I just had my last surgery for removal in Boston at Mass General Hospital. I highly suggest Dr. Hodin. He does surgery but I think see regular patients as well. If not I'm sure he can put you in...
Thanks! I will bring this up with my surgeon. Right now I have two pains pills they have given me, hyrdromorphone and oxycodone. They both seem to help to deal with pain until I'm actually in the...
My surgeon being in Boston really sucks be he is awesome at keeping in contact with me. I spoke with him yesterday explaining the intensity of the spasms and bathroom frequency. He asked me to go to...
Thanks Marianne. The spasms are horrible and the surgeon situation sucks too. I had my 3rd surgery in Boston. At the time of my first two I lived close by. Between the 2nd and 3rd though I moved to...
I had my reversal last Thursday and have been home a couple days now. Things are really crazy!! Constantly running to bathroom and having major pain while going. Did you experience this? Feels like...
I added my meds to the bottom so you guys can see what else im on. i have been experiencing a flare for 7 weeks now, was admitted last monday, got out yesterday. lost 30 pounds over the 7 week...
hello, i recently was in the hospital, actually got out yesterday. i have a c-diff infection. i was just wondering if anyone else has gone through this and if they have any recommendations for...
Thanks Clicky....
A game plan has been made between me and my doctors. Good news is that the flare up is more under control then it was. Bad news is that I'm a pretty high dose of the steroids that will take me a...
Thanks for the responses guys, I appreciate it very much. I found out today that I have a C- Diff infection. So they have put me on Flagyl for it. Basically the game plan right now is to get control...
I'm considering having the J Pouch surgery. Just looking for stories from people that have had it. How was the actual surgery and the recovery time? How long would say the whole process of the...
Thanks festeris, I'm still open on what to do. Right now though I'm leaning towards surgery. The ten mark has hit me and the timing for me couldn't be any better as far having time to recover and so...
My last visit to the G.I. was this morning, he admitted me to the hospital after the visit. My last colonscopy was August of 2009, it was fine. No signs of anything, just the every 2 year routine...
Sorry, I was diagnosed March of 2000 at the age of 16. I have been in out of remission since then, but the last two years I have been flare up free until 6 weeks ago. Over that last six weeks I have...
This flare up landed me in my own room with a lovely view and a bed that weighs you on the spot. This last flare up started 6 weeks ago, 35 pounds of weight loss, 80 mg of prednisone that hasn't done...
I started having my first flare up in two years 10 days ago. Life sucks. I have lost 15 pounds, I have been using the bathroom 8-10 times daily. Bloody stool and all the pains that go with it. I...
I have been off predinisone since June. Before that I was mostly on it since 2000. Ranging from 50 mg to I would say 10 being the lowest, then ususally I would flare then increase the prednisone...
I was diagnosed when I was 16. It sucked, I played sports, was active, liked how I looked. The first semester of my Junior year I was in the hospital. I almost had my colon taken out, but due to a...
well i made it through friday fine, yesterday didnt work out so well. I ended drinking a couple of pitchers. I feel alright though right now, basically I'm still going to try and quit though.I think...
So after drinking last weekend, a little too much. I realized that I'm just asking for a flare up. So last Saturday I decided to never drink again the rest of my life. Now that might be a little...
I feel your fustration, I have dealt with people like that who simply can't imagine what we go through. Since its not a real common diease that is super well known to the average person they just...
I completely stopped taking prednisone 2 years ago. I was taking 20mg at the time and I just quit. Next thing you know I had veins popping out of me head and behind my ears. I was constanly...
THANK YOU EVERYONE FOR YOUR COMMENTS AND ADVICE. IM SO HAPPY I FOUND THIS SITE. ITS NICE TO BE ABLE TO RELATE TO PEOPLE THAT ARE DEALING WITH ISSUES THAT YOU DEAL WITH AND CAN UNDERSTAND WHAT YOUR...
I pop all the time. When I strech I can hear my shoulder and back popping. My jaw always pops also. It comes ago, I just figured its apart of my colitls some how....
thank u much for your reply. it sucks that it has took me so long to realize this. i know what I have to do though. thanks again....
Hi, my name is Mike. I'm 24 years old and I have had ulcerative colitis for 6 years now. Basically my disease is in control when I don't do one thing. Everytime I have had a flare up its been because...