I take all 4 Lialda in the morning but this has me wondering if I'd see a benefit to switching to split doses. I'm mostly in remission anyway so it would probably be hard to tell if that did make a...
I don't use it much (fortunately) but I like to have Tramadol in my back pocket for pain since I also don't have NSAIDS as an option....
Pardon if this was already mentioned but Mercaptopurine is another option. Just make sure if you do, your doc monitors your liver function. Mine liver did not respond well but I had no pain and...
Hey all, I have been somewhat active on the Ulcerative Colitis forum but I am new to this forum. According to my allergy skin tests I only have fall allergies but I am thinking I might have a...
I've gotten all the standard blood tests coming back normal. I don't fully meet the CFS criteria because I have chronic fatigue and post exertional malaise but I don't have three of the diagnostic...
I was never sure if Humira was doing anything because I was on steroids when I started and my condition remained the same on Humira. It's possible it kept me from a serious flare but I don't know. So...
I've been having a lot of success with L-glutamine. It's gotten me from about 10 bms a day down to more like 3-5. I missed it for a day and then the next day it was back to 10 but now I'm back on...
I'm on Humira and have been on Remicade. It's too soon to know if the Humira is working but I haven't had any side effects so far. I had my first injection a few weeks ago and I suggest getting them...
Thanks everyone. In the end I decided it's not worth it for me, at least at this point. Everyone's gotta decide for themselves what kind of trade offs they are willing to make. It kind of drives me...
Thank you! Any idea how long it will take to stop feeling so hungry? I'd actually rather have 20 bms a day so that's an idea how hard it's been to stick with this....
I'm on the intro diet so I'm not even supposed to have bananas yet :( thanks though....
I'm on my first day on the SCD diet and I'm miserable because it feels like no matter how much I eat I am still hungry. So close to giving up. ...I guess I'm looking for any words of encouragement,...
Thanks, everyone, especially imagardener2 for the kind encouragement because I need it!!! A slightly different but related question. It sounds like if I'm really going to do the whole diet thing and...
Thanks for your input, italo. I probably won't go this route but I'm running out of options is the only reason I'm even considering it....
I had to stop taking 6MP after a few weeks because my liver function was impaired (very high levels of SGPT(ALT)). Do you know if there's any chance I might be able to tolerate a different...
Those of you who have seen drastic improvements with dietary changes - how long did it take before you noticed significant improvement? I'm starting to think I should really try SCD but I've been...
One of the things that has helped me a lot is working 35 hours a week instead of 40. I feel very fortunate that I'm able to do this!...
Ah, italo, I wish had posted sooner! I had meant to but just didn't get around to it. Is VSL #3 covered by insurance for you? Btw, I will plan on posting afterward to let y'all know what I learn :)...
Hey! is anyone else going to this? p.s. and if you are, do you use VSL #3? http://online.ccfa.org/site/Calendar/817338504?view=Detail&id=118601 Interested in the latest treatment options for IBD? We...
Hey Sierra, I understand not wanting to argue because I hate it too but I feel very strongly that they should do the TPMT test first. True, we didn't always used to have TPMT tests available but my...
Yes, you should still get liver tests. My TPMT test looked fine and I just ended up having to stop 6MP after 4 weeks due to poor liver function (elevated ALT/SGPT)....
Hey Sierra, I would seriously consider changing doctors. The TPMT test is important, it checks for your risk of serious side effects and if the results don't look good the doctor should not put you...
I bought a bunch of VSL #3 but I cannot bring myself to tolerate the lemon cream flavor no matter what I mix it with. Does anyone want it? Seriously... I spent all this money on it and have no idea...
I've been on Remicade almost a year now and I'm not convinced it has helped at all. I just had my second infusion at the increased dose of 430mg (from 300mg). But then if I stop I could form...
I got the packets but I can't handle the gross flavor :( Wanna trade? Seriously though, is there any way I can sell them or something :-/...
InSoFla - I already have VSL #3 regular strength, enough for 6 packets a day for a month. I'm not sure if I can get covered for VSL #3 DS but I can check. And on your suggestion I just ordered...
Hey all, I just got back my test results from yesterday and my CRP is down to 5.5 mg/L which is in normal range of 0 - 9.9! I'm still going to keep up the enemas and other stuff but I feel hopeful...
Hey, thanks for your replies. I'm feeling a little better after a talk with my mom and here's what I'm thinking now. I had some more blood tests done today so I don't want to start any oral steroids...
Thanks, ManhattenMama. I've probably had about 10 Remicade infusions so I am past the loading doses phase. I am not currently taking 6MP but my doctor suggested today that we consider it....
I really don't want to take Prednisone or Entocort. But talking to my doctor today, she said, "I don't want you to end up in the hospital". I didn't think I was doing that bad that I was at imminent...
I haven't had any side effects with Remicade. I think probably the weight gain is related to the Prednisone....
It says they do have a donor bank, I'm not sure how they ensure freshness though... http://fecalmicrobiotatransplantation.com/FMT/donor_bank.html Although honestly, I'm grossed out enough that I'm...
Thank you! I really appreciate it!...
I'm on Remicade. I'm flaring again so I'm not convinced it helped much in my case but it hasn't had any side effects for me. And when I researched it beforehand I saw very few people reported side...
Oh, I'm in the Boston area! Yeah the issue I guess is finding someone who will do it for stuff other than CDiff Bright Medical Clinic is in Oregon which is not ideal but fortunately I can get there...
Has anyone done fecal transplant at *** Medical Clinic or know someone who has? I'd prefer to get it done somewhere rather than try it at home and this seems to be one of the only places I could find...
Okay, thanks for the replies!!...
My doctor is recommending Remicade over 6-MP because they say it works a lot faster. Have other people experienced that? She said that Remicade might start working in 2 days or 2 weeks, or 2 months...
Hi songlady, When I click that link it asks me to log in, is there anywhere else I can find the article or a summary of it?...
Is Remicade for putting people INTO remissions? My doctor wants me to go on it since I have not responded much to prednisone....
My nurse practitioner told me that if I start on Remicade and it works for me then they will want me to stay on it forever because if I stop then I might develop resistance and it might not work when...
Great article, thanks for posting! I'm considering posting it on facebook but I guess I'm probably not ready to be that open about my UC......
Hey y'all I already made a post describing my particular situation but I thought it might make sense to make this separately. Does anyone know where I can find any information on *rates* of side...
Hi Sherry, Hearing that it took you 2 weeks gives me hope that it might work even though it hasn't yet at 8 days! I could do mesalamine in the morning but the symptoms are getting to be pretty...
So, my current flare has been going on about 6 weeks and I have had about 20 BMs with urgency per day (with 3 accidents in the past week), bleeding, and diarrhea. *upped my usual Lialda dose from 2...
I just started Phoschol about a week ago, has anyone had success with it?...
I have been taking Lialda for a few weeks now and I don't think I've had any side effects. And before that I was taking regular colazol for about a year with no side effects. I'm tired a lot but...
Hi Everyone, I am new to the site. My digestive symptoms are not that bad right now, mostly just urgency a few times a day and sometimes diarrhea. The doctor found that my bloodwork is in the normal...