All, I really need some advise/re-assurance. I have been flaring since Oct 2009 and have lost 20 lbs since then. I was put on Remicade in June 2009 and went through treatments at the lower dose and...
Hi All, I had read a few good baked salomon recipes on this, but I can't seem to find them. There was one that had garlic in it too. Can anyone give me some easy Salmon recipes? Thanks, Blue5...
Hi Spooglesmom, Just wanted to say that I am thinking of you. This disease is hard to deal with and you have some added challenges. I hope things get better for your daughter and you! I can't say for...
I was on Pred from my 3rd infusion to my 4th one. My GI hoped this would jump start my healing, but so far it hasn't. I really don't want to take any more pred as I have already developed...
Hi All, I was wondering for those of you on Remicade how long did it take to work and what improvements have you seen? I had my 4th infusion on Tues Oct 27th and I haven't seen any improvements yet....
Good point on having a cup for breakfast too! Going to start that tomorrow. Just wanted to see if I see any differeance to begin with and since I have...like you said...why not up the intake. As for...
Hi All, I just wanted to share something that is helping me in hopes that others may find some relief too. I have been in a bad flare for a year now, and still am...still not in control :( However,...
Hey Guys, Just wanted to let you know regarding cost. There is also VSL #3 DS (stands for double strength). Your GI can prescribe it and it is covered if you have a prescript ion plan. I send it in...
My next infusion is not until Oct 27th. I hate this feeling and its embaressign constantly going to the bathroom at work....
All, I am getting so discouraged. I have been flaring since Oct 08 and its gotten progressively worse. I have lost 20 lbs now. As much as I didn't want to go to Remi that was really my only option as...
Hey Guys, I just came across this book "Listen to your Gut" by Jini Patel Thompson I was wondering if any of you have read it and if so have you followed any of the recommendations? I just ordered it...
I live in Yardley, PA and I go to a doctor at UPenn. She is great! She has written about UC too. Her name is Dr. Abrerra - here is the phone number to make an appt 215-349-8222 and here is a link...
Hey Guys, I want to first say this site is awesome. Talking to you guys about things is such a good feeling. I was on this site before and told you guys that I haven't told my parents yet about my UC...
All, I need some advice on how to help with the sense of urgency. This last week it has gotten really bad and I am not sure what to do to help the situation. I have a 45 mins commute to work and by...
John, My BM's are less then yours but I too have issues in the morning. I talked to my doctor about[b] it and she said she has heard this quite often and thinks it is because we are some what...
Hi All, This is such a great website...being able to share and ask questions with people going through the same thing is really comforting. Anyway, I have just completed all the blood work, and xray...
my UC because I don't want to add to their worries. Only 5 people in my life know so its hard. Blue5 Lialda - 4 / day VSL#3 - 4 sackets / day Pred 5mg / day (just started will phase off in 1 week)...
Hi all, I am 30 yrs old diagnosed with Pancolitis (UC) in Sept 2007. Since then I have had on and off flares. I recently am in a flare and it seems as though my only alternative according to my GI is...
I take Lialda and I have the same discoloration. It's not just you...don't worry :)...
Hey All, I just joined this site and have to say...love you all for giving all your experiances and suggestions. I went and bought sunflower seeds. I hope it helps. Well I need some help in trying to...