever I'm having a very severe flare...one that might lead me to the hospital if I don't hop on the prednisone, I get terrible arthritis in my joints. The first time it happened it was my...
Your symptoms all sound like what I have when I'm in the midst of a colitis flare...pea sized, mucousy, bloody terds and all. Talk with a good gastro guy....
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