I am sorry you are sick! I know the feeling of being tired of it all. The same thing happenned to me last weekend. I think I picked up a virus. Dont let it gone on too long before calling your GI....
I wasnt sure if that was allowed or not. Sorry!...
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i was eating spinach and carrots with white rice and a little butter (about 1/3 cup of each) every day for breakfast if you can believe that. I just wanted to make sure i got it in. About the same...
for summerstorm....can you tell your bag is filling and is that distracting...weird question i know. thanks for the reply and i am happy you feel young and energetic!...
My doctor has never offered anything for pain until this flare up. Sometimes the cramping and pain is so bad I feel like I could pass out. He just put me on 2 darvocet every 6 hours as needed. It...
Which one did you get (jpouch etc) ? how long were you laid up and how much work did you miss? Are you happy with your decision? What are you trips to the bathroom like now? Do you finally feel...
Just wondering how long after you went off your medicine did your flare up return. I too thought the spinach/sunflower seed diet was helping me and went off most of my medicine. Now I am in a severe...
Just wondering how long after you went off your meds that the flare up returned. I too thought the spinach/sunflower seed diet put me into remission until I went off most of my medicine and now I am...
Thanks so much for all the posts. They crack me up and have made my otherwise downer time fun. ps. talking to flowers doesnt work...
just curious has anyone tried chinese medicine and what did you try and what results did you get?...
how do you deal with them. I am in a flare and have been pretty sick and the comments I get. "i looked up your disease and its caused by your diet and stress" " you need to change the way you think"...
This thread cracks me up. Only on this site! I love it....
My daughter had a rare autoimmune disease when she was 10years old and I did a section 504 which required the staff to write a plan for her. I was involved in the planning. We put that she could go...
cfromutah had originally said he eats carrots with his spinach too....
So I went and saw one of the "best GI doctors in st louis"(head of research blah blah blah) I waited for almost two hours to see him and he spent top 10 minutes with me but I think it was more like...
Just wondering how long it took you to lose your prednisone weight and how did you taper? I am currently at 5mg and I am suppose to go to 5mg every other day. did you start flaring at a certain mg?my...
One year I made my teenage daughter half dead and ugly/ half beauty and she wore a label saying botched makeover or something like that. She looked great and it was fun to do. I did half of her hair...
I had a CT scan with and without contrast when I was in the hospital. I have u. c. All I know is the doctor said it showed that my intestines were really distended....
I took an over the counter cold medicine while tapering prednisone and started bleeding again. I was so bummed and thought I would have to go back up on the prednisone. My GI reassured me that he...
Certain foods make me feel worse. I think I am heading towards remission. Lately I have a some foods that I knew were going to be trouble. One day it was mexican (bad choice...i know) Within hours I...
Heat always makes my u.c. aches better. When I am in a flare I soak 2 or 3 times a day in the tub. I like the heating pad and the heated seats in my husbands suburban....
I am on Imuran 100mg also. I take asacol. I am going to ask the new doctor about colazol. Were you ever on asacol. I have read a few posts where colazol worked better for some. Have you been on the...
Christine, I just found out that they sell a generic of flora-Q. I am not sure but I think flora-q has been the most helpful probiotic for me. I am actually taking align and flora q generic now. its...
Hi Katie, Did you get IV prednisone in the hospital? I was in the hospital in July as was put on iv then oral prednisone. It started helping within a week. I had cut out all caffeine (i mostley drank...
Do you think they meant if you breastfeed your children or if you were breastfeed as a baby? "It says Such risk factors include diet, breast-feeding and other perinatal events, occupation and social...
Gigi, Asacol is what is supposed to keep people in remission. In the past, I have found if I miss doses it messes me up pretty quickly. I don't take the other med your on but I wouldn't stop anything...
I take align and flora q. I switched to align as the doctor gave me samples. I think I did much better on flora q and since i am trying to get out of a flare I decided to take it again. It seems to...
I know it sounds odd but I feel like my u.c. started after I swallowed a large amount of water from a wave pool at a theme park. Public pools can be full of germs. Interesting....
just wondering how the spinach and sunflower is working for everyone?...
Congrats on being semi-regular..I was in the hospital over the summer. I did not want to go but went because I was having a large amount of blood and was dizzy and short of breath. The GI doctor...
Just wondering are you eating the spinach too? I loved your story. I am a nurse and when I first started working with the elderly population(before UC) I could not believe how preoccupied they were...
Thanks for the advice. It seems like my appetite isnt as big at 10mg but before that i wanted to eat everything in sight and more....
Amazing pictures..Beautiful family. Sorry to hear your not doing well with the taper....
Is that Lialda? I think I got worse when I switched from asacol to lialda....
Do most people who take steriods gain weight? I worked really hard to lose 55 pounds over the last year and still want to lose 10-15 pounds. I have been on prednisone since getting it IV in hospital...
Sean, I am shooting for your remission. I want to be normal too and I hope some day I will achieve it. I don't want to settle for anything less....
Thats interesting. I really do think it is helping. The way I look at it is...its not hurting and its healthy. I hope doctors will someday look into what real people (us with the disease) have to...
just wondering if anyone can give me names of G.I. doctors in st louis who they really like and feel they have really been helped with their u.c....
My doctor looked at me like I had two heads when I told him about the spinach/sunflower seeds. I actually had him test my magnesium level and it was in normal limits. I think its helping but like I...
This is my first post to the site but have been a reader for a year or so. Many times I read the posts and they have been helpful...sometimes just to let me know I am not alone or crazy with some of...