I'm gettin an MRI and also something else which I can't remember the name of (they said dye would be injected in a vein and then pictures taken). They said they need to check small intestine for...
I took 100mgs Azathioprine (same as imuran) for a period of 4 years, had blood checked every month never any problems and kept well throughout that time. My Dr decided to take me off it as I was so...
Following a flare up and stint in hospital for blood transfusion was sent home after being told whatever had been making me unwell was not behaving like UC (felt like every other flare up i've ever...
Takes 40mg for 3 weeks for me to get flare up totally under control now at 20mg tapering every 5-6 days by 5mg so far so good hopefully will be able to taper the last 20mg as quick. Hope you well...
No nothing wrong with my blood work my doc just decided it was time to come off it? Had 2 sigmoidoscopy tests so not as bad as colonoscopy but still bad enough for me. 1st one showed ulcers and...
I'm taking pred at mo, takes 2-3 wks to work for me I was on 40mg for 20 days, down to 30mg for 5 days now 3rd day at 25mg and supposed to taper 5mg every 5 days according to doc. Not happening tho I...
Ye I did stop imuran but only because I was advised to by my doctor and didnt want to go against their advice. Thanks all for your posts, I'm going to look into new doc....
Garylouisville that is exactly how I feel. My brother who is a doctor and also past UC suffer, I say past because he had surgery to remove his colon also agrees and has told me to get a different doc...
Hi Lodi, Yes 4 years was amazing but now coming back to this place really sucks. It was the Imuran that the doc stopped in July this year. when i was taking that I was also taking asacol and maybe 2...
Hi all It's been at least 4 years since I posted here mainly because I started Azathioprine ( think also called Imuran) and kinda forgot I had UC I have kept so well. However on advice from my GI who...
I too was diagnosed with pancolitis and my first few flares that I experienced were hell, however my last couple of flares have not been as bad. I am coming out (I think) of a flare at the moment...
I know it's very hard. I am battling a flare at the moment with steroid enemas morn and night and was seeing some improvement until today things seem to be getting worse again. Isn't it strange how...
I think I am treating my current flare successfully without prednisolone ( I am always scared to say that in case I wake up tomorrow and it's all gone bad again). I have never been able to do this...
I take it every day after a meal, I don't know if it works much but I ran out about 3 weeks ago. Started flaring last Sunday started taking it again on the Monday and I am feeling much better today....
Asacol has never caused me any pain. If she she has inflammation in her colon which is what UC is then that will cause pain. UC is ulcers throughout all or part of the colon. I just imagine if my...
It has always taken me 2 - 3 weeks on 40mg to start seeing results. I take the whole lot in the morning, I have never understood why people split the dose I have always been advised to take it...
Yes I definately get this. I kind of get a downey hair on my cheeks which no-one else notices but I do. I also get some more hair on my upper lip but get that waxed right off. I have also noticed in...
I was diagnosed with UC after the birth of my first son, only started getting symptoms when he was 6 mths old. But flared when I was 9 weeks pregnant with my second son. I was scared about taking...
I live in Scotland and we have the NHS healthcare scheme wherby everybody who works pays a % from their monthly salary depending on how much they earn. Although everyone whether working or not is...
I am using them twice per day at the moment. Whole bottle in the morning and then again at night. Never done this before but it seems to be working. At first when using it in the morning I would stay...
I once used them every night for 3 months and didn't even really have any symptoms however at a colonoscopy the biopsies showed inflammation so my Dr advised to use every night for 3 months. I am...
Seems to be some people suffer with the side effects more than others but I experience the increase in energy levels (decreases as you taper down dose), retain fluid, acne, pee during night,...
I am already on 100mg azathioprine which I think is a dosage determined by my weight so wouldn't want to increase it any further. I have spoken to the specialist nurse today who has told me to...
I am flaring, only in my very first flare 8 years ago did I experience the amount of blood loss that would have the toilet bowl looking like someone had chucked red paint down it. Now when I flare I...
