Been a while since I've been here, had been feeling good - reaching almost 3 years on Remicade. We last night I had blood when I wiped and this mornng there was a lot of blood in the toilet. No...
Funny you mentioned the fruit i have been eating lots of peaches and we've had fresh corn on the cob twice....
thanks for the upbeat reply...I've decided to wait a few days too. Keeping my fingers crossed!...
Hi All, I've been on Remicade for almost 2 years and it has been a miracle...had my infusion a week ago today...but since Sunday have had cramps off and on, lots of bloating and the occasional loose...
I have been on Remicade just over a year and half, feeling great. But about two weeks ago, I was moving my trailor moved, and I felt this pop and knew something was wrong. Went to ER to find out I...
I was very lucky, after the first infussion I saw great results and by the second I was almost in remission...I was also tapering down on pred. at the time....
My GI isn't listed on ratemd's...he's been in practice for less then two years I think (I was seeing a dr. in Gatineau before)...he's out of the Civic. He is a little harsh, but when I was in a...
We have been going through the process for the last few months -- I get 80% thruogh my wife's benefits (Sunlife) and then I have received some funding through the Remifast program (temporary) until...
I have had 3 infusions and it has worked wonderful! I have had colitis for over 10 years and managed quite well, then this past Nov/Dec I was hospitalized for over 2 1/2 weeks because I could not get...
My doctor never mentioned them, when I finally asked, his exact words were "people think they show promise, but they really do nothing". My naturopath dr completely disagrees. I still take them!...
My GI says all I need is the calcium, vitamin d and folic acid while on the predisone, and then nothing. the naturopath I see says I need Gluatiamine, Probotics and Omega My wife says I need a multi...
This has been my fear as well...but my doctor said they aren't sure if your life expectancy can just be affected by the fact you have UC to start with I am very scared of this, but I'm trying to be...
Yes, when i was on the higher doses, I always had to take it atleast by 8am so that I could get some sleep. When I was on the 40 mg I hardly slept at all. By the time I was down to about 15mg, I was...
I've had UC for 10 years, that was completely controlled, I only took Pentesa suppositories the whole time, then this past Nov/Dec had an awful flare and spent over 2 weeks in the hospital, we tried...
My symptoms were getting winded really easy -- shovelling our little walk and I felt like I'd ran a marathon, I felt like I could never take a really deep breath, and at times pressure on my...
I take Zoloft, and occasionally Trazadone to help sleep, and sometimes the odd ativan (that's the canadian name, I think it's the same as Xanax....
As I mentioned I've been fighting what we thought was a respirtory infection for about 3 weeks, had to postpone my infusion...chest x-ray showed little nodules so they thought it was TB (even though...
Good luck, after my first infusion I started to see results....after the second, everything was fine, I've had to postpone my third becasue of a lung infection, but I hope to be able to go for the...
Yes, I would love to know this as well!! I'm fighting a lung infection while on Remicade-- I know there is the basics stay away from sick people, get enough sleep, but is there anything else?...
Just came back from my Gastro appt, I have been battling this lung infection for over 3 weeks now and have had to delay my 3rd Remicade Infusion (was supposed to be Feb 4) ....all he said was it will...
Beer is a no-no because of the carbonation - wine seems to be okay - but again in moderation...
My GI doesn't seem to think Food affects it much -- the only things I now I have to avoid is carbonated beverages (pop, mineral water etc) - doesn't cause a flare but doens't seem to help, during my...
I have had two Remicade infusions now, and my next was scheduled for Feb 4, but because of this sinus/lung infection I am on antibotics for another week or so, then have to be off the antibotics to...
I'm not sure what triggered mine orginally but I think it was stress - parents were divorcing after 30 years of marriage, and my mother put so much stress on me -- no one else in my family has it....
My wife and I have an 8 month old and we had planned on starting to try for a second around now -- but my colitis flared very bad in November/December, and I'm still not better- one of the first...
I just looked at my receipt and it is just under $5200.00 per infusion - there is only one pharmacy in my city that carries it so I don't have many options. It is all covered except $200 (paid...
I was put on predisone in December to try to help with my flare, it didn't slow it down much, so ended up on Remicade. I am still tapering down from it - was on 40 mg and now down to 15 mg. I do not...
Yes, I was tested for TB before the initial infusion came back negative, but I think that was what they were so concerned about the lung infection that it was TB (it has been ruled out now). My wife...
I haven't tried Imuran, 6mp or Humira - my doctor really pushed remicade....I also wonder why I went from controlling it for 10 years with pentesa (occasionally doubling up for a few days if I had a...
I have had two and each one was about $5200.00 (I'm in Canada), I was told they are based on my weight....
Hi, I hope it's ok to just post. I have had UC for 10 years, was controlled with Pentesa supportistory until November, I went into a major flare where I ended up in the hospital for 2 weeks, they...