Thanks for your replies. My doctor is away and this doesn't feel urgent to me. I have a call in for an appointment when the office opens again. He is a great doctor. I have a little of the rectal...
Hi, First a little context: I had to stop taking entyvio due to serum sickness. My doctor put me on cortiment (steroid) to manage until a new med would become available in the spring (We are still...
Hey all! I have been trying to cope with my most recent flare. I am on all my mezavant, and salofalk suppositories and enemas that I can take but they are just keeping the worst from happening. I...
I am curious. My doctor in my home town treated me for 13 years and never mentioned IBS to me. Now suddenly, in a new town and with new doctors, I keep being told that I probably have both. Anyone...
Thank you! Your comments are really appreciated. I feel like I can give it a try and see if it is right for me now that I have heard from some people who have tried it. I know there are no...
I saw my GI last week and he is concerned that I am flaring again less than a year after my last one. When you consider that and the fact that I have had a form of this for 14 years, he says my risk...
When I can't eat anything all day (like now) I have an ensure drink at lunch time so that I can keep going. I get the chocolate without any extra's (no extra fibre or protein). I don't seem to...
Sadly, I have found myself in a nasty flare. I had a colonoscopy two weeks ago and it made everything worse. I am now bleeding and passing mucous 6 times a day. since I had an accident, (lost all...
I collect fountain pens and practice calligraphy. I also like to try new recipes. I am learning to play guitar and I love reading....
Hi everyone, I have been off prednisone for 7 weeks after taking it for 3.5 months. While I took it I had a lot of side effects. Some have gone away, but some have not. I am wondering if the...
I am dealing with swelling in my hands, feet and legs. It continues to get worse. During the middle of last week I had to go out and buy some shoes that I could wear to work because my feet were so...
Hi All! I have been busy starting work at a new job and preparing to relocate to a new city at the end of the month. Over the last two and half weeks I have noticed an increase in hair loss - it is...
Congratulations on quitting smoking. I know how hard it is. I have been smoke free for over 2.5 years. I think that quitting was tied to flaring for me but I had to quit and now that it is done, any...
Thanks Quincy I am still on my other meds. They have gotten me through the taper. I have had some uncomfortable days, some with pain as I went down from 60 mg of pred. It got pretty bad for a little...
Yesterday I took my last prednisone. :yeah: During the taper some of the side effects have disappeared or lessened. I am sleeping a little better at least. Some of the others seem to have gotten...
I quit smoking when I got pregnant in 1995 and was diagnosed with proctitis soon after. I started smoking again when I went back to work. Fast forward to September 2006, I quit smoking again and...
Lots of luck to you Elaine! Hope things work out soon and you are feeling better. I think it is great when doctors seek each others expert opinions....
Hi sweetmelody I have only been on prednisone since the beginning of March. This is my first time on this medication. It has caused numerous side effects and acne is definitely one of them for me. My...
I have been eating a little bit of avocado over the last few weeks. I have just sliced it and eaten it raw with my colon friendly burger patties! I have not tried guac because I am not to touch...
It takes time to adjust to a diagnosis. I have had a few moments since my UC diagnosis of despair. I consider myself to be young, healthy and strong. How did this happen? Some days I am blue and some...
Thanks for sharing the information. Wish I could have been there. Please do post if you hear of anything else in Ottawa!...
Me too! What sad news this is. I am down to 40 mg of pred and I taper by 5 mg every 4 days (as long as things go okay). I want my face back! I have really had enough of the hairy moon face, the acne,...
I had to share because of so many of the things I have read here recently! I am still tapering off prednsione, presently at 40 mgs and dropping down by 5 mgs every four days. I was told not to make...
Hope you find some relief soon. That sounds so uncomfortable. I am just in my first week of no pay as I have run out of sick and annual leave. There is a two week waiting period for EI. I am going to...
Thanks! You really did make me laugh out loud. I really needed that....