I have always started on 40mg but has taken 2-3 weeks before I notice any improvement. My cousins pred was increased to 60mg on her first flare up and she started imuran on her first flare up. I...
oh cr*p, I was hoping I wouldn't have to go on high dose pred. I am using the pred enemas but don't think they reach high enough, whole colon has been affected before. Speaking to my gastric nurse...
Hi, not been on here for so long as I have been feeling great but here I am again the first thing I turn to when unwell! I started Azathioprine in April 2008 and now in Sept (just) 2009 I am flaring...
I have been exeriencing shoulder pain off and on since I was diagnosed with UC. I have had 7 doses or prednisolone in 7 years. My last flair was in April of last year had a course of pred and since...
I have had about 7 flares since diagnosed and 3 of them I can remember throwing up whilst on loo....
I often wonder this regarding my colitis, I am in my 7th year now. However I keep referring back to my grandmothers case. She flared almost continuously from the age of 35 to about 45 and this was...
The thing is I have been taking them for 3 months and then my doctor told me to reduce to one every second night for 1 month and I have got worse. Going back to once a night and hopefully that will...
What can I say, I am not glad that other people out there go through what I go through but after receiving your replies to my post I now know that I am not just being a baby! I was talking to my...
Entering a dreaded flare after being on Azathioprine for 1 year. My question to those of you who have experienced this is did you require less steroids to get you out of the flare. I normally have to...
I just read someones post about how it affects your daily life when you are in a flare and most peoples response was urgency and the number of times they go a day. This I can handle but when I go...
Believe me I don't want to be skeptical as I am on the road to another dose of pred and would do anything to avoid this but are all of you who are eating the spinach, sunflower seeds thing recovering...
I may be wrong here but is Rowasa an asacol enema. My doctor has always had me take predsol and I have been on them long term and although he assures me that only a small amount enters the blood...
My last flare I took 40mgs for 3 weeks recduced to 30mgs for one week then reduced by 5mg's per week altho if I felt things were getting a bit ropey I would hold at a dose for 2 weeks. The more I...
I don't know if this is just a coincidence but in my 8 years of having UC I pretty much always have a flare up around spring time. Last year I was started on Azathioprine. After a colonoscopy in Sept...
When I initially started taking it I did experience a lot of hair loss however I was taking prednisolone aswell. Once I stopped the prednisolone treatment the hair loss stopped aswell. I read lots of...
1. Oste openia 2. Never have to get up and wee through the night but when taking prednisolone I do. 3. Moon Face 4. Acne 5. Lots of energy 6. A little weight gain but nothing really, has been more in...
Hi, I posted about this a few weeks ago. I was also advised by my GP to have the flu vaccine due to being on azathioprine within 1 week it was like I was flaring (I had the pneumonia vaccine too). A...
Hi, I am currently taking 100mg Azathioprine and my GP doctor advised best that I get the flu vaccine (I have never had it before) so last Thurs I got the flu vaccine in one arm and the pneumonia...
I had a bone density scan done in 2004 (age 29) and was diagnosed with oste openia in my hip although spine was fine. I now take calcium and vitamin d and also a bone strengthening pill (can't...
My doctor is not interested in prescribing me probiotics he said they don't really do any good for UC patients they only help j pouchers. I don't care, I want to try them as as far as I am concerned...
I miss looking and feeling good at the same time. If I feel good I usually look like crap with a huge moonface, acne and an extra 15 - 20 lbs of weight, if I look good (no moonface) I usually feel...
Just had to post to say you made me laugh out loud at a reply you posted to me (vent about doctors visit with my son). You might be a bit grumpy but you are also a bit funny....
Background - been on Azathioprine 100mg for about 5 months (not seeing any difference in symptoms). Last time I seen specialist nurse about 6 weeks ago she told me to stay on 2.5mg pred and use...
I remember when I was first diagnosed and read info that was given to me about UC and it said that after a flare and getting better it was common to pass poo that looked like sheeps poo (small round...
I know how you are feeling but hopefully once they get your meds sorted out now that the disease has progressed you will start to feel better and have a different outlook. You are right this is a...
I believe it is the bowel going into spasm due to inflammation. When I am really in a flare I have a lot of pain followed by bm's which are the only thing that relieves the pain. But even when I am...