Chef Patrick -- you will regain your strength again. I wrote previously about being positive as this has helped me over the thirty years. I do believe that this attitude put me into remission for 14...
I have heard of those on asacol suffering UC symptoms -- for me they work fine -- it was sulphasalazine that I couldn't take with prednisone -- Way back in 1979 -- I saw spiders dropping from the...
Christine -- I can concur with you re. the diet during a flare. I did manage to take spinach and beetroot tops as these are a soft green veg and agree wholly with the adage of avoiding what might be...
Hi -- see also -- the thread " Meds not working, feel horrible " Do trawl thro the site esp some of the older comments. To do this click on the member's name ( in Blue ) to see all their threads from...
Gosh, gosh, gosh !! YES the prednisolone is dreadful for me too -- I cannot tolerate the steroid treatment -- I should know as I was diagnosed 30 years ago -- I get 10 side affects with them. I was...
Hello there, I was diagnosed in 1979 and after3 unsuccessful years of taking prednisilone by mouth and also the liquid enemas - I gave up and sought the advice of a homeopath -- this very much...
Hello there -- I too had proctitis - first diagnosed 30+ years ago. Have good results using predfoam - it is comfortable to use - the pred enemas were more difficult to retain and needed major...
Hello there, Sorry to say but I did not respond well to sulfasalazine ( although that was over 30 years ago and maybe the side affects are less now ) but I was also on prednisolone tablets too and...
Hello Risan, I cannot tolerate Prednisolone by mouth and have 10 ten known side affects -- at one time I ended up in A & E with the affects. These included -- debilitating aching of the large...
Hello everyone, I was originally diagnosed in Oxford ( England ) by a top doctor in this field -- even now other doctor's practically worship at my feet because I saw him !! Anyway the years passed...
Hello there, Re Breakfast. I always have porridge ( oatmeal ?) It can be pre-soaked overnight and simply a couple of mins in the microwave in the morning I take this with dried cranberries and soya...
Hello everyone -- I've been Asacol for 30+ years and always take after breakfast and before evening meal -- no adverse affects. I use a Soya probiotic on my breakfast porridge. All seems to work fine...
Hello there, I have been reading with interest about this regime diet. I took spinach and beet tops in the summer ( I grow this in the garden ) just because I considered the other brassicas to be too...
Dear Saposs, You must keep your strength up and try and plan foods ahead , if possible. Do have a decent breakfast -- try porridge with soya and a little dried fruit. ( soak oats in boiling water...
Dear saposs, Whilst in flare recently I did the following -- avoid fruit and veg in skins or where the seeds/ pips are eaten. I made pureed soups using pulses too. I avoided all wheat products --...
cyn555 -- Yes this was the pattern for me too -- couldn't plan anything for the morning--- no appointments or trips out till pm ( or about 11 am )Then settled down until I had slight problems every...
Lambkins -- too much of these are very acidic ( the lemon ) and contain preservatives for storage purposes -- too many make me sick !! Unfortunately a cold takes it's own course we can only relieve...
Dear lambkins -- colds and flu like symptoms are often an early warning of a flare I have found. Watch what you take -- avoid those lemony type drinks as they can upset the system. But drink plenty...
Dear London Red, Yes you are right -- it seems that whilst in flare we cannot tolerate some foodstuffs during that time. This is why I revert to a normal diet in remission -- apart from being lactose...
hello there, After 13 years in remission I showed symptoms again in Mid- June but have now been in remission for 5 weeks ! Took asacol ( 6/ day) and predfoam ( 2/1/ day ) Now on 4 asacol/day ONLY I...
Cfromutah, I never gave a thought to those minerals -- just knew that spinach and like were easily digested ( I froze all other greens -- can start taking these now as in remission !! ) and seemed a...
Hello there, I read with interest these topics as I have been eating beetroot tops ( gathered from my own vegetable garden ) -- these are akin to perpetual spinach -- and I even recommended them to...
Hello Memmie, I have just got better ! But like you was on predfoam twice a day and asacol 6/day. I was on 6/day for4 months -- as I got better I started to get headaches and dropped to 5 now 4. For...
Sherry -- I read with interest your need for a pastime -- I was a teacher of textiles and would be lost without my ability to try all related crafts. Have you thought about photography - esp. with...
Hello music lovers, I was brought up on classical music and the crooners in the 50's. Then I twisted and shook my way through the 60's/ 70's. Sang folk songs and played the guitar. Then I put up with...
Hello there, May I suggest that you try inhaling steam ? Pour boiling water into a bowl add 2 tablespoons of vinegar - place a towel over your head and the bowl ( take care of the hot steam ) and...
Dear Pixy, I noticed that you take a nasal spray -- now when I don't have colitis I suffer from non-allergic rhinitis --. You will find out via the forum that there seems to be some correlation...
Dear Pixy, I too felt for you as I was diagnosed 30 years ago and then felt very isolated as no one else seemed to have UC and people were reluctant to discuss it. This forum has made me see that we...
Dear Paul, Many thanks for sharing the pictures of your holiday. The scenery was great. I was brought up hiking and climbing in the Scottish mountains and miss them so much since retiring to near...
Hello there Kay Kay29-- I was diagnosed in 1978 - but I was 28 and a new mum at the time. Fortunately for me was absolutely symptom free 1994-2008 -- following mis-advice from a new consultant in...
Thanks to all replies, Interesting about scar tissue, as I have a tale to tell. When I was giving birth to my son in 1976 I was having difficulties -- to shorten the story I was cut into the back...
Thank you for your prompt reply re. the colonoscopy prep. It never bothered me whilst in remission. This was the first time I had had the procedure in England having lived in Scotland for 14 years....
Hi there, I am a firm believer in porridge made with water. The night before soak porridge oats in boiling water. Cover. Next morning give it 2 mins in the microwave ( whilst washing/showering ?)....
Hello there I was in remission for 14 years but had a colonoscopy done every 3 years where UC was not seen. Recently I had a flare-up and just got myself into a symptom-free state when I had a...
In reply to foods to avoid-- I have been on a lactose free diet for nearly 30 years. Had a flare up after 14 years !!! I have been keeping a food diary. Have tried wheat free products -- that doesn't...
Hello fellow sufferers As I am free from rhinitis at present I thought you may be interested in an item that a friend recently purchased and used for her asthma -- also usable for nasal problems. It...
Re. sinus problems. I have had non-allergic rhinitis for 35 years and colitis for 30 years . I had never thought of a link until recently. When after 13 years free from colitis symptoms BUT 13 years...