I'm here! Thank you so much for your concern, I've been MIA because I've been feeling pretty awful. I managed to avoid the hospital, actually I haven't even called my doctor mostly because I'm afraid...
ohhh no, we can be pretend rivals then. unless of course you were one of the very, very mean ravens fans in baltimore. i vowed that whenever i saw ravens fans in pittsburgh i wouldn't treat them the...
On Wednesday evening, I started to have sharp pains on my left side, below my rib cage which progressed further down to near my left hip bone...they were just on and off pains. They continued through...
Piccolo Bellezza is what my Italian grandfather used to call me as a little girl, before he passed away. It is Italian for "little beauty." When my parents were divorcing, he was very ill, so instead...
This is so great, I'm sure the most wonderful news you've ever heard! Congratulations!!...
I should probably update my signature as I'm not longer on remicade due to an allergic reaction. Other than that I'm still on my meds and still flaring, I'm waiting it out until March and getting a...
Okay, I'll make this short and sweet. The first couple times I went to the bathroom today it was bright greenand progressively throughout the day its gotten quite a bit darker. The last time I went...
Oh man, all in all I think it took around 6 months for my moonface to disappear. I know its hard not to worry about it, its like the icing on the cake feeling terrible on the inside and getting no...
Salads are probably the one food I miss the most. Its been a little over a year since I've had a salad, since every time I would eat one I would be absolutely miserable. Maybe its all in my head, but...
nooo it was freezing and i caught a cold...stupid immune system!...
yeah yeaaaah go steelers! :)...
So, I'm headed to the football game today and surprise, surprise I'm feeling terrible! No food and drink for me, but I do get to sit in the snow! haha Just wanted to say hi, hope everyone is doing...
oh my, how funny! hamley--its awful that you were awake, I have been asleep for every single one of mine, in fact I didn't even have a choice I just was...
Sounds like maybe you should get a new GI and that our moms should get together they might get along great!...
I got about half of it down before it started coming back up, but I also had to drink the mag citrate after all of that which was surprisingly good! Its very bubbly and it will make you go!...
My boyfriend (or whatever he is right now) is just about the only thing that helps me when I'm feeling down. Unfortunately, hes got me down a little bit more than UC does...atleast they can remove my...
That stuff is awful. Do you have to take the mag citrate after that too?...
I am dealing with the SAME thing right now, I feel your pain! I am currently scheduled for step one of the j-pouch surgery on March 5th, but before that I'm having another full c-scope and a "capsule...
I don't feel I have any issues with managing this disease. Despite knocking me out and consuming much of my life, I think in the last 2 years I have maybe had 5 or 6 days that I just hated my life...
Does anybody see someone who specializes in helping people manage chronic diseases? Do they exist, or are they simply known as psychiatrists?...
ComedyDork--it seems as if your GI is a little insensitive to whats happening to you, have you thought about seeing another? As for the hair loss, I have very thick, full, curly hair and around the...
I'm just not understanding why the first 2 infusions were fine, no problems at all and then all of a sudden it came on. It is my understanding that that can happen with ANY drug, I have just never...
Well, no picc line or port. Seems I was having an atypical allergic reaction to Remicade, which caused inflammation of the veins and therefore I have to stop it....
Wow, my dream, do they all get along? [/quote]For the most part they all love each other! I have one who is 12 and hes pretty crabby so occasionally he'll swat at the others, but other than that...
I don't eat red meat and I still have UC =( On a lighter not... pant pooper--what a shameless name, I love it!...
I love my cats, they're cuddling with me right now! I'm pretty sure they cause me a lot less stress than most people do! =)...
haha I have 8 cats /community/emoticons/shocked.gif I had an aquarium when I was younger too....
I'm pretty confident in saying that I'm most likely just going to do the port, it seems way easier. Then again, I haven't heard what my doctor has had to say yet and who knows he might just end my...
how can you say you love someone but just choose to walk away from them? could it be the loss of control, that you're afraid to lose someone to something else so you end it yourself before anything...
Thanks for all of the answers--comments, concerns. It seems we've run our course, or hes running away because things with my health aren't going so well. I know that I need to take care of myself, my...
Congratulations on remission, i hope i didn't say that too soon! It seems, so far, that I'm going through the Remicade issue all for nothing as I haven't noticed much of an improvement so far....
I should start by saying that in Nov. I had my 3rrd remicade infusion. About 20-30 mins into the infusion I started getting these pains in the underside of my wrist that traveled slightly up my...
I can't imagine letting him go, under any circumstances. I will stay to work things out because I love him. I wish I could get into more details about my past but he really did save me from something...
Sickly girl--your post hit so close to home when you mentioned the "excuses" things. He said something very similar to me "I'm just tired of the excuses." And I just shake my head and say excuses?...
I go out all the time with him, thats my issue. I don't mind the bars normally and 8 times out of 10 I will be right there with him because I'm the kind of person who can be silly without the...
Remicade is made with human and mouse antibodies, right? And Humira is strictly human? Does anyone know if Humira been used in as many UC studies as Remicade and how successful have they been?...
He has such an issue talking about me being sick. He has been right by my side through all of this, every hospital stay hes held my hand when it took 8-10 tries to start an iv(and he hates that...
I don't know when enough is enough. Being in a flare just makes every day terrible, I just never feel quite up to par. My boyfriend is so angry with me right now, hes been arguing with me all day...
Don't be too afraid of Remicade! Its not so bad, it hasn't really worked for me yet, but I'm not giving up hope. All those scary things they tell you are very, very rare...they just have to make...
I know how bad it sucks to be young and with this disease, its been the worst year of my life and I'm very sorry you're dealing with it too. I see two different doctors, my regular GI and a...
I go all out with protecting myself from germs. My doctors gave me specific times to go to the grocery store and I avoid movie theaters. I've always been real freaked out by germs to begin with and I...
My doctor had said that even at 5 my count was low. My uncle is a radiologist and hes been helping me a lot with my meds and what not and he told me that 3 is low but that normally people that are...
So, I went to Baltimore this past weekend and had a wonderful time...the Steelers won! I haven't eaten much the past three or four days because my poor colon has been a mess, plus after a long...
When I was on 100mg of 6mp, my doctor discontinued it when my WBC dropped below 3. I started it again at 25mg once it rose above 3 and then he permanently ended it when my count dropped to 1 after...
oh i normally do eat, just not when I have plans to be out for a long time (i.e. tailgating from 11am until the end of the football game around 8pm) I've pretty much figured out the things I can and...
Wellllll, I'm on my way to Baltimore to watch the Steelers. I probably won't do much eating so that I can sit through the car ride today and the whole game tomorrow...I still have an issue with...
That sounds so familiar, I was in my step-mother's office and used the the bathroom, which she shares with around ten other people, when I had to give a sample. Of course I had the container, a...
haha isn't that the truth, my first time using pred was wonderful, treatment wise! its around 1:30am here and I've managed to make 2lbs of peppermint bark and 30 chocolate covered pretzels....just...
lol sometimes I wonder how I haven't gone insane, but thank you again sooo much. Its really great to have support, even if its just through the computer and its nice to know I can turn somewhere and...
Thank you so much for all of the well wishes, I'm dealing with it pretty well...I'd like to think! I only have a few bad days every so often, you know the "why meeeeeeeeeeee" days, but they are few...