Wow... I will ask again about it for sure, thank you!...
Thanks Lynnwood, I decided not to take the plaquenil because my rheumatologist said it would only help with arthritic pain, since I never had anything close to what I would call abnormally painful...
Hi, I'm from the UC board (UC diagnosed in 2009, been on Remicade since then) I was diagnosed with drug induced lupus 2 years ago with all the antibodies associated with SLE. I never had serious...
I started running after my diagnosis! Uc will force you to take it easy sometimes, take time to rest now but you will get back on track :)...
Another question: Anyone knows why my symptoms almost go away during the day and come back tenfold at night? Is that common?...
Thank you so much for your thoughts! I have never taken BIO K, maybe I should try them. Part of me is afraid it's going to give me more cramps! I also never had any rectal meds.. For me it was...
Hello everyone I haven't been here in a while.(Which means I was doing well hehe) I need some advice... I had some kind of stomach bug that started 5 days ago with vomiting that lasted maybe 3 days....
Thanks! Mostly how to cope with the muscle and joint pain, the fatigue and also the anxiety from never knowing whats going to fail/hurt next! I got really scared when my doctor said its seemed like I...
Hi everybody, I am a former user of the colitis forum but now seems like I am switching to here since I have been diagnosed with DIL (Remicade). I hope I am in the right forum and I am sorry if I am...
Hello everyone :) I discovered some swollen and painful lymph nodes on one side/ groin area... I am totally paranoid about lymphoma and leukemia etc I've researched on the web and nothing I found was...
Yep, I am better today! I still have lower back pain, it feels like its in my kidneys area.. will wait to see if it gets better in the next few days but I am so glad to know that a stomach bug will...
Hello all, I need your opinions on my situation... This am I woke up with nausea. Went to work and started having mild D. Came back home because the nausea was getting worse and once I reached the...
Hi , I haven't been on the forum for a while but my TIREDNESS made me come back for more info. I used to work out a lot , but recently I am feeling so tired, I can sleep 15 hours and still want to...
Sorry to hear you are not feeling well, I have the same story as yours, same age, no family history of UC or Crohn's , have been diagnosed this last spring, and I am in Canada (quebec), had to get to...
I got about 15 piercings while on imuran and remicade this summer ( was manager of a tattoo and piercing shop) and It didn't cause me any trouble. Healing was fine. Its a touchy situation because...
It took me 4 infusions before getting better, now I am in complete remission :) Dont despair!...
teehee ! Everyone should climb a rock! :P...
Yeah , I am very careful! Thanks for your reply :)...
Hello everyone! I have a question regarding the wonderful virus that makes a lot of us sick every year.. at this time of the year especially.... :O Theres an important flare of gatroenteritis virus...
I'm happy to hear about you bennie and bratcat!...
I also think that people died when their UC got very bad.. That's what my GI told me... Serious inflammation of the colon without meds to calm it must have caused people to suffer from internal...
thanks a lot for your posts! It is so interesting and gives me hope that one day ill be on maybe 5 asa s only... you neve know! I feel so weird with remi and imuran, almost as if it was too strong...
Hi! I am wondering if it is possible to go back to the "first meds" once you are stable and well on Imuran or Remicade or both? For example, when I got diagnosed last spring no medication would work...
I lost 30 in my first flare in march 09, gained back a healthy weight this summer, I'm around 127 now. I never gained weight on prednisone. I tend to put on weight easily when I am not on a flare...
Let's hope they are not here because they are doing very good!...
Very interesting! Thanks!...
I was wondering the same thing!...
I'm in canada and got tested once before starting treatment and once 3 years before I got diagnosed with UC because of my field of study. The doctor never told me to get other tb testing after my 2nd...
Thanks a lot everyone! :) Christine for the hair loss I noticed that at the beginning of my treatment too, seems that my body adjusted or it was because I was so sick that I lost my hair like crazy....
Thanks Lonie! I had my 11th(i think) infusion last week! I still have tons of questions and of course some worries but I feel so much better! I started to work , I have a new boyfriend, things look...
Hi 4 leaf clover! I am 26 and was diagnosed this last spring. Like you, I was feeling anxious not knowing what would happen to me, my career goals, my relationships... Everything seemed very dark and...
Hello everyone! It took me a while to come back on the forums after my last hopitalisation... I've been in the hospital on and off for about a month. I was heading for colostomy when I asked my...
Same case as Katmom's daughter here. Bad case of unresponsive UC. I have been hospitalised 2 weeks ago (this is my 1st post since.. hi everyone :) ) and my decision was to have surgery since no meds...
Remicade din't do any good for me , in fact I am sicker than ever after my second dose. I am getting a colectomy very soon and will have a J pouch later. Given the response to Remi and my health...
Good news I contacted a lady (my age, UC, ileostomy) who is very active in the UC related charities and organisations for support. I am waiting for her reply about support groups etc. I will meet an...
Robinbyrd- Thank you so much for your post! I am starting to realise that I won't be a UC slave for the rest of my life :) It's nice to know that you are 100% satisfied with your decision. I plan to...
HI, of course I have my downers... Like right now :( I am scared of surgery and complications, it seems so big. I have to watch for fever and intolerable abdominal pain that would mean a toxic...
HI everyone, My appointment went well and the surgeon was very reassuring. I will have my surgery in 3 steps : 1-colectomy without removal of the rectum + stoma (around june 10th, I taper my meds and...
Summerstorm- About almost wanting to get toxic megacolon- I feel that way right now, it would be easier if it was an imminent life or death thing!!! THen I would not have a choice and just go with...
Thank you so much guys! Your answers and good attitude are giving me hope and strenght! I will wear my everyday jeans and t shirts when they do the markings, that a very good idea! So happy I will be...
I am bumping this thread, it is such a good topic. It is helping me a lot right now as I am making my decision to get a total colectomy and possible J pouch later. I am very sick and havent lived a...
This is such good news to read, I will have a colectomy soon and then I will try to get a J pouch in a couple of months (I have severe ulcerative colitis) and your experience is encouraging, even if...
Thank you Quincy, I will keep you posted. My situation is getting worse today, I hope I will be ok until my appointment tomorrow morning... If not I'll end up at the ER and well see what happens from...
Thank you suebear and summerstorm, I hope my ileostomy will be temporary!!!! It's reassuring to know I will be able to wear jeans and t shirts :) I am scared of the operation and the complications...
Hi , I moved from the UC forum to this one in prevision of my surgery. I will see my surgeon tomorrow and know more but I hve some questions for the ppl living with an ileostomy. 1-Is there food you...
I think I ll go with the surgery , I think its the only real solution in my case.... I am meeting the surgeon tomorrow will know more then. 1. No discussion of any illegal activity or threats of...
It's ok Jay, you found a way to manage your colitis, thats wonderful, and it's normal that you want to share the solution. Of course it doesnt mean that your solution would work for everyone.. I...
jay I don't know what to answer to your post... your lifestyle and attitude seems ideal but I think we are very different. I don't feel beaten, and to me surgery isn't a failure. That would be really...
Hi Jay, I understand your point of view but personnally I don't wan't to resctrict my diet to the point where I can only eat boiled chicken and rice for the rest of my life. You have been able to do...
Thank you so much everyone, Your support really makes a difference. I am waiting for a call from the surgeon and I will have my 3rd dose of remicade on june 15th I might wait to see if there a change...