Audio books are nice because you don't have to use your eyes....
Neck massages :( Caffeine sometimes (?) Too little sleep is a major one, too much sleep too. Prolonged exposure to heat (summer) Prolonged intense exercise :( Medications: lortab (and the like),...
Please take into consideration that I am new to migraine (about a year and a half) and so I may say things that don't make sense, etc.... So, I humbly seek the compassionate wisdom of those who have...
Copper, I'm sorry to hear that the mesalamine drugs aren't working for you. :sad: Does that mean the next step is 6MP or similar medications? Tickle...
My experience with the GI office NP has been positive overall, better than with the PA in the same office but I think this was as much a personality thing as it was a philosophical difference (as a...
I think you are right about the illness being stressful, especially since it's taking longer to get a handle on this first flare. Thanks for your empathy. Every bit helps, especially coming from...
Copper, thanks for the info on Mezavant. I will look into that as a potential contributor of anxiety. Did Mezavant help your colitis? I'm not sure than Lialda is doing much for my colon....
Zippy, My mother is taking sulfasalazine, that's all she has been on since going off prednisone 15 or 20 years ago. I'm really not sure what she did other than the sulfa. I do know that she walks...
Oral UC meds are prednisone & Lialda, Butt meds are: Proctofoam & Rowasa, I take Prilosec OTC to help with the stomach pain that comes with taking prednisone so I count it as a UC med, otherwise I...
I am on my second round of pred and this time my anxiety is nearly through the roof. I didn't have this side effect the first time with pred so I thought it was just stress from being sick but I...
These are great posts. Thanks all!...
I take 4 lialda with breakfast. I eat about half of my breakfast, take the lialda and finish breakfast. It sandwiches the meds between the food. I've heard some people take 2 lialda with breakfast...
Being newly diagnosed with UC myself last fall, I find there is a bit of a learning curve involved during the first while. It's hard trying to decipher what is going on with your body, when to ask...
I started back on the pred about 10 days ago. The Nurse Practitioner also ordered some pooh studies (fecal WBC, C Diff, giardia, etc.). I'm curious though, since I was on the pred for about 9 days...
That sucks about having to go back on the pred and at 50mg too. It's a great drug when you need it, but not when you need it for more than two or three months at a time. I hope your symptoms will...
spluxa, did you see an opthamologist? As pooie said, I think it's important for them to know that you have UC because they may do different/additional eye tests. Last year, (I had not been diagnosed...
Thank you Supersaw and Peety. It helps to know that others are dealing with this issue. I haven't told the GI nurse practitioner about the joint pain but I'm really worried that they'll just tell me...
When I started tapering below 15 mg of pred I noticed that my lower back was stiff and achy. Now that I am off of the pred (tapered off about two weeks ago) I've noticed an increase in my stiffness,...
D, Thank you very much for sharing your thoughts and feelings. I Hb of 4??? How were you able to be upright let alone walk?! :shocked: I can see why you put looking into it off though. If your anemia...
Jennifer, I too experienced those same side effects, both when I started Rowasa the first time about 6 weeks ago, took a break and started again just last week. It lasted about two to three days each...
Be careful with the use of laxatives and stuff, especially if you are in a flare. If you have pain, bloating and/or nausea/vomiting along with lack of bm's it may be worth it to call your dr and see...
Thanks for everyones input so far. It's VERY helpful. Seems like there is a steep learning curve that comes when you are initially diagnosed with UC...figuring out what to expect, learning about all...
I'm new to UC too. I also had the same question...about how long it can take to go into remission. So I realize that that can vary from flare to flare as well. But I have a related question. First,...