I have ulcerative colitis, I was doing a routine follow up which found I was anemic. When I went to the hematologist and they ran tests I found out I am positive for one of these diseases. I just...
I was in your exact same position exactly 1 year ago. I am a stay at home mom to 2 kids too. I was hospitalized 3 times last year, hubby brought my laptop to me too! Finally after a sig showed no...
I've been in remission since last July. I was anemic during my flare, but in September (2 months after my last flare), my counts were all normal. Last week I found out my hemoglobin is 9.7 and...
I have had UC for 14 years. I have two children, I was not flaring during either pregnancy and was fine with both. My UC got progressively worse and last year I was in the hospital 3 times over a 2...
I only brought up this topic, because in my mind, j-pouch IS two major surgeries and this would be one major surgery with the possibility of a 2nd surgery if it didn't work. Plus with the j-pouch,...
So let's say that one day they can grow body parts (they are already doing this with humans, just not colons) does that mean we would be able to cure colitis by having a "new" colon grown? Or does...
I'm on the lifetime Remicade program and thinking of the future. I don't like the idea of j-pouch, but wondering why the whole colon has to be removed for partial colon disease?...
I was in remission the day after the first dose (and I was in the hospital at the time). I had a terrible flare (30+ times a day) a week before my 4th dose was due so they bumped up the infusion and...
I know I lost a ton of hair in the past on both colazol and asacol. I'm not taking either now - just Remicade so I was shocked that my hair is falling out by the handfulls. I have 1/4 of the hair I...
I have been taking this medication for colon spasms for years. I take it when my left side feels distended and uncomfortable and it only takes about a half an hour to work and the pain is gone....
I've never felt tired or affected in any way after my infusions. I always go about my normal day. I don't see any reason why you wouldn't be able to work!...
My doctor said the actually prefer Remicade to prolonged use of prednisone. Most people don't think of prednisone as being as detrimental as it actually is. It works for UC, but its not good for...
Sue this is very interesting to me. How bad was the surgery? How long were you "in bed" and how hard was it to keep everything clean before the j-pouch. Obviously this is the next step for me and...
I was hospitalized 3 times this year. Was scared to death to try Remicade. I have tons of anxiety and all I needed was to hear risks of lymphoma or serious infection. Two days after the 2nd infusion...
My infusion clinic is only billing about $3,000 for each infusion. I am responsible for 10% until I reach $2000 out of pocket. Since I was in the hospital 3 times earlier this year, I met that...
Msmatt, so sorry to hear about your pain! I had my 5th infusion today and never had any pain after treatment. I don't take any other meds at all other than multivitamins. I was so nervous about...
I was 7 weeks past my last Remicade and had the WORST flare ever - they thought it was c-diff at first but it was just my UC. I got the Remicade and was better that night! It was like a miracle. So...
I was a nervous wreck, anxious as heck, but I was basically in remission from it the NEXT day! I had my 4th infusion on Tuesday. They are bumping them to 6 weeks apart because I started flaring last...
I know its a last resort. I'm on Remicade, but I'm feeling like crap! I'm 37 I have 2 kids and I just want to have energy and feel normal! I guess I'm just having a bad day!...
I didn't have any food at all since last Friday! Yesterday during my Remicade they gave me a shot of phengram (sp?) to prevent nausea and I went and threw up 15 minutes later! I can't win!...
Yeah I threw up half the day and when I wasn't I was nauseas. I'm supposed to take this for another 5 days. It was quite interesting to have to run with my IV pole from the Remicade chair to throw up...
OMG, I'm so sorry, of course he and you wll be in my prayers. I hope for the best outcome....
Well I had heartburn all night so I finally threw up and feel better but now I'm nauseas again. has anyone experienced this?...
I can't even imagine what I will do if the Remicade doesn't work this time! I am really hoping for an overnight fix!...
I wish! I am always joking that it is just my luck that I can have UC and a weight problem! I have 25lbs to lose and it always elevates when my UC flares because of the weight I put on with...
to get it under control? I am in so much pain today and a horrible relapse with my infusion coming Tuesday I am wondering how soon I will get relief?...
That is what it seems like to me. This is like sudden onset of my worst day of colitis ever. It usually doesn't happen so severe just overnight like this. I stopped eating on Friday because the...
Im in so much pain I am crying. Just wondering....
Well my doctor told me to go to urgent care last night. After going to the bathroom 21 times before urgent care, I could only squeeze out about 15 drops - which they said was enough to get the...
My colitis has been in remission since I started on Remicade. I am due for my next infusion in 10 days but I bumped up the appt to next Tuesday because I started having blood and frequency yesterday....
I was on colazol. I have definitely linked my hair loss to 5ASAs; however, Colazol alone had kept my in remission for almost 4 years even though I had bald spots from staying on it! Today was good,...
Thanks Quincy. I just had a tiny bit of blood on my last bm. I just stopped 5ASAs because of hair loss, maybe I need to restart or try enemas. I'm not due for Remi until 8/3, Until 3 days ago...
Since I started on Remicade, not a single symptom. It's been month since my infusion and the last 2 days I'm going to the bathroom 7 or 8 times a day. No blood, not really diarrhea, just loose and...
Well at least my doc isn't the only one who told me to drop the colazol! I'm thrilled about it because I am STILL losing tons of hour and I stopped 10 days ago hoping it would stop! Also thrilled to...
The same thing happened to me! Enjoy the good health!...
I'm doing great! No reaction at all to the 3rd Remicade and absolutely no UC symptoms ever since. I don't even take the spasm meds anymore! I had previously been on Colazol only and stopped (myself)...
Has anyone's doctor said this is okay? My doc said I don't have to take Colazol anymore. I was surprised, but I am happy because I am nearly going bald from it. I did think, however, that it provided...
Because it is 10 days after my 3rd dose and I had no side effects at all! Looks like I am staying on Remicade and I wanted to update and let everyone know because I may have scared some with what I...
Before it was 2 days after the infusion. I was pretty tired last night but assume that was the zyrtec which always makes me very tired! Feeling well this morning!...
Just Tylenol and Zytrec. I am very hopeful for no reaction!...
I had that bad reaction the 2nd time. Well Centocor says it was more likely an infection brewing and the Remicade just reduced my immune system so the infection could thrive. Makes sense. I'm just...
I had one in the hospital last month with sedation and no prep (just a liquid diet the day before)....
Judy, Sorry to hear you had surgery! I still can't believe I want the Remicade again, but its easy to talk about not wanting it once I was in remission, but the minute those UC symptoms started to...
Thank you! I actually called my GIs office and they were gone. I'm pretty sure I'm going to do it again!...
I'm only 3 days into it so I wouldn't think it could happen that quickly? The problem is with all of these immunosuppressors and the UC who the heck can ever know if its the UC, the pred, the 6mp,...
I can't figure out if the low fever I'm having 99.6 - 100.4 is my UC coming back or a possible reaction to the 6mp that I have been taking for 3 days. I haven't had any diarrhea or blood but the...
As much as I had decided not to continue Remicade, now that I am just 1 day past the day when I would have received my 3rd initial (loading dose) my stomach hurts and I'm running a low fever. My...
It put me in remission immediately but I had a serious reaction to the 2nd infusion. I had been in the hospital twice before I tried it so it made a huge difference for me. I was very nervous/anxious...
I was supposed to go for third Remicade tomorrow. Spent all night reading studies and just made decision (an hour ago) to go with 6mp. Took my first pill today! Praying for NO relapses and that I...
Where do I get info on the SCD diet?...