I can't wait to try this! I have a big nasty bruise on my arm from where my IV went through the vein and ended up depositing all my meds into my flesh. It is nasty and sore. This happened on Thursday...
My partner is a scientist in public health. He will not touch aspartame. Won't even chew gum that has it. Convinced me to give up my diet coke habit as well! Another interesting fact, he and his...
The foods I listed are the only things I have been eating for the past month. I had been eating more, but I was told by my doctor to reduce further because I wasn't making enough progress and I was...
That is what is says on today's report! I had my third colonoscopy in 5 weeks this afternoon. It seems I am hard to figure out just by talking. My colon was looking much better. For now, I continue...
Glad your first day back was successful. Hoping you continue to heal and feel better....
Hi Everyone, I have been in a flare since February and while I have shown some improvement, I am still having troubles, still on 60 of pred and being scheduled for another colonoscopy this week to...
I would ask my GI. I had mouth ulcers last week and my GI said not to worry and we continued treating my flare without change....
I wish I had something helpful to say! I have no experience with what you are going through but I wanted you to know that I read your post. I hope you start to feel better really soon....
Your GP has made me angry and sad at the same time. I am sorry that you received such an inadequate response to your concerns. We all deserve better medical attention (better treatment from our...
Hi there I was diagnosed with proctitis in 1995, just months into my pregnancy and after quitting smoking. I started smoking again when i went back to work and managed my proctitis with salofalk...
Awesome news Red! I am going to celebrate for you and think how great it will be when I get to share the same news. Thanks for sharing a little hope!...
I am lucky to sleep any more than 4 hours a night and that is with me taking two sleeping pills. I fall asleep late and once I wake up I am finished. I also have muscle and joint pain. My ankles,...
*smiles* Yesterday I was signing this same song. I hadn't been able to produce a poop in two weeks. It was in there. Just wouldn't come out due to my inflammation. It was hurting me and I was really...
Hope everything goes well for you today and tomorrow. I used a liquid prep in February and it worked very well. Everything came out the way it was supposed to. It was called pico salax and it tasted...
Thanks for your support and ideas. I was thinking about getting a juicer and started to looking at them online. I will wait and contact the doctors office in the morning (I think the ER would be a...
I have been in flare for about 5 weeks. I am on 60 mg of prednisone and salofalk enemas every night. I have had some improvement but I am having a hard time this week, especially this weekend. I have...
I have been on 60 mg for 3 weeks, 4 days and 7 hours... I have no plans to start to taper yet. Just this last week I realized that I couldn't ignore the hair issue. It was bad. My face has also...
I have always had problems. Mine was that I rarely moved my bowels. I would go weeks without a movement. I didn't often feel pain and I didn't feel constipated, I just didn't go. The amount of food...
I have been taking 60 mg a day for 3 weeks. I take it all in the morning and was advised to take it by 9:00 a.m. This does still seem to keep me awake but I suspect it is better to take it all in the...
What makes me smile? My family. My daughter. She has hydrocephalus and has had numerous brain surgeries. She never lets it get her down! She has spirit and she is so brave. She just turned 13. The...
Hi I started working as a child and youth counsellor 20 years ago. I have worked in group homes, foster care support, family preservation, and the school system. I have loved and been honored to work...
Thanks for your comments everyone. I seem to have soreness at the corners (where you would have a cold sore, except I have never had a cold sore before - Can UC cause cold sores?) I have some ulcers...
Hi there, I checked in with my doctor today (been a week) and ran a couple of things by him. I just wanted to get the benefit of your collective input as well if any of you have a moment. I have been...
I am in Ontario. I have been here all my life so I can't offer a comparison. I can speak to the fact that I am satisfied with the health care system here. My daughter has hydrocephalus. She has had...
Hi Everyone, I am new to the forum and just wanted to introduce myself. I am a 41 year old mom who was first diagnosed with proctitis 13.5 years ago while I was pregnant (just months after quitting